Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Absolutely Everything I Wanted To Know About Cd...
0

16 posts in this topic



Ads by Google:
Absolutely everything I wanted to know about celiac disease....

:)A doctor decribes celiac disease

:o WOW!!!.... this answered any and all of my questions!!!!! :lol:

<{POST_SNAPBACK}>

nice! Thanks for posting that!

0

Share this post


Link to post
Share on other sites

Thanks for this Amandasmommy! Will be printing it to educate a few people :D

0

Share this post


Link to post
Share on other sites

Thanks! That is a really good one, I am sending it to my sister......

Karen

0

Share this post


Link to post
Share on other sites

Thanks!

I am going to print it out and give it to my hubby to read

--Maya

0

Share this post


Link to post
Share on other sites




Hi amandasmommy,

Thank for this link...what a great article!! :) So often I read medical articles that are written in such a "doctorly" manner. Since this one is so easy to understand

I'm going to send it to a few family members that just haven't been able to get it, or refuse to believe they have it.

Wendy

0

Share this post


Link to post
Share on other sites

From the article:

"When somebody presents with severe diarrhea and wasting, that means most of the small intestine is damaged and it is not able to

compensate for the damage closer to the stomach. So it is the amount

of the small intestine that is damaged which determines the symptoms.

If you have all of the small intestine damaged you'll have diarrhea and

weight loss. If only a small portion of the small intestine is

damaged, you may have pain, bloating, and discomfort after eating but

not diarrhea."

This seems to explain why different people take different amounts of time to heal. I had NO idea that if you had diarrhea and weight loss that the damage was so extensive. I have to heal my whole small intestine! That's 26 feet of innards! I thought it was just the top part. No wonder it's taking so long.....

0

Share this post


Link to post
Share on other sites

WOW E WOW --- Wouldn't it be nice if we could all have this guy for our doctor? Someone who REALLY gets it. His patients are very lucky people, I hope they realize it.

Barbara

0

Share this post


Link to post
Share on other sites

Hey Shimma!

The best way to tackle 26 feet of innards is one foot at the time, eh?

;)

Most people, it "one day at a time", for celiacs, we measure improvement by the foot!!! LOL!! :P

Karen

0

Share this post


Link to post
Share on other sites

After reading this, I checked out more of Dr. Murray's writings. I like his policy about doing bone mineral density scans on his patients. If we can ever sell our house, I know which doctor I will be attempting to see. Thanks for pointing this out.

0

Share this post


Link to post
Share on other sites

your welcome. this explains so much more for me, and it will also help my family and friends too. i sent it to em all.

this also explains why amanda is thin and i am not. also before we found out about her having celiac disease we almost lost her, i know that now. she wasn't just skinny, she was boney, bloated stomach and steatoreah ( i hope i spelled it right) yea not just diareah. she was slowly starving to death, i was soo scared.

i do think more people need to hear about this, even test them selves. that is also why im trying to contact oprah. click hear to reply to my post on oprah.com. just page down to see mine.

did you see the percentages of having celiac disease? i bet the more people who test themselves the more common it will be!!!!!

0

Share this post


Link to post
Share on other sites

In fact, Dr. Marsh in Manchester (England)

has put gluten in the rectum and in a couple of cases he had DH

patients claim that they got an attack of DH afterwards.

~Hahaha! I had to laugh when I read this! OUCH!

0

Share this post


Link to post
Share on other sites
i do think more people need to hear about this, even test them selves. that is also why im trying to contact oprah. click hear to reply to my post on oprah.com.  just page down to see mine.

did you see the percentages of having celiac disease? i bet the more people who test themselves the more common it will be!!!!!

<{POST_SNAPBACK}>

Hey!!! I wrote to Oprah too saying that she needs to do a show on this!!!! I hope she does!

0

Share this post


Link to post
Share on other sites

Thank you!!! AMANDASMOMMY. That was excellent. I have made a copy for my husband to read. And the next copy is going to my daughters doctor. I have been trying to get her tested, and her doctor said he would have to do a colonoscopy to determined if she was a celiac or not. It makes me so mad that hes a md and totally clueless.

Anyway, that a whole another thread. Many thanks for the info.

:D:D Susan (GITRDONE)

0

Share this post


Link to post
Share on other sites
In fact, Dr. Marsh in Manchester (England)

has put gluten in the rectum and in a couple of cases he had DH

patients claim that they got an attack of DH afterwards.

~Hahaha! I had to laugh when I read this! OUCH!

<{POST_SNAPBACK}>

They'll do that for some gluten challenges, instead of 3 months eating gluten. I don't know... sounds painful, but not as painful as 3 months of gluten! ;-)

0

Share this post


Link to post
Share on other sites

I having a few moments to do whatever, thought I would have a look at some old posts on this forum. I came accross this, and the referral to an article, which might be a little bit old, but I think it was great reading, and probably worth bringing back up again.

Cathy

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,090
    • Total Posts
      920,307
  • Topics

  • Posts

    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
    • No!  Once you fill the tub, if you sit in it for 3 minutes or you stay for 10... It doesn't change the amount or cost of the water.  That's only relevant if you have 3 kids to cycle thru that same water.  Is your hub bathing in the same water after you? Lol  And even if you add some more hot and stay longer....well...it's much cheaper than perscription meds, vodka or a substance that is legal in a few states.     Of course this only pertains to those of use with running water.... If you make your hub haul water from the creek or well and heat it over a fire....
    • Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching.  Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion.  I don't know about you, but I was brought up to "get in, get done get out."  A long soak in the bath was a frivolous luxury, and a waste of time and hot water.  So now I'm having this awful breakout from forgetting to read a label and got wheated.  And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery.  And it's been hard! (But it's been very helpful too)  It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary!  Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing.  Does anyone else struggle with this?
    • His son, Eli, had been misdiagnosed with celiac disease, so the family tried some gluten-free foods. After adding quinoa (KEEN-wah) to their diet, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • HappyMom623

      I have Tangled problem! I want all the things Rapunzel Related....including Flynn Rider 😂 but seriously. I have like 8 shirts I want.
      · 0 replies
    • AprilBeth2013

      RT @MarkDever: “But the work is God’s and we do not fear the final results. ‘The heathen shall be given to His Son for His inheritance,’ .…
      · 0 replies
    • silk

      I have celiac disease and have been gluten-free for almost 10 years.  I am extremely sensitive to gluten, noting that I react within 15 minutes of contact and in fact the doctor suspects that there may also be an actual wheat allergy at play but have never bothered to be tested since I avoid it like the plague!  I am curious to know if anyone else reacts to flax or inulin?  My symptoms with those two are almost identical to gluten so I have to really watch for that in gluten-free breads and baking and recently discovered after the fact that flax was in the juice I was drinking. I know that people with gluten issues can have other problems as well and in fact I also avoid milk products.  Even after 10 years, and although it has become a way of life, it's still frustrating to have to read every ingredient on every label.😞
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,116
    • Most Online
      1,763

    Newest Member
    Themos
    Joined