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What Tests Make A Complete Celiac Blood Panel?
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What lab tests should be ordered for a complete celiac panel? My 18 month old son reacted violently to we suspect wheat when introduced to solids. Genetic tests show 2 copies of DQ8 for my son. I've had tons of weird symptoms for years and am scheduled for a biopsy next week. My husband recently mentioned he's had loose stools for years, and he also is physically short stature and so skinny (I'm jealous!). He's considering getting tested to see if he could have celiac. His mom also mentioned she goes between consipation and loose stools and suffers from heartburn/acid reflux and is scheduled to have surgery for that (she mentioned my son's possible celiac to her GI doctor and when they did a endoscopy it doesn't sound like they looked for signs of celiac). Could heartburn/acid reflux go with celiac? If so it would maybe be nice to get my husband blood tested before his mom's surgery so getting into a family doctor would be quicker than a GI doctor. But our family clinic didn't run a complete celiac panel on my son so I don't know what one would involve and if we could find out what lab work we should ask for that would be wonderful!

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The following is usually considered to be a complete celiac panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The last test is a control to make sure that normal amounts of IgA are produced, otherwise the IgG versions of the tests need to be run also.

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Which of these in the celiac panel determines your gluten level?

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There is no one test that tells you a level of gluten you are eating. The deamidated gliadin peptide (DGP) is thought to be the quickest to react to gluten ingestion or removal, but does not indicate that a certain amount of gluten has been consumed. It would be an awesome test to have access to.

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    • Thanks for replying. You've been very helpful and given me some ideas of trying a few foods in small amounts. I wish I had rotated food months ago then it might not have got so bad. Thanks again and I wish you well.
    • Until my recent blood test results I've been having cinnamon and mint tea in the mornings, which seemed to have a positive effect calming the digestive system (and tastes good too!)  After the first step of diagnosis with high Iga TTg I took at look at the cinnamon sticks I make the tea with and it says "packed in a factory that may contain wheat, corn etc. etc." so that I guess would sound alarm bells for many I reckon. That said I'd imagine the way most of these herbs and spices are harvested isn't exactly gluten-free friendly yet I've seen quite a few recipes using it. How are people getting around this as I can't see any specific gluten-free certified cinnamon products out there? Really could do with my tea back P.S. I also have chamomile tea using the raw flowers which may have a similar background but seem to be less of a risk somehow?
    • If I do have to go back on gluten for a bit it'll at least be a temporary relief from the withdrawal symptoms (or at least what I hope are just withdrawal symptoms). Today's returning malady is acid reflux, something I'd thought I'd seen the back of recently. Really need that to calm down as PPIs the doctor gave before were evil medication and caused 10x more problems, possibly the worst I've ever felt whilst on those so won't be going back there! Although the scales seem to have stabilised in terms of weight loss in myself I feel like I'm wasting away at present, what with the random pulling sensations in muscles and tender head area I'm just scared for what other illnesses may be laying in wait related to the celiac genes  Think I'll head back for the ESR and CRP blood tests next week as the shoulder and temple pains are really worrying me right now, could just be the gluten intolerance but the other options are terrifying if not caught early. So much uncertainty, apart from the fact that none of this ever gets fully better (if at all)...
    • You're welcome! Good luck! And if you get nowhere there, remember, the higher you go, the nicer they get. Skip straight up to the top brass.
    • I'm sorry you've been having such a rough time.  I'm thinking you may have accidentally ingested something containing gluten, and that's what caused your reaction.  A lot of people will react quite severely to even a tiny bit of gluten.  That's why there is so much on here about avoiding cross contamination.  Even though you've been diagnosed with NCGS, you still need to live as though you have actual celiac disease, and be very careful not to cheat.  Your body will punish you for it.  :/  In the meanwhile, nurture yourself kindly and gently, just as you would after a severe bout of food poisoning or intestinal infection.  Comfort foods, like broths and soups and smoothies.  You might want to avoid lactose for a few months too.  Sometimes we lose our ability to digest lactose when our intestines are damaged and vulnerable like yours is right now.   And remember healing takes time.  So does learning the gluten free lifestyle.  Expect some setbacks occasionally.  You WILL get better!
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