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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anti Ttg Iga Levels Positive
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7 posts in this topic

Hi,

Has anyone ever come across any reason/allergy/intolerence etc. other than gluten intolerence which results in anti TTG IGA levels highly positive?

Please do take a sec to reply to this question if you have the answer. I am not getting into details of my long story here, but i guess any answers to this would really open path for me in some positive direction.

Thanks in advance

Nannu

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Hi,

Has anyone ever come across any reason/allergy/intolerence etc. other than gluten intolerence which results in anti TTG IGA levels highly positive?

Please do take a sec to reply to this question if you have the answer. I am not getting into details of my long story here, but i guess any answers to this would really open path for me in some positive direction.

Thanks in advance

Nannu

From American Celiac.org......

One negative aspect of the TTG antibody is that it can be falsely positive in a patient who has another autoimmune condition. TTG false positivity has been described in patients with both type I diabetes and autoimmune hepatitis. Theoretically, it can also be falsely positive in other autoimmune disease.

http://americanceliac.org/celiac-disease/diagnosis/

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From American Celiac.org......

One negative aspect of the TTG antibody is that it can be falsely positive in a patient who has another autoimmune condition. TTG false positivity has been described in patients with both type I diabetes and autoimmune hepatitis. Theoretically, it can also be falsely positive in

other autoimmune disease.

http://americanceliac.org/celiac-disease/diagnosis/

I found the same thing - on Wikipedia, whatever that's worth.

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I found the same thing - on Wikipedia, whatever that's worth.

Thanks a ton to both of you. I feel this other reason is irrelavant in our case. Lets see. Awaiting a repeat test report today. Will update how it goes?

Thanks

Nannu

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Hi again,

The repeat tests for us also have come out highly positive. So, no good news. But, my question here is

How do TTG levels increase or decrease in a person with a GFD. Has anyone had an experience of delayed healing with multiple anti TTG IGA tests before they could get final normal range results. More and more replies to this post will help us get better clarity in understanding our case. A brief about the case is below:

Diagnosed 7 months back with celiac with high positive antibodies and positive biopsy. All the symptoms have been taken care since on GFD like growth, vitamin D deficiency and iron deficiency anemia. Thyroid and blood sugar were normal at the time of diagnosis only. Stomach is doing pretty well and even able to take enough dairy so as to meet daily calcium needs for a 5 1/2 year old. But, anti TTG test after 7 months came almost the same as 7 months back. This is contradictory and hence we are confused. We are trying to take utmost care and are more strict now. If you all are able to share your TTG levels at specific intervals, it would really help.

Thanks again

Nannu

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Have you replaced any worn non stick pans, wooden spoons, cutting boards, pasta strainer, toaster, waffle iron, baking ingredients/spices & herbs etc. that may have cross contamination? These things can slow down progress if you are using them, since they can't be cleaned of all trace gluten. Also is your makeup, lipstick, lib balm, lotion and other toiletries gluten free?

My initial tTG level was around 78 with > 10 positive. Six months later it was down to 4 ref. range > 19 positive. Different labs but negative result regardless. The last one I had done was last year and it was I think it was around 4 also(same ref. range as 6 mon. test).

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Hi Roda,

Thanks for the inputs. I feel i had taken care of all the things that you have mentioned. Regarding cosmetics, its my 5 1/2 yr old who is a celiac so that option is for now best avoided. We'll need to look into that aspect also as she grows. My levels were at 297 and now at 291 after 7 months. What do you think would be a good time to test again?

Expecting more replies to my post. Thanks in advance.

Nannu

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    • Will my doctor test me? So many symptoms...
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    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
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    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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