Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

I Have Gone gluten-free W/my 15 Yr Old And I Feel Terrible!


  • Please log in to reply
15 replies to this topic

#1 maitrimama

maitrimama

    Community Member

  • Advanced Members
  • PipPipPip
  • 40 posts

Posted 27 September 2011 - 05:30 PM

As a show of support I have gone gluten free with my 15 year old daughter. It has been one week and I feel terrible, queasy, shakey, tired, grouchy etc. and she is the one with celiac. Honestly if my daughter said she felt this bad I would have thought she was exaggerating so I am glad I am doing this. I know she isn't feeling great and I am worried she won't stick it out, she gone all day at school and I have no idea if she is strictly sticking to gluten free. Yes I was a bit of a wild child but I don't know what I would have done. Does this feeling terrible last long? Does anyone have any advice for dealing with and helping a teen?
  • 0

Celiac.com Sponsor:

#2 mommyto2kids

mommyto2kids

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 280 posts

Posted 27 September 2011 - 06:04 PM

All I know is I hate being sick. I wouldn't wish it on anyone. I'm sure your daughter doesn't want you sick. If gluten free makes you sick, don't do it. There are other ways to help your daughter. You tried and it didn't work. We do a gluten free dinner. That is what has worked for us. Maybe try that. As you said, she's gone all day. So what's the point other than that.
  • -1

#3 Ollie's Mom

Ollie's Mom

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 166 posts

Posted 27 September 2011 - 06:15 PM

I would give it more time. From what I understand, many people go through a "withdrawal" like phase when they cut out gluten. That's what it sounds like may be happening to you right now.

I would not give up on it yet. It has only been a week. I would say give it at least a month.
  • 1

#4 maitrimama

maitrimama

    Community Member

  • Advanced Members
  • PipPipPip
  • 40 posts

Posted 27 September 2011 - 06:27 PM

Thank you very much for the support, it actually made me cry. As a mom I want to protect her but also know life's difficulties are what shape us into caring compassionate people. I still wish it could be me and not her. She's my trooper, first born,wasn't breathing at birth, iugr baby, heart defects,dislocated her elbow when she was 5 and popped it back in...hasn't she had enough? You'd never know if you met her (though she is small for our family 5'3" & 94lbs). My heart sank when we got the diagnosis celiac AND IBF. We'll get through it no matter how unfair it seems.
  • 0

#5 Jestgar

Jestgar

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,755 posts

Posted 27 September 2011 - 06:38 PM

If being gluten-free makes you feel ill, then it's a sign that you have problems with gluten. I agree with giving it more time. You may find that once you're through the early stages you feel better than you have in many years. :)

Good for you for doing this with your daughter, and congrats for discovering your own issues.

I would also ask if you've switched to whole foods, or went straight for the gluten-free substitutes. Many people find that eating natural, fresh cooked meats, veggies and fruits make them heal more quickly.
  • 1
"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

#6 Skylark

Skylark

    Glutenologist

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,490 posts

Posted 27 September 2011 - 06:56 PM

It's a little surprising what going off gluten can do when you're sensitive to it. You'd think it would be like deciding you're not going to eat strawberries or nuts but if you're sensitive it's totally different. For some people there is a mild opiate-like effect from gluten and when you remove it from your diet you go through a withdrawal. It's typically a few weeks. Hang in there, because it definitely gets better and keep encouraging your daughter too.

Also as Jestgar points out, if going off gluten is messing with you this badly you are almost certainly gluten sensitive. You may be pleasantly surprised how well you feel gluten-free once this uncomfortable phase is over.

Don't feel sorry for your daughter. It's a godsend you caught her celiac this young and she hasn't had to live with it for 30-odd years! Celiac is a pain in the butt, but it's not the end of the world. It's totally treatable with diet, which is a lot more than you can say for many other health problems. Most of us don't think of ourselves as having a "disease" becasue once you've been gluten free for a while, you recover.
  • 1

#7 weluvgators

weluvgators

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 337 posts

Posted 27 September 2011 - 07:07 PM

Have you been tested yet for celiac? You may want to get yourself and any other family members tested now. I went gluten free for my DD, and I never would have guessed that I would be unable to do a gluten challenge for myself later (my reactions are too severe now after being strictly gluten free for my DD). And we had some withdrawal issues initially with going gluten free, but they passed.
  • 0
My super silly red siren is my guiding light. She has been a tremendous lesson for me in how gluten affects different people in very different ways. She is a super duper silly girl that was simply born that way. I have no idea why I am so blessed to have her guidance.

#8 mommyto2kids

mommyto2kids

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 280 posts

Posted 28 September 2011 - 07:12 AM

I did not know that. Thanks for teaching me. :)
  • 1

#9 lovegrov

lovegrov

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,534 posts

Posted 28 September 2011 - 07:55 AM

I agree that all first-degree family members should be tested, but I don't agree that feeling bad is necessarily a sign that you have a problem with gluten.

richard
  • 0

#10 Skylark

Skylark

    Glutenologist

  • Advanced Members
  • PipPipPipPipPipPip
  • 5,490 posts

Posted 28 September 2011 - 11:08 AM

I agree that all first-degree family members should be tested, but I don't agree that feeling bad is necessarily a sign that you have a problem with gluten.

People who have no problems with gluten go on and off it at will, with no issues at all. It's no more of an issue than deciding not to eat strawberries for a couple weeks. You probably go on and off various foods like seasonal produce all the time without thinking anything of it. For people who tolerate gluten, it is digested with no particular inflammatory, immune, or biochemical reactions just like any other food.

If you get a response off gluten, positive or negative, and it's not a sensitivity to something else you've suddenly started eating more of like xanthan gum, your body is seeing gluten as something other than simply food. The reaction needs to be examined with celiac testing and a couple months trial of a gluten-free diet to see what's really going on.
  • 1

#11 tarnalberry

tarnalberry

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,542 posts

Posted 28 September 2011 - 12:02 PM

I highly doubt this is a celiac thing. It sounds like hypoglycemia, honestly. What exactly have you changed in your diet? (Clearly "cut out gluten", but what does that look like, in real-food terms, for you?) If you're eating more refined carbs (say, processed gluten free cookies, etc.) and less protein/fat, this could be part of the issue. If you're also simply eating a lot less, that could cause these symptoms as well. (Alternatively, if you are introducing processed, gluten free things into your diet that previously were not there, there may be something in those that you are sensitive to.)
  • 0
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#12 maitrimama

maitrimama

    Community Member

  • Advanced Members
  • PipPipPip
  • 40 posts

Posted 28 September 2011 - 01:25 PM

It does feel like hypoglycemia that won't let up. Usually a piece of fruit and some cheese helps but not this time. I am usually a pretty healthy eater and suppose I am eating less but that is probably a good thing. Another thing is that is does feel like withdrawal, I am an alcoholic/addict in recovery for quite some time but I do remember this feeling. I am going to stick to it and talk to my doctor on Monday because I just happen to have a blood pressure check.
  • 0

#13 mommyto2kids

mommyto2kids

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 280 posts

Posted 01 October 2011 - 09:12 AM

Just trying to understand. Does Skylark think that xanthumgum could be an allergen to Celiacs? I wonder that with baking flour, gluten free for myself.
  • 0

#14 kareng

kareng

    Advanced Community Member

  • Moderators
  • PipPipPipPipPipPip
  • 13,661 posts

Posted 01 October 2011 - 09:21 AM

Xantham gum seems to bother some people. It is in alot of products in small amounts. It is in gluten-free baked good so suddenly eating them means you are suddenly eating alot more X gum than before.
  • 0

Celiac.com - Celiac Disease Board Moderator
 

LTES

 

 

Someone told me I was delusional.  I almost fell off my unicorn.

 

 

fantasy-unicorn-15.gif


#15 dilettantesteph

dilettantesteph

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,931 posts

Posted 02 October 2011 - 07:29 AM

You might want to consider what you are eating. Are you eating a lot of gluten free juck foods? It might just be the increase in junk foods. How about having omelets, stir fries with rice, fruit and yogurt, meat and veggies. If you are eating a healthy diet you should feel well.
  • 0


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: