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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Is Sleep Overrated For Us Celiacs?
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Could you elaborate a bit on the question?

Are you implying that we don't need as much as other people?

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Your body repairs itself when you are sleeping so some of us will sleep more during the healing process. A full nights sleep is also important for anyones mental health.

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For me, finally getting a good night's sleep has been the biggest blessing! After years of horrendous insomnia, going gluten and corn free has allowed me to sleep like a normal person. Overrated? Far from it!

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I love sleep! It's so nice to sleep restfully again!

I may not need as much as I used to, but my 8 hours now is way more restful than the 12-14 I used to get.

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Could you elaborate a bit on the question?

Are you implying that we don't need as much as other people?

I mean...it seems fatigue is a common occurrence among people with celiac. I seem to always feel tired and not have a lot of energy (I was just diagnosed a month ago). But then again, I have things I need to get done!! Does it help in the healing process? Or do I just ignore my need for sleep altogether?

Hope that makes more sense!

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For me, finally getting a good night's sleep has been the biggest blessing! After years of horrendous insomnia, going gluten and corn free has allowed me to sleep like a normal person. Overrated? Far from it!

Corn free too? Is there a way doctors can check to "corn intolerance"?

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NCM, I have never been tested because I don't have insurance. From what I hear though, a lot of the tests they give are notoriously innaccurate anyway. I found out the hard way - went gluten free and started eating just whole foods - meat and vegetables and brown rice. When I ate corn I got sick. Got better, tried corn again, and got sick again. Now I am so sensitive to corn I can't even eat xanthan gum.

It's OK though. I feel good. Just last week I was having to take ibuprophen for an unrelated condition, and it made me sick and miserable, even after just one tablet. Advil uses corn fillers. Most other brands use wheat (or corn). I FINALLY found some corn and gluten free asperin powder, so next time I need pain relief I won't have to poison myself to get it.

Now it's been three or four days since my last Advil, and already I feel better and am sleeping agian. I feel like celebrating!

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Yep, corn has the same effect on me as gluten = sleepless nights.

Sleep can never be overrated :ph34r: .... only if it gets in the way of living, like Rip Van Winkel.

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I became sensitive to corn shortly after going gluten-free. It didn't turn up in allergy testing, even though other foods did. Corn doesn't bother everyone who can't tolerate gluten, but it's one to watch out for.

I haven't tried reintroducing it yet. Corn tortillias are handy, but, dang, corn smacked me.

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I believe eliminating corn may be my next step. Have been very ill again lately - have eliminated dairy and soy as well as gluten and am feeling more sick than ever. :( It is so rare for me to sleep that I I can literally count my best sleeps on one hand in the last several years. Hope to get to the bottom of this soon! :)

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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