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Absolutely Everything I Wanted To Know About Cd...


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15 replies to this topic

#1 Guest_AmandasMommy_*

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Posted 11 August 2005 - 07:26 AM

Absolutely everything I wanted to know about celiac disease....




:) A doctor decribes celiac disease




:o WOW!!!.... this answered any and all of my questions!!!!! :lol:
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#2 tarnalberry

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Posted 11 August 2005 - 08:58 AM

Absolutely everything I wanted to know about celiac disease....
:) A doctor decribes celiac disease
:o WOW!!!.... this answered any and all of my questions!!!!! :lol:

<{POST_SNAPBACK}>


nice! Thanks for posting that!
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA

#3 Guest_Viola_*

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Posted 11 August 2005 - 09:24 AM

Thanks for this Amandasmommy! Will be printing it to educate a few people :D
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#4 Canadian Karen

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Posted 11 August 2005 - 10:20 AM

Thanks! That is a really good one, I am sending it to my sister......

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#5 Mjohnson73

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Posted 11 August 2005 - 10:46 AM

Thanks!
I am going to print it out and give it to my hubby to read
--Maya
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________________________________________________________

gluten-free since 8/1/05
Negative Bloodwork Results: 8/11/05
BIG Improvement on gluten-free Diet: since 8/1/05

6 year old son tested:8/29/05 Low TtG, High IgG (124) , High IgA (48)... now on a gluten-free diet per his dr. and starting to eat like a pig! (WOOHOO!!!!! he never used to eat before!)
Testing 3 year old daughter: (waiting to see if Dr. wants to test her..depends on her height/weight in January)

#6 watkinson

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Posted 11 August 2005 - 10:50 AM

Hi amandasmommy,

Thank for this link...what a great article!! :) So often I read medical articles that are written in such a "doctorly" manner. Since this one is so easy to understand
I'm going to send it to a few family members that just haven't been able to get it, or refuse to believe they have it.

Wendy
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#7 shimma

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Posted 11 August 2005 - 03:48 PM

From the article:

"When somebody presents with severe diarrhea and wasting, that means most of the small intestine is damaged and it is not able to
compensate for the damage closer to the stomach. So it is the amount
of the small intestine that is damaged which determines the symptoms.
If you have all of the small intestine damaged you'll have diarrhea and
weight loss. If only a small portion of the small intestine is
damaged, you may have pain, bloating, and discomfort after eating but
not diarrhea."



This seems to explain why different people take different amounts of time to heal. I had NO idea that if you had diarrhea and weight loss that the damage was so extensive. I have to heal my whole small intestine! That's 26 feet of innards! I thought it was just the top part. No wonder it's taking so long.....
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#8 Guest_barbara3675_*

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Posted 11 August 2005 - 05:45 PM

WOW E WOW --- Wouldn't it be nice if we could all have this guy for our doctor? Someone who REALLY gets it. His patients are very lucky people, I hope they realize it.

Barbara
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#9 Canadian Karen

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Posted 12 August 2005 - 01:27 AM

Hey Shimma!

The best way to tackle 26 feet of innards is one foot at the time, eh?

;)

Most people, it "one day at a time", for celiacs, we measure improvement by the foot!!! LOL!! :P

Karen
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Karen

positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden


Laughter is the shortest distance between two people.
-- Victor Borge



"An optimist laughs to forget. A pessimist forgets to laugh."
Tom Nansbury


"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Unknown

#10 emeraldskies

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Posted 12 August 2005 - 05:59 AM

After reading this, I checked out more of Dr. Murray's writings. I like his policy about doing bone mineral density scans on his patients. If we can ever sell our house, I know which doctor I will be attempting to see. Thanks for pointing this out.
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emeraldskies

Diagnosed through EnteroLab in 2004 - malabsorption, antigliadin and antitissue transglutaminase IgA antibodies to gluten, and anti-casein IgA antibodies
HLA-DQ 2,1 (Subtype 2,6)
Gluten and casein free since diagnosis
Autoimmune thyroiditis
Hypocortisolism
Deficient levels of estradiol, estrone, pregnenolone, and testosterone
Low cholesterol (current levels: HDL-39, LDL-58, total-109, triglycerides-59)
Osteoporosis
Atrophic glossitis
Osteomalacia
Ataxia (gait and limb)

"All truth passes through three stages: first it is ridiculed, second it is violently opposed, and third it is accepted as self-evident."
- Arthur Schopenhauer

#11 Guest_AmandasMommy_*

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Posted 12 August 2005 - 07:02 AM

your welcome. this explains so much more for me, and it will also help my family and friends too. i sent it to em all.

this also explains why amanda is thin and i am not. also before we found out about her having celiac disease we almost lost her, i know that now. she wasn't just skinny, she was boney, bloated stomach and steatoreah ( i hope i spelled it right) yea not just diareah. she was slowly starving to death, i was soo scared.

i do think more people need to hear about this, even test them selves. that is also why im trying to contact oprah. click hear to reply to my post on oprah.com. just page down to see mine.

did you see the percentages of having celiac disease? i bet the more people who test themselves the more common it will be!!!!!
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#12 Guest_~wAvE WeT sAnD~_*

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Posted 12 August 2005 - 12:40 PM

In fact, Dr. Marsh in Manchester (England)
has put gluten in the rectum and in a couple of cases he had DH
patients claim that they got an attack of DH afterwards.

~Hahaha! I had to laugh when I read this! OUCH!
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#13 Guest_zipy_*

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Posted 12 August 2005 - 08:48 PM

i do think more people need to hear about this, even test them selves. that is also why im trying to contact oprah. click hear to reply to my post on oprah.com.  just page down to see mine.

did you see the percentages of having celiac disease? i bet the more people who test themselves the more common it will be!!!!!

<{POST_SNAPBACK}>



Hey!!! I wrote to Oprah too saying that she needs to do a show on this!!!! I hope she does!
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#14 Guest_GITRDONE_*

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Posted 13 August 2005 - 09:59 AM

Thank you!!! AMANDASMOMMY. That was excellent. I have made a copy for my husband to read. And the next copy is going to my daughters doctor. I have been trying to get her tested, and her doctor said he would have to do a colonoscopy to determined if she was a celiac or not. It makes me so mad that hes a md and totally clueless.
Anyway, that a whole another thread. Many thanks for the info.
:D :D Susan (GITRDONE)
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#15 tarnalberry

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Posted 13 August 2005 - 01:03 PM

In fact, Dr. Marsh in Manchester (England)
has put gluten in the rectum and in a couple of cases he had DH
patients claim that they got an attack of DH afterwards.

~Hahaha! I had to laugh when I read this! OUCH!

<{POST_SNAPBACK}>


They'll do that for some gluten challenges, instead of 3 months eating gluten. I don't know... sounds painful, but not as painful as 3 months of gluten! ;-)
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA


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