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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sciatic Nerve Pain
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14 posts in this topic

Last week, I bought a "gluten-free" chicken sausage out of a full service meatcase. The next day, I was glutened beyond belief! Low and behold, I dug through the garbage and found the parchment paper wrapper... and there were bread crumbs in it. Shortly thereafter, I got Sciatic Nerve pain from my glute all the way down to my toe. It progressively got worse over the past 5 days. In fact, I just came from the doctor (it was THAT bad)

One of my near and dear friends (also a Celiac) just called me and asked how I was doing. When I "fessed up" about my ailment, he said that when he gets glutened he immediately gets sciatic issues that lasts for a week.

Does this happen to any of you? In the past, I just had the usually gluten symptoms (diarrhea, fatigue, etc.) NEVER pain. And, this is the most pain I have ever had in my life.

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UPDATE: Thank goodness for my health insurance, as I have already been referred to a physical therapist at 9a.m. tomorrow. I told her about my "theory" and she substantiated it... even elaborated about how we Celiacs get so much more inflamed when we are glutened.

Just one more thing we Celiacs have to look forward to when we get glutened. :(

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In my late teens/ 20's I would get lower back pain. To the point I couldn't lay flat. This coincides with when I had GI symptoms (probably from gluten).

I found a very good masseuse that worked me over, pressure points, stretching, etc. Felt like I'd been caned but it worked. She said my nerves were tangled in muscles, and there were giant knots (this is my best recall after 10+ years).

Good luck, I know it's terrible.

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I have chronic knee pain from years of playing competitive soccer. With physio and strengthening exercises, the pain is greatly decreased, however if I get glutened the pain comes back in full force. I hope you called the place where you got the not-so-gluten-free sausage! Feel better soon

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Physically, I feel terrible right now. But, I feel GOOD knowing that there was a direct correlation between being glutened and the muscle pain.

And talk about a double whammy... trying to go to the bathroom with a leg that doesn't work. It isn't pretty. LOL.

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I had my first physical therapy session in my life this morning. My therapist was remarkable and her mother-in-law was a Celiac as well. The stories that she told of other Celiacs making a visit right after a gluten encounter! Just when I thought I saw the last of the side effects related to gluten, another issue rears its ugly head.

If you have the same issue, you can most likely related it back to being glutened.

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I also experience joint pain after getting glutened. It always affects the knuckles in my left hand the worst and lasts about 10 days. It makes working really unpleasant since I'm a massage therapist. I haven't dared eat out since the last time a few months back, it's just way too iffy.

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I have learned SO much from this past gluten-ing experience. (As has my doctor, physical therapist, and massage therapist.)

All of this joint, nerve, and muscle pain can be directly related to gluten. And the more I look back at history, I remember sciatic pain just shortly after being glutened.

At least the above professionals, will be able to make un-diagnosed people aware that they might have a gluten intolerance.

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UPDATE: For the first time in my life, I went to an acupuncturist this morning for the pain. Literally, 80% of the pain is gone after just one 90 minutes session.

I have a follow up session on Monday. If you have ANY type of pain, you really should consider acupuncture as an option. I'm a believer.

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Before I was diagnosed (which was recently), I always battled with sciatic pain and I saw a chiropractor for YEARS with little relief. I couldn't make long drives and had a hard time sitting through college classes. Since going gluten free, I haven't noticed any sciatic pain. Since swelling is a normal reaction for us when we get glutened, it doesn't sound far fetched that there could be some swelling in that area that could put pressure on the sciatic nerve - its a pretty large nerve after all!!

P.S. I am a HUGE fan of acupuncture - I had it done a couple of times and I never slept better in my life! If I wasn't on such a tight budget, that would be the first thing I'd be making appointments for again!!

Best of luck on your recovery from that unfortunate glutening experience...

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I had really bad sciatic pain that coincided with a glutening last winter/spring. Lasted for about a week. Only time I've had that symptom, so I don't know for sure if it was gluten or something else that just occurred at the same time. Glad the acupuncture is working and hope you're feeling better soon!

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Yep, my sciatica always gets worse when I get glutened. It's already pretty crappy on a regular basis, but it sure as hell gets about 10 times worse when I get contaminated. Glad to see you got into an acupuncturist and are feeling better :}

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Last week, I bought a "gluten-free" chicken sausage out of a full service meatcase. The next day, I was glutened beyond belief! Low and behold, I dug through the garbage and found the parchment paper wrapper... and there were bread crumbs in it. Shortly thereafter, I got Sciatic Nerve pain from my glute all the way down to my toe. It progressively got worse over the past 5 days. In fact, I just came from the doctor (it was THAT bad)

One of my near and dear friends (also a Celiac) just called me and asked how I was doing. When I "fessed up" about my ailment, he said that when he gets glutened he immediately gets sciatic issues that lasts for a week.

Does this happen to any of you? In the past, I just had the usually gluten symptoms (diarrhea, fatigue, etc.) NEVER pain. And, this is the most pain I have ever had in my life.

I've got celiac and am a licensed massage therapist for 6+ years with scoliosis. From your first post I can say muscles are affected by glutn reactins (spasms, cramps, locing up especially after work outs due to the lack of absorption of necessary nutrients, minerals and water absorption). Sometimes the stress (mentral and physical) of having a gluten reaction can trigger severe muscle cramps which obviously cramp nerve and blood flow. Gentle maasage/excersises (which ever you feel comfortable with) and tons of water (like 4x 32 oz.) will help flush the muscles and your body can begin recovery. This is based on my experience and clients experience, hope its helpful.

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I know this is an old thread, but this is very helpful to me. I've been having all kinds of bad joint pains (Sciatica and shoulder/arm pain) that are even worse than the D.

My physical therapist looked at me like I was looney tunes when I mentioned I'd been diagnosed by my MD as gluten intolerant and I thought there might be a connection!

Sigh...Glad to hear I wasn't imagining it.

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      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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