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Sharing - What Supplements/vitamins Work For You?


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7 replies to this topic

#1 T.H.

 
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Posted 01 October 2011 - 04:11 PM

I think one of the really challenging things to find, as a super-sensitive, is supplements that don't make you sick. Probiotics, vitamins and minerals, digestive enzymes - all the things that can be really helpful, but we have to find safe sources.

So, what brands of supplements/probiotics/other 'gut/body helpers' do you take that don't make you react?
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T.H.

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 

 

Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive


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#2 dilettantesteph

 
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Posted 02 October 2011 - 06:36 AM

I use homemade yogurt. I found a whole milk source with nothing added. In addition the cows are pasture fed and not supplemented with gluten grains or oats. I use their yogurt for first culture, but make my own from my own four more times. How much more can that be stretched? The sources I read said three, but I've taken it to four so far. Maybe I'll try 5.
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#3 Tigercat17

 
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Posted 02 October 2011 - 09:12 AM

I think one of the really challenging things to find, as a super-sensitive, is supplements that don't make you sick. Probiotics, vitamins and minerals, digestive enzymes - all the things that can be really helpful, but we have to find safe sources.

So, what brands of supplements/probiotics/other 'gut/body helpers' do you take that don't make you react?


Hi Shauna,

This is a really good question. I wish I had some answers for you. So far I have reacted to many muti vitamins. I think I tried about seven different companies and I still haven't found one that I can take. After the last time I'm really afraid to take any and I've completely given up on them.

Back in Jan of this year I was so sick from vitamins and it took me four months to realize it. The doctor thought I had lymphoma and I had to go through a laparoscopy surgery to remove enlarged lymph nodes in my stomach. And all because of "gluten free" vitamins... <_< Even the doctors didn't think it was because of the celiac disease. All the path reports came back negative for cancer , but a reactive lymph node was the diagnosis. Which means it could be from an autoimmune disease. Duh -celiac disease! It wasn't until two weeks after the surgery I started to make the connection to the vitamins. And I had to go through even more testing for other autoimmune disease -everything came back negative, Thank God! I stopped taking the vitamins and wouldn't you know all my symptoms went away and I starting feeling really great again. I even thought about suing the company, but the lawyers thought in the long run it wouldn't be worth it. So I actually had to have surgery because of vitamins. :angry:

Right now I take:
Slow Fe iron -red pills
Nature Made Calcium with vitamins D (but not everyday)

I haven't tried anything new since last May so I thought I'd try another multi vitamin two weeks ago. I tried the Nature Made multi vitamin (gluten free) and the next day I felt I got glutened pretty bad so I had to stop them right away. I always have reactions the next day after I get glutened and I made sure I didn't try anything else so I know it was the vitamins.

After two years, I've just come to the conclusion that I'm just too sensitive to take any muti vitamins and I just try to eat really healthy. I'm thinking that there are just too many ingredients in the multivitamins that it makes it hard for them to be uncontaminated by gluten.

If there are any muti vitamins that the super senistive people take without any problems I'd love to know, too.

Thanks Shauna for posting this. You must have been reading my mind... :)
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Lisa

Infertility since 1995/Endometriosis
Hasimoto Thyroid disease 1998
Enlarged Abdominal Lymph nodes since 2003 - Stable
Thyroid Hurtle Cell Cancer 2008 Stage 1- Total Thyriodectomy 2008
Anxiety/Depression/Insomnia/Fatigue - Gone with gluten free diet
Acid reflux -LPR 7-2009 - Gone with a Strict gluten free diet
Celiac disease - positive upper endoscopy & Blood Test 9-2009
Undiagnosed celiac for 20 years - Gluten free since 9-13-09

#4 dilettantesteph

 
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Posted 03 October 2011 - 03:09 AM

I had the same problems with vitamins. There are so many vitamins and supplements recommended here, it makes me nervous, but I haven't tried all of them to know that I react, but just about everything I tried, I did react to. They aren't well regulated and I think that it is difficult to get things really gluten-free when there a lot of ingredients, especially processed ones, as stated above.

I do manage two:
Thyadine iodine supplement and Life Extension Vitamin D3 2,000 I.U. liquid emulsion. I diluted it with my safe olive oil.

I found that I reacted to the Nature Made Vitamin D. I am sensitive to crazy low levels of cc.

I have tried to get vitamins as concentrated as possible with as few ingredients as possible. The few ingredients limit the chances of cc. The concentrated form means that we take less so that the cc is less likely to bother us.

It is crazy when you feel better when you stop taking your vitamins. Vitamins are supposed to make you feel better, right?
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#5 RollingAlong

 
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Posted 31 October 2011 - 07:03 AM

My spouse felt loads better when he stopped the vitamins. I bought them carefully, they were high quality and free of gluten, casein and soy.
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#6 T.H.

 
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Posted 31 October 2011 - 07:46 AM

Jeeesh, that's so awful, for vitamins to cause this much trouble! I haven't been able to find any multi-vitamins or calcium supplements that don't make me sick, either, although some I had an allergic reaction to early on, so I never got to try it when I was having my super-sensitive reactions. I have one iodine source, but I just don't know if I trust it - not for gluten reasons, but for whether or not it's actually iodine that I can absorb. The company seems a bit odd, to be honest. If I find out it's good, I'll put the name out here!

One thing I've been investigating - although it's not perfect by a long shot - is herbs. A number of herbs seem to be fairly high in certain vitamins, so I've been trying to grow as many herbs as my backyard can support. Finding accurate information on estimated herbal vitamin levels has been difficult, though. The most detailed information on this I've found here: nutrition-and-you.com.

The site lists some of the nutritional information from the USDA, some cooking uses, other information. Although I'm still researching which vitamins can survive heat and which can't, that sort of thing.

I started this a little bit ago, and then as usually happens, the rest of life barged in and it's kind of fallen by the wayside, even though I really need to keep it going!

I have no idea how much this has helped or not, but I have found it interesting that eating plainly as I do now, with salt and my own herbs for the only alternate flavor, I'll find myself craving one or two of the herbs for a few days in a row, then a totally different set for the following days. Not even necessarily herbs that I like the flavor of, even, but I crave them just the same. Makes me wonder if those herbs are high in vitamins that I'm need at that point, you know?

Considering that this has been my only vitamin source (aside from the iodine I try) for over a year now, and my vitamin levels checked out well at the last doctor check, I figure at least they aren't hurting! :)
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T.H.

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 

 

Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive


#7 dilettantesteph

 
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Posted 01 November 2011 - 03:37 AM

I had always been iron deficient and took iron supplements. After going gluten free my iron levels were high so I stopped the supplements.

I think that avoiding gluten may be more important than taking supplements when it comes to getting our vitamin levels where they should be.
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#8 RollingAlong

 
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Posted 04 November 2011 - 07:15 AM

We've been trying to eat oysters and liver regularly
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