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Absolutely Everything I Wanted To Know About Cd...
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Absolutely everything I wanted to know about celiac disease....

:)A doctor decribes celiac disease

:o WOW!!!.... this answered any and all of my questions!!!!! :lol:

<{POST_SNAPBACK}>

nice! Thanks for posting that!

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Thanks for this Amandasmommy! Will be printing it to educate a few people :D

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Thanks! That is a really good one, I am sending it to my sister......

Karen

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Thanks!

I am going to print it out and give it to my hubby to read

--Maya

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Hi amandasmommy,

Thank for this link...what a great article!! :) So often I read medical articles that are written in such a "doctorly" manner. Since this one is so easy to understand

I'm going to send it to a few family members that just haven't been able to get it, or refuse to believe they have it.

Wendy

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From the article:

"When somebody presents with severe diarrhea and wasting, that means most of the small intestine is damaged and it is not able to

compensate for the damage closer to the stomach. So it is the amount

of the small intestine that is damaged which determines the symptoms.

If you have all of the small intestine damaged you'll have diarrhea and

weight loss. If only a small portion of the small intestine is

damaged, you may have pain, bloating, and discomfort after eating but

not diarrhea."

This seems to explain why different people take different amounts of time to heal. I had NO idea that if you had diarrhea and weight loss that the damage was so extensive. I have to heal my whole small intestine! That's 26 feet of innards! I thought it was just the top part. No wonder it's taking so long.....

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WOW E WOW --- Wouldn't it be nice if we could all have this guy for our doctor? Someone who REALLY gets it. His patients are very lucky people, I hope they realize it.

Barbara

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Hey Shimma!

The best way to tackle 26 feet of innards is one foot at the time, eh?

;)

Most people, it "one day at a time", for celiacs, we measure improvement by the foot!!! LOL!! :P

Karen

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After reading this, I checked out more of Dr. Murray's writings. I like his policy about doing bone mineral density scans on his patients. If we can ever sell our house, I know which doctor I will be attempting to see. Thanks for pointing this out.

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your welcome. this explains so much more for me, and it will also help my family and friends too. i sent it to em all.

this also explains why amanda is thin and i am not. also before we found out about her having celiac disease we almost lost her, i know that now. she wasn't just skinny, she was boney, bloated stomach and steatoreah ( i hope i spelled it right) yea not just diareah. she was slowly starving to death, i was soo scared.

i do think more people need to hear about this, even test them selves. that is also why im trying to contact oprah. click hear to reply to my post on oprah.com. just page down to see mine.

did you see the percentages of having celiac disease? i bet the more people who test themselves the more common it will be!!!!!

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In fact, Dr. Marsh in Manchester (England)

has put gluten in the rectum and in a couple of cases he had DH

patients claim that they got an attack of DH afterwards.

~Hahaha! I had to laugh when I read this! OUCH!

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i do think more people need to hear about this, even test them selves. that is also why im trying to contact oprah. click hear to reply to my post on oprah.com.  just page down to see mine.

did you see the percentages of having celiac disease? i bet the more people who test themselves the more common it will be!!!!!

<{POST_SNAPBACK}>

Hey!!! I wrote to Oprah too saying that she needs to do a show on this!!!! I hope she does!

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Thank you!!! AMANDASMOMMY. That was excellent. I have made a copy for my husband to read. And the next copy is going to my daughters doctor. I have been trying to get her tested, and her doctor said he would have to do a colonoscopy to determined if she was a celiac or not. It makes me so mad that hes a md and totally clueless.

Anyway, that a whole another thread. Many thanks for the info.

:D:D Susan (GITRDONE)

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In fact, Dr. Marsh in Manchester (England)

has put gluten in the rectum and in a couple of cases he had DH

patients claim that they got an attack of DH afterwards.

~Hahaha! I had to laugh when I read this! OUCH!

<{POST_SNAPBACK}>

They'll do that for some gluten challenges, instead of 3 months eating gluten. I don't know... sounds painful, but not as painful as 3 months of gluten! ;-)

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I having a few moments to do whatever, thought I would have a look at some old posts on this forum. I came accross this, and the referral to an article, which might be a little bit old, but I think it was great reading, and probably worth bringing back up again.

Cathy

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    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
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    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
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