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Spouse Is Nonsupportive
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I don't know where to put this so I guess this is as good as any??? I don't have an official diagnosis, so I am in limbo so to speak.

However, my husband is not supportive of me trying to go gluten free. He isn't supportive of any health issue that I have. The diarrhea, nausea, not being able to eat without being VERY close to a bathroom, the migraines. I believe all of these things (and more) could be caused by either a gluten sensitivity, or celiac. But I need his support to try and go gluten-free. We have 4 children ages 18, down to 12. One being a special needs child that has Down Syndrome. We are very busy, like most families, and I need him to help me so that I can start to hopefully feel better. I also think he feels that Gluten-Free food will be quite expensive, and it will be--I think--my son was on a Gluten-Free diet for about a year. The food was very pricey, and hard to find in our area (very rural)

I have had a colonoscopy a few years ago, and doc diagnosed IBS. SO husband wants that to be the end of the discussion and I just live this way forever. Well, I've tried for 3 years. I'm tired, feel awful, and need to get something figured out.

I have shown him things on-line to try and show him that my symptoms are very simliar to people that have celiac disease. He still thinks it's all in my head. Even though I have to run to the bathroom after eating some (most) meals. I can't eat if we are in the car or at one of my kids ballgames for fear that I won't be able to get to a bathroom. Crazy way to live if you ask me.....

I welcome any suggestions that you have for me. He isn't a terrible person. He has strong opinions. He tends to think if we don't deal with it I will just get better as fast as I got "sick" He gets upset when I go to a Dr. mostly due to the $. He tends to think I am fine since there is no fever or visible signs for him to see. I have no rash. It's all intestinal--for lack of a better word--although I do get sores in my mouth, like a canker sore. Unrelated???

Thanks so much for any advice you can give me.

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I'm so sorry you're going through this, and that you don't have the support of your family. And I promise I won't think negatively of your husband. I had a lot of trouble getting my mother to understand and it didn't make me love her any less, it's just hard. I hope he comes around for you. It's tough because it sounds like a lot of his concerns are financial? I'm going to offer up a few ideas that might help, indirectly.

Do you think it would help him understand if you were able to be diagnosed? I get that if you went through testing and it was negative that might cause some problems with him...but perhaps if you got a doctor to back you up, it might help. Canker sores, by the way, are VERY common in celiac disease patients. I get them too. There are also many experts who have found correlations between Down Syndrome and celiac. You don't say why your son was on a gluten-free diet (is it the same child who has Down?), but for some reason, rates of celiac have been found to be higher among people with Down. You might want to consider having your children tested as well as yourself.

A colonoscopy would not have been able to tell your doctor anything about celiac. Celiac patients are commonly diagnosed with IBS before they get the real answer, because IBS is a kind of diagnosis where the doctors think "I don't know what's wrong with you, so we'll call it IBS and call it a day." If you wanted to me tested, you would need to find a willing doctor, who would first run a blood antibody test and then usually an endoscopy with intestinal biopsies afterwards. Some people stop after a blood test if it's positive, but many do the biopsies then to evaluate the villi damage.

I know this will probably not help you convince your husband, but if it makes you fell any better...gluten-free does not have to be as expensive as some people make it. It is expensive if you simply replace all the foods you normally eat with gluten-free packaged versions, and if some people have money to do that then it's their choice, but many of us (including myself) don't. I eat lots of fruits and vegetables, and I buy things like beans (dry), nuts, rice, millet, etc. in bulk to save money. I try not to eat too many baked goods because it's just not good for you, but I occasionally treat myself with a loaf of homemade bread or a batch of cookies or cupcakes. Since I make them myself, I get a lot more mileage out of the money I spend on special flours. And I make them last by baking sparingly. It's something to get used to, but it's healthier and cheaper that way. There are many, many foods that are naturally gluten-free.

All in all...I really hope you are able to get things sorted out and get yourself healthy. Almost all of us on here know what it's like to be sick for a long time and be longing for an answer...then you finally find an inkling and it can be very frustrating when you cannot get support from your family. We're here for you, though, whatever that's worth.

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I can't help you with regard to the unsupportive husband, but I can help you with eating gluten free. Many people feel that they need to have gluten-free substitutes for all of their favorite foods--you know, the foods that make them sick. It's much easier to eat natural whole foods than to buy gluten-free processed foods, frozen foods, and special breads, cookies, etc. You can still eat eggs, dairy (unless it's an issue, too), meat, nuts, vegetables, beans, and fruits. The gluten-free pasta isn't too expensive, in my opinion, and Tinkiyada is the best--chances are good that your whole family won't notice the difference. Bread can be expensive, but if everyone else is eating a sandwich, you can always eat something else. Be careful about eating soy--many of us can't tolerate it. Also, soy sauce has gluten in it, but you can always use wheat-free Tamari sauce. Your husband, even if not supportive, doesn't have to play any role in your diet whatsoever. If you cook the food, you can decide that it will be natural whole foods...and if the family wants to use condiments that contain gluten, that's fine. Your husband shouldn't be impacted very much by your change in diet...and, hopefully, when he sees how much better you feel, he will begin to see the light. Also, if you want to start feeling well ASAP, try eliminating all grains, including rice, and begin adding them back into your diet one by one. Once you know that you can tolerate them, you'll have more ingredients to work with. Good luck!

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I'm sorry you are not getting the support you need right now at home. If you haven't gone gluten free then if you want you could request the blood work: IgA/IgG tissue transglutaminase(tTG), IgA/IgG deamidated gliadin peptide(DGP), and total IgA. You could also do a scope/biopsy. If you want testing, and after you exhaust all the testing you want, do a good three montht trial of the gluten free diet. Testing doesn't always give us all the answers and can have about a 30% false negative rate. Also I think there is a increased risk for celiac disease in people with down syndrome. Here are a few links for you to review. Feel free to ask questions. There are a lot of good people on here to help!

http://www.celiac.com/categories/Celiac-Disease-Research%3A-Associated-Diseases-and-Disorders/Down-Syndrome-and-Celiac-Disease/

http://www.ds-health.com/celiac.htm

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Oh no! It is so frustrating when people just don't get it! Everything said so far is totally right, eating gluten-free doesn't have to break the bank. Hopefully, it will make you feel so much better that your husband will have no choice but to agree. I agree than an actual do diagnosis from the doc would help immensely too, some people are just really black and white about the whole thing and need the diagnosis. Also, try to think that it's really hard for him to see you so uncomfortable. I remember my husband being so frustrated because he wanted to fix it for me, and for a husband, it's hard when they can't. Be patient, it sounds like he loves you a lot so he will come around expecially if you start feeling WAY better! Best of Luck - A Freaking Celiac

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HeyTeacher,

I am a bit in the same situation than you and I wonder if there is anyone here who could share about how supportive their husband/wife are? I am questionning myself right now on what I should expect from my spouse, like what would be a'normal' level of attention from him regarding this matter? Any concrete examples of support?

Personnally, I would need some help with the cooking. I feel right now it is overwhelming to cook new recipies all the time and look for gluten free ingredients at the store, or supply with alternative ingredients. I am reallly doing my best to making it a project, but sometimes lack motivation. I would like him to take over sometimes and of course to feel like I am not inventing all of this to grab attention.

Any role model here to share?

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It is hard when we don't have the support from the ones we love. However, we also have to do what is best for ourselves at the same time. I also have a teen at home and wondered how I was going to change things so that the family wasn't inconvenienced but it never became an issue. They eat my gluten-free pasta and cannot tell the difference. If I make a gluten-free cake they like it. I know my husband does not totally understand and keeps forgetting that I cannot have gluten which I find kind of amazing since I have been gluten-free for 5 months. Focus on yourself. Focus on what your body needs to get well. I know you said you were trying this and by the symptoms listed I would definately try my best to follow a strict gluten-free diet (read labels). It might not hurt to stop dairy for a couple months too. That might sound like alot but if you are having stomach issues dairy very easily could be tearing you up. When my gastro suggested I go off dairy I was already on a gluten-free diet and I was thinking that I would have nothing left to eat. It is a mazing how creative we become. As it turned out for me not only do I have celiac but I am dairy intolerant, high fructose intolerant and salicylate sensative.

I was pretty darn sick before I went off glutens and dairy and hubby knew that. My brain was a continual "fry" zone, my stomach was a wreck, I had lost part of my taste, I was dizzy, my vision was messed up and I shared all this with him. I was always the energertic type, always had everything done and always organized and that all kind of went in the toilet. I was not the one to be making regualr doc visits and here I was going on a regualr basic......so much so the receptionist asked me if I worked somewhere in the hospital, lol!

Big difference was when I started feeling better and he could see it. Not long afterward he had problems with gout, doc wanted to up his meds. Get this, he told her that he had seen what I was doing to change my diet and saw the improvements in my health and wanted to try and control his gout thru diet as well. He was set up witha nutritionist and he has taken it seriously.

Eventhough we feel weak and want to crawl in bed and want someone there to lean on, sometimes we have to be the strong one and set the example. You can do this!!!

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The only advice I would give you is to seek a counselor on how to deal with the "unsupportive" husband. If you think you "need" his support to go gluten free, you will never go gluten free. Like I don't "need" my spouse's "support" to use my inhaler during an asthma attack - my need to use a medical treatment to save my life is independent of his feelings about it. If he ever tried to belittle that need, he would be shown the door. Quickly.

I mean, really, the absurdity of it - if he wanted the economy model wife with no special dietary needs because of an autoimmune problem, and able to subsist on really cheap food, he should have selected that one during the courting phase.... what was that phrase again, in sickness and in health? This is the only autoimmune disease which can mostly be relieved of symptoms just by changing one's diet. Most of the others are real roller coasters of (oftentimes expensive $$$) treatments with bad side effects or very deteriorating conditions. This is the hand I was dealt. Other people have other problems.

When both spouses are healthy, the household tends to run better. The one thing you really don't want to happen is to be approaching old age and be in poor health, if you have the power to change it, it's bad enough to be approaching old age and be in mediocre or even good health. I can't imagine doing this with a spouse who would blow off my health needs, especially if it were approaching any sort of crisis situation. And I was bad - we thought I was going to not be able to do steps, and deliberately went to a one story ranch house a dozen years ago, before I did the diet change, because I was getting such bad neurological symptoms and having arthritic flares.

I also live in a rural area, so it's a bit of a drive to find the specialty ingredients I use for baking. But this is a good state and area compared to some others (we make jokes about the area about 90 miles north of here, which is this wasteland of store/restaurant options - yeesh. Take a cooler or starve. ) I tend to stock up when I find something on sale, and we have an extra, small refrigerator in the garage for storing things that don't fit into the freezer. I tend to freeze anything like nuts that might go buggy, because we live in a warmer climate, and this keeps things from going rancid more quickly or getting infested. It's a lot easier to go to the fridge for a bag of something gluten free, than to drive 30 - 70 miles roundtrip to get it or having to mail order it. I end up doing baking more for him than for me, since he may want a sandwich more often than I do, as I don't actually eat as much "bread" as a regular person, and hardly ever do cereal, and when I do bake, it's with high protein things like seed, bean, and nut meals because I am relatively carbohydrate intolerant. We have discovered that while I am able to function on a high protein/fat diet, he will crash and splat metabolically if he mimics me completely, and therefore the "safe snacks" lunchbox we tend to take with us will have some carbs for him, and I will make sure he EATS some before we do an outdoor activity. My spouse decided to go gluten free at home after seeing what happens when I get cross contaminated accidentally, but still eats gluten out if he wants to. We actually did not have that much of a transition other than changing some cookware, now cereal brands and a few other food item brands are different because they are gluten-free, we subbed rice pastas for wheat pastas, we keep ricecakes and corn tortillas as staples, and we don't eat out as much and baked things tend to be homemade.... and I store more dry goods than the normal person and play around with recipes a bit more.

So I can do this or be an invalid..... wasn't really much of a question which option was better.

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I am a bit in the same situation than you and I wonder if there is anyone here who could share about how supportive their husband/wife are? I am questionning myself right now on what I should expect from my spouse, like what would be a'normal' level of attention from him regarding this matter? Any concrete examples of support?

I guess I'm very fortunate as my husband is beyond supportive. His attitude is 'we'll do whatever it takes to get you feeling better. All I want is for you to be better.' I'm in the process of doing an elimination diet and we're working through the kitchen (he's working on eating all of the gluten-containing foods in the pantry and as he finishes those, we're switching it all over to gluten-free foods). We will eventually have a totally gluten-free house, though he may eat other things when he's away from home. He's one of my biggest advocates when we are out somewhere to make sure I stay as far away from gluten as possible.

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The sores in your mouth can definitely be related. I had them all the time and they disappeared after I went gluten-free.

As someone else said, it doesn't have to be expensive as long as you don't try to replace bread, cakes, muffins, etc. Just make regular food that's naturally gluten-free.

richard

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I don't know where to put this so I guess this is as good as any??? I don't have an official diagnosis, so I am in limbo so to speak.

However, my husband is not supportive of me trying to go gluten free. He isn't supportive of any health issue that I have. The diarrhea, nausea, not being able to eat without being VERY close to a bathroom, the migraines. I believe all of these things (and more) could be caused by either a gluten sensitivity, or celiac. But I need his support to try and go gluten-free. We have 4 children ages 18, down to 12. One being a special needs child that has Down Syndrome. We are very busy, like most families, and I need him to help me so that I can start to hopefully feel better. I also think he feels that Gluten-Free food will be quite expensive, and it will be--I think--my son was on a Gluten-Free diet for about a year. The food was very pricey, and hard to find in our area (very rural)

I have had a colonoscopy a few years ago, and doc diagnosed IBS. SO husband wants that to be the end of the discussion and I just live this way forever. Well, I've tried for 3 years. I'm tired, feel awful, and need to get something figured out.

I have shown him things on-line to try and show him that my symptoms are very simliar to people that have celiac disease. He still thinks it's all in my head. Even though I have to run to the bathroom after eating some (most) meals. I can't eat if we are in the car or at one of my kids ballgames for fear that I won't be able to get to a bathroom. Crazy way to live if you ask me.....

I welcome any suggestions that you have for me. He isn't a terrible person. He has strong opinions. He tends to think if we don't deal with it I will just get better as fast as I got "sick" He gets upset when I go to a Dr. mostly due to the $. He tends to think I am fine since there is no fever or visible signs for him to see. I have no rash. It's all intestinal--for lack of a better word--although I do get sores in my mouth, like a canker sore. Unrelated???

Thanks so much for any advice you can give me.

Before you try to go gluten-free, get to the dr and get blood tests for celiac. Do not tell your husband about the tests if they are negative. But if they are positvie you will need to have your doctor talk to your husband and explain this is not in your head. If the test are negative you will need to convince you husband you are truely very sick. If this means you need to "forget" to flush the toilet a few times, so be it. Or if this means you need to be curled up in a fetal position unable to do the dishes or take care of the kids sometimes, so be it. He needs to SEE the signs that something is really wrong and that may mean you stop pushing through your suffering in order to seem "normal".

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Before you try to go gluten-free, get to the dr and get blood tests for celiac. Do not tell your husband about the tests if they are negative. But if they are positvie you will need to have your doctor talk to your husband and explain this is not in your head. If the test are negative you will need to convince you husband you are truely very sick. If this means you need to "forget" to flush the toilet a few times, so be it. Or if this means you need to be curled up in a fetal position unable to do the dishes or take care of the kids sometimes, so be it. He needs to SEE the signs that something is really wrong and that may mean you stop pushing through your suffering in order to seem "normal".

Thanks everyone for your responses. I appreciate it so very much :D I know I have to do something about this mess, I hate feeling crappy. I know it's up to me to get things going with my doctor. I have to get over my "fear" and just make the call and get an appointment.

GlutenFreeManna--I think you are on to something. I keep pluggin away even when I feel absolutely awful. It may take me actually retreating to bed (more often) or being forgetful with the toilet in order for him to actually see what is happening with me. I work incredibly hard to go to work, attend my kids sporting activities, basically keep the house going even on my bad days. Maybe I need to let some things go and he will get a better picture of how I feel. Or maybe he will get mad that things aren't done around the house. I don't know how he will react, but it's a place to start. I have NEVER, EVER been one to "rock the boat" but my health has got to improve.

Thanks again everyone, it is beyond wonderful to have some support. Something that I have not had since these symptoms started 3 years ago.

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Thanks everyone for your responses. I appreciate it so very much :D I know I have to do something about this mess, I hate feeling crappy. I know it's up to me to get things going with my doctor. I have to get over my "fear" and just make the call and get an appointment.

GlutenFreeManna--I think you are on to something. I keep pluggin away even when I feel absolutely awful. It may take me actually retreating to bed (more often) or being forgetful with the toilet in order for him to actually see what is happening with me. I work incredibly hard to go to work, attend my kids sporting activities, basically keep the house going even on my bad days. Maybe I need to let some things go and he will get a better picture of how I feel. Or maybe he will get mad that things aren't done around the house. I don't know how he will react, but it's a place to start. I have NEVER, EVER been one to "rock the boat" but my health has got to improve.

Thanks again everyone, it is beyond wonderful to have some support. Something that I have not had since these symptoms started 3 years ago.

I'm in the "mom martyr" club too. We work through flu, cold, headache and are just generally tough. Maybe time to give that a rest when you are legitimately feeling bad. Good luck!

My other suggestion is to go to this gluten-free crockpot website. Free recipes. Great for families and could end up reducing your food budget even. http://crockpot365.blogspot.com/ The author's daughter has celiac. It doesn't use many specialty items and your whole family would have a good, gluten-free meal. Her instructions talk about what products are ok or need to be replaced with a gluten-free version.

Regular ingredients that are naturally gluten-free are not too expensive. Potatoes, rice, veggies, meat, chicken, beans. Use the crockpot to make gluten-free meals while you're at work.

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Before you try to go gluten-free, get to the dr and get blood tests for celiac. Do not tell your husband about the tests if they are negative. But if they are positvie you will need to have your doctor talk to your husband and explain this is not in your head. If the test are negative you will need to convince you husband you are truely very sick. If this means you need to "forget" to flush the toilet a few times, so be it. Or if this means you need to be curled up in a fetal position unable to do the dishes or take care of the kids sometimes, so be it. He needs to SEE the signs that something is really wrong and that may mean you stop pushing through your suffering in order to seem "normal".

That tatic is DISGUSTING, and will probably backfire. And can by very dangerous to try if you have animals in the house and or small children. All of the 3 dogs I have had and two out of three cats drank/played in the toilet water. Leaving poop in it could make them very very sick. And I for one get very annoyed and upset when people forget to flush the toilet, especially if the person was an adult who should know better. If he feels the same way I do, you are putting more strain on your relationship and he might be even less willing to accept there is a problem since doing so is very passive agressive.

There are better ways to it is across that you are sick. Like, asking if he could buy more imodium, or kaopectate often. Or just actually talking to him about it and how his lack of support is making you feel. Then make an appt with the dr and talk to the dr about your symptoms. Whether or not he likes it doesn't really matter. As you are an adult and don't need his permission to go to the dr for a consultation.

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In your situation I would start making meals that are naturally gluten free but are also completely normal. Chili, tacos, shepherd's pie, stir-fry (with gluten free soy sauce, there are cheap brands), roasted chicken w/ potatoes and veggies, ect... Don't even tell your husband for a week or so. Then announce that you've been on a gluten-free diet all week and he didn't even notice nor did it significantly raise your food bills. He will be left with little to argue about!

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HeyTeacher,

I am a bit in the same situation than you and I wonder if there is anyone here who could share about how supportive their husband/wife are? I am questionning myself right now on what I should expect from my spouse, like what would be a'normal' level of attention from him regarding this matter? Any concrete examples of support?

Personnally, I would need some help with the cooking. I feel right now it is overwhelming to cook new recipies all the time and look for gluten free ingredients at the store, or supply with alternative ingredients. I am reallly doing my best to making it a project, but sometimes lack motivation. I would like him to take over sometimes and of course to feel like I am not inventing all of this to grab attention.

Any role model here to share?

I don't know how supportive the 'average' spouse would be, but my husband has noticed such a huge change in me since I went gluten free that he's almost more strict about it than I am. He usually eats gluten free with me (even at restaurants) and we bring very little gluten into the house. It's just easier that way.

He does most of the cooking (which was the case before going gluten free) so he makes a lot of Indian & Mexican recipes, which are generally gluten free. Or we have fish or meat with steamed vegetables quite a lot - or, in the winter, chile & stews are easy. It doesn't have to be expensive.

I think the main reason he's so supportive is that, frankly, I'm much much much more pleasant to be around when I'm off gluten. In addition to the migraines & stomach issues, I have crazy emotional responses to gluten - and who wouldn't rather have a normal wife than a crazy one? lol.

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That tatic is DISGUSTING, and will probably backfire. And can by very dangerous to try if you have animals in the house and or small children. All of the 3 dogs I have had and two out of three cats drank/played in the toilet water. Leaving poop in it could make them very very sick. And I for one get very annoyed and upset when people forget to flush the toilet, especially if the person was an adult who should know better. If he feels the same way I do, you are putting more strain on your relationship and he might be even less willing to accept there is a problem since doing so is very passive agressive.

There are better ways to it is across that you are sick. Like, asking if he could buy more imodium, or kaopectate often. Or just actually talking to him about it and how his lack of support is making you feel. Then make an appt with the dr and talk to the dr about your symptoms. Whether or not he likes it doesn't really matter. As you are an adult and don't need his permission to go to the dr for a consultation.

I think the OP got my point just fine. My point was not to be disgusting or play passive agressive games but to be REAL and honest about what is happening. Obviously her just TELLING her husband how she is feeling is not working. He needs to SEE that she is really sick as well. Women especially like to play the martyr and push through their pain and sickness. We like to try to be superwomen and do it all even when sick, but when it comes to our health we need to not wait to make changes or see a dr. A husband who loves her will not expect her to stay sick and not go to the dr because he thinks "she just needs more kaopectate" to get through the day. If her being sick (notice I didn't say her "playing sick", she really IS sick but she's pretending she's not and pushing through), anyway if her BEING sick ruins their relationship then their relationship is not very strong to begin with. As far as "needing his permission"--no she doesn't but she will need his support if she plans to go gluten free successfully. Also you know nothing about their money situation. Some women don't work outside of the house and can't just go spending money on dr's appointments without her husband knowing about it. Spending money on dr's when they haven't agreed upon it could cause more strain on their relationship too.

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That tatic is DISGUSTING, and will probably backfire. And can by very dangerous to try if you have animals in the house and or small children. All of the 3 dogs I have had and two out of three cats drank/played in the toilet water. Leaving poop in it could make them very very sick. And I for one get very annoyed and upset when people forget to flush the toilet, especially if the person was an adult who should know better. If he feels the same way I do, you are putting more strain on your relationship and he might be even less willing to accept there is a problem since doing so is very passive agressive.

There are better ways to it is across that you are sick. Like, asking if he could buy more imodium, or kaopectate often. Or just actually talking to him about it and how his lack of support is making you feel. Then make an appt with the dr and talk to the dr about your symptoms. Whether or not he likes it doesn't really matter. As you are an adult and don't need his permission to go to the dr for a consultation.

I am very sorry- but if someones kids are playing in the toilet then I am afraid that is far more disgusting. You let your pets drink toilet water?? Wow. Thats all I have to say to that. :o

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I started out telling my husband all of my symptoms, appointments, tests, on and on and on. Over the years, he has become less and less involved (never was very involved) and basically takes the route of ignoring the situation. Of course it's not happening to him so it's easy to ignore when I continue to try and keep doing my job away from home, as well as my job @ home and with the kids, house, ect. But....I am just getting to the point that I can't keep going like the Energizer Bunny. I am t.i.r.e.d and grouchy, and sick.

I think we have a good marriage. But....we have 4 kids, 3 very busy kids and one with special needs. The one with special needs can't eat by mouth. He is a pricey one :rolleyes: costs about $1,500.00 a month just to feed him. I am not complaining, it's just a fact and something we have to plan for as a monthly expense just like we do our house payment.

While I don't make a habit of leaving my house/bathroom is a state of disarray it just might work with him. I apologize if this seem "gross" of "unhealthy" the way I see it desperate times call for desperate measures. If I ask him to get some type of medication he would think that medication would make me feel better and on we go with our evening plans. He has not health problems and doesn't get it when others do, it's not just me. My kids, his extended family, he thinks everyone should be able to take a tylenol and feel better, after all that's what he does, works for him right??

Again, I appreciate all of your helpful suggestions. I did approach him about going back to my doc for testing, he was not "a fan" of my suggestion at least not now. I can't just go behind his back and run up a dr bill for testing. How would I feel if he did that and then we had hundreds of dollars to pay off, well probably not very good. Maybe for now I will go gluten free with the natural foods that were mentioned fruits, veggies, meats and just see how I feel.I don't know it doesn't give me any diagnosis that might help him, but I don't see that happening. Soooooooo, try plan B, or C B)

Thanks so much for letting me bend your ears AGAIN!! I just get started and out it all comes, forgive my ramblings. It does help to get things "out"

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Just be aware that some people after going gluten free just to see, get such severe reactions to eating gluten and end up too sick to do a gluten challenge and so remain undiagnosed. Just something to keep in mind!

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I think the OP got my point just fine. My point was not to be disgusting or play passive agressive games but to be REAL and honest about what is happening. Obviously her just TELLING her husband how she is feeling is not working. He needs to SEE that she is really sick as well. Women especially like to play the martyr and push through their pain and sickness. We like to try to be superwomen and do it all even when sick, but when it comes to our health we need to not wait to make changes or see a dr. A husband who loves her will not expect her to stay sick and not go to the dr because he thinks "she just needs more kaopectate" to get through the day. If her being sick (notice I didn't say her "playing sick", she really IS sick but she's pretending she's not and pushing through), anyway if her BEING sick ruins their relationship then their relationship is not very strong to begin with. As far as "needing his permission"--no she doesn't but she will need his support if she plans to go gluten free successfully. Also you know nothing about their money situation. Some women don't work outside of the house and can't just go spending money on dr's appointments without her husband knowing about it. Spending money on dr's when they haven't agreed upon it could cause more strain on their relationship too.

I have never seen a copay from an insurance company costing more than 100$ for a PCP visit. In fact most are much less, mine are 15$. Unless you don't have health insurance which is another problem all together. And she never said that money was an issue preventing her from seeing a dr. Second, if your husband is controlling all of the finances soo tightly that she doesn't have access to money for ONE copay and is forbidding her from going to the dr, then you are getting into the territory of abuse. Plus, she has never said that her husband is forbidding her from going to the dr just that he isn't a fan. My husband isn't a fan of the fact that I take ambien every night to sleep, however I continue to take it because it is needed. There is a difference between not being a fan and saying no. If her husband said no more drs or tests my advice would be different. However, since not being a fan really means that he isn't supportive or encouraging her to see a dr, I see no problem with her going to the dr for a consultation. For tests with bigger out of pocket expenses like the endoscopy you would want to discuss it with them. Especially since in order to be accurately tested for celiac you have to be eating gluten for months prior to the test. So if she goes gluten-free now she has just lost any chance of getting a dx. Maybe I grew up in a strange household, but my parents NEVER had to get permission from each other to go to the dr when they were sick and that is the way that my husband and I have arranged it too.

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I am very sorry- but if someones kids are playing in the toilet then I am afraid that is far more disgusting. You let your pets drink toilet water?? Wow. Thats all I have to say to that. :o

Young children do alot of things that are disgusting because they don't know better. My family does not let the animals drink from the toilet. We actually have to keep the door shut tight to keep them out. But, sometimes they find a way it, usually when we have had guests or if the door didn't get shut all the way. Plus, dogs in general are attracted to poo. Some dogs roll in it other dogs like to eat it. So a new smell might attract a dog who doesn't drink from the toilet to try it. It was also to point out the possible dangers of purposefully leaving feces in the toilet just to prove a point.

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I have never seen a copay from an insurance company costing more than 100$ for a PCP visit. In fact most are much less, mine are 15$. Unless you don't have health insurance which is another problem all together. And she never said that money was an issue preventing her from seeing a dr. Second, if your husband is controlling all of the finances soo tightly that she doesn't have access to money for ONE copay and is forbidding her from going to the dr, then you are getting into the territory of abuse. Plus, she has never said that her husband is forbidding her from going to the dr just that he isn't a fan. My husband isn't a fan of the fact that I take ambien every night to sleep, however I continue to take it because it is needed. There is a difference between not being a fan and saying no. If her husband said no more drs or tests my advice would be different. However, since not being a fan really means that he isn't supportive or encouraging her to see a dr, I see no problem with her going to the dr for a consultation. For tests with bigger out of pocket expenses like the endoscopy you would want to discuss it with them. Especially since in order to be accurately tested for celiac you have to be eating gluten for months prior to the test. So if she goes gluten-free now she has just lost any chance of getting a dx. Maybe I grew up in a strange household, but my parents NEVER had to get permission from each other to go to the dr when they were sick and that is the way that my husband and I have arranged it too.

Actually, she said in her very first post that money was the reason her husband didn't like her going to the dr a lot. She also shared that she has a special needs child that costs them $1500 a month in medical bills. Even if her husband was super supportive of her getting tested she's bound to feel guilty about it because that's human nature when you are strained financially and physically and trying to be supermom. I'm not going to argue about this anymore though. I just want the OP, heyteacher to know that it is OKAY to do what she needs to do to get her husband on the same page as her in regards to taking care of her medical needs. Again, it's NOT about PERMISSION, it's about SUPPORT or blessing or mutual understanding whatever you want to call it. She will need his help in order to make the change to gluten-free if that's what turns out to be the issue.

Heyteacher, please update us if you go to the dr and find anything out. :)

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As other posters have mentioned, gluten free eating can be inexpensive, especially if you don't try to replace the gluten containing items with gluten free options (like bread). Potatoes are very inexpensive. Same with rice. Corn tortillas are too, and you can use them for tacos, enchiladas, tostadas and just on the side. Instead of cookies and cakes, serve ice cream, pudding, etc. At first I was stumped with the gluten free thing, but now it has become easier. THe only thing gluteny I buy now is bread, because my son can make himself a sandwich. And a few microwavable items that he can prepare himself as well. I found a few gluten free flours on sale/clearance so I can make the occasional pancake or birthday cake, but overall I have found that it is not any more expensive unless I try to buy prepared packaged foods to replace gluteny items. Now I do buy the occasional gluten free packaged item but it is a treat, and not a staple. The funny thing is that my son really hasn't noticed :) But he does go have pizza with his friends so that helps!

As for the husband. I have had a LOT of intestinal issues-diarrhea, gas, having to run to the bathroom... when I went gluten free, my boyfriend and I discussed it because we eat a lot together. He became very supportive because he noticed that my bathroom issues were so much better. Now I have a small apartment, so it was kind of obvious when I had to run to the bathroom and the walls are thin! We joked about it because now things are much quieter :) So perhaps your husband will notice the difference once you start cooking inexpensive gluten free foods. Start with steak, potatoes and a nice salad! You can't go wrong with that one :)

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That tatic is DISGUSTING, and will probably backfire. And can by very dangerous to try if you have animals in the house and or small children. All of the 3 dogs I have had and two out of three cats drank/played in the toilet water. Leaving poop in it could make them very very sick. And I for one get very annoyed and upset when people forget to flush the toilet, especially if the person was an adult who should know better. If he feels the same way I do, you are putting more strain on your relationship and he might be even less willing to accept there is a problem since doing so is very passive agressive.

There are better ways to it is across that you are sick. Like, asking if he could buy more imodium, or kaopectate often. Or just actually talking to him about it and how his lack of support is making you feel. Then make an appt with the dr and talk to the dr about your symptoms. Whether or not he likes it doesn't really matter. As you are an adult and don't need his permission to go to the dr for a consultation.

I completely disagree. I think she should go one step further and actively show her husband her BMs each and every time she has one so that he can see the frequency and actually see how screwed and (likely) smelly they are.

It's one thing to SAY to someone "I have to run to the bathroom every time I eat" - it's another for someone to actually SEE it happen.

This reminds me of when I'd tell people that I used to get awful migraines and throw up for hours. They all thought I was exaggerating - I mean, how could you throw up almost constantly for hours? It wasn't until my husband (fiance at the time) told them, "No, you don't understand. She curls up on the floor of the bathroom so that when she needs to throw up - which happens every 20 minutes for 12 hours straight - she doesn't have to go too far." Then they were like, "Really?? She gets THAT sick??"

Sure, it was gross for my husband to hold my hair and get splashed with my puke, but he did it and he understood how sick I was. And so, he did not think I was lying when I'd tell him food would pass through me within an hour or two and would look exactly like it did when it was on my plate. If he had thought I was exaggerating, I would have taken him into the bathroom and shown him.

We all need to get over this fear of poop and other bodily functions. Her husband doesn't believe her - well, seeing is believing. I say go for it.

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    • egs1707. Are you in Canada?  It's NOT a good idea to go gluten free between now & the GI appt. and here's why.... MOST of us have MUCH stronger reactions to gluten when we go back on it for the endoscopy. A lot of people have had such strong reactions that they have been entirely unable to complete the challenge and have to call it quits. This means they never get an official dx. It's your call, you make the choice. However, I will say that you don't have to eat a lot of gluten, a couple saltines or a slice of bread per day. 
    • You mentioned the tight head. Yes, both my celiac sibling and I had head pressure. Mine was horrible last glutening with eye pain as well. Like someone put a vice around my temples. I swore it felt like a parasite infected my gut, thyroid and brain. It is going away mostly, still have it on and off a bit.  My brother said his naturopath informed him some celiacs get a bit of inflammation in the brain.   
    • Hi All this is my blood test result 1.immunogloblulin serum 203 ( 87-350) 2.Deamidated Gliadin IGA  4 ( 0-19 negative) 3.Deamidated Gliadin IGG 3(0-19 negative) 4.Transglutainase IGA <2 ( 0-3 negative) 5.Transglutainase IGG <2 ( 0-3 negative) does it mean most likely no celiac ? thanks.  
    • At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days. Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before? The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though   
    • I know what you're going through - it's that grieving process and it's tough.  I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life.  I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving.  The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal.  For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening.  Eventually you'll be able to get back to your version of 'normal'.  Oh, I also have hypothyroid/hashimoto's.  No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein.  You don't have to go crazy on the cooking.  Just eat a lot of whole foods.  There are a lot of complicated recipes out there, but now may not be the time.  Rice noodles in veggie bouillon - easy and cheap.  gluten-free pasta with olive oil, parmesan and garlic - easy.  I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you?  That could be contaminated.  Go with packaged.  Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section).  They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce.  They're my go to on days I don't want to cook. Good luck!  
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