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Sibo Troubles


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#1 BrookeT

 
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Posted 05 October 2011 - 04:46 PM

Has anyone successfully treated SIBO (small intestinal bacterial overgrowth) and if so, how?
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#2 burdee

 
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Posted 06 October 2011 - 10:16 AM

Has anyone successfully treated SIBO (small intestinal bacterial overgrowth) and if so, how?


Like IBS, SIBO seems to be a generic label, which doesn't reveal the true cause of symptoms, but which doctors can use to prescribe whatever they want to treat the symptoms. However 'intestinal bacterial overgrowth's can range from deficiency of good bacteria to excess bad bacteria, which are usually kept in check by good bacteria, to excess of really dangerous bacteria which can cause lethal damage. During a 4 year period I had 8 different gastrointestinal infections. 5 of those could have been labeled 'SIBO' because those involved bad bacteria.

However I had a naturopath who actually gave me stool tests which identified the DNA of the bacteria (or parasites or yeast) in my intestines. The lab which analyzed the stool sample also tested the bacteria (or parasite or yeast) for 'sensitivities' to various treatment drugs. So they could recommend a treatment drug (or herbal) which could actually kill the gut bug (or SIBO) which caused my symptoms (usually bloating, nausea, cramps, constipation and/or diarrhea). Specifically I had Klebsiella, Enerbacter Cloaecae, Achromobacter, Clostridium difficile and Helicobacter Pylori (bacteria), Cryptosporidium, Dientamoeba fragilis (parasites) and Candida. My doc diagnosed and treated each of those according to my lab test results and recommendations for treatment. Each successive lab (stool) test was free of the 'bug' which caused my symptoms. However, for a 4 year period, other bugs replaced those bugs.

After my last treatment I started taking really high dose probiotics (50 billion live cells per capsule) twice daily. I haven't had any new gut bugs during the past 2 years. I also found a doc who considered why I was so vulnerable to infections. She tested me for stomach acid production (which was low), blood test differential (white blood cells were low) and thyroid (which was low). We resolved all those problems and my general immunity improved. Best of all, I haven't had any new gut bugs!

So I recommend you find a doc who will test you for the specific cause of your 'SIBO' symptoms and prescribe a treatment which is effective for your specific gut bug. I also hope you will take some really high dose probiotics for a while after that treatment. (I took 100 billion live cells daily for about 6 months after my last treatment for Dientamoeba fragilis.)
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Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#3 BrookeT

 
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Posted 07 October 2011 - 07:11 AM

Thanks for sharing. What a nightmare. First celiac, now this?! I may try the SCD diet and see how it goes.

Like IBS, SIBO seems to be a generic label, which doesn't reveal the true cause of symptoms, but which doctors can use to prescribe whatever they want to treat the symptoms. However 'intestinal bacterial overgrowth's can range from deficiency of good bacteria to excess bad bacteria, which are usually kept in check by good bacteria, to excess of really dangerous bacteria which can cause lethal damage. During a 4 year period I had 8 different gastrointestinal infections. 5 of those could have been labeled 'SIBO' because those involved bad bacteria.

However I had a naturopath who actually gave me stool tests which identified the DNA of the bacteria (or parasites or yeast) in my intestines. The lab which analyzed the stool sample also tested the bacteria (or parasite or yeast) for 'sensitivities' to various treatment drugs. So they could recommend a treatment drug (or herbal) which could actually kill the gut bug (or SIBO) which caused my symptoms (usually bloating, nausea, cramps, constipation and/or diarrhea). Specifically I had Klebsiella, Enerbacter Cloaecae, Achromobacter, Clostridium difficile and Helicobacter Pylori (bacteria), Cryptosporidium, Dientamoeba fragilis (parasites) and Candida. My doc diagnosed and treated each of those according to my lab test results and recommendations for treatment. Each successive lab (stool) test was free of the 'bug' which caused my symptoms. However, for a 4 year period, other bugs replaced those bugs.

After my last treatment I started taking really high dose probiotics (50 billion live cells per capsule) twice daily. I haven't had any new gut bugs during the past 2 years. I also found a doc who considered why I was so vulnerable to infections. She tested me for stomach acid production (which was low), blood test differential (white blood cells were low) and thyroid (which was low). We resolved all those problems and my general immunity improved. Best of all, I haven't had any new gut bugs!

So I recommend you find a doc who will test you for the specific cause of your 'SIBO' symptoms and prescribe a treatment which is effective for your specific gut bug. I also hope you will take some really high dose probiotics for a while after that treatment. (I took 100 billion live cells daily for about 6 months after my last treatment for Dientamoeba fragilis.)


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#4 burdee

 
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Posted 07 October 2011 - 10:21 AM

Thanks for sharing. What a nightmare. First celiac, now this?! I may try the SCD diet and see how it goes.


Long undiagnosed celiac makes you vulnerable to other physical problems, especially gastro problems. I have 6 other delayed reaction (IgG and IgA antibody mediated) allergies, besides gluten intolerance. After experiencing those 8 gastro infections, I learned I had Hashimoto's. However, I'm lucky to have escaped all those other autoimmune diseases which are associated with gluten intolerance (rheumatoid arthritis, lupus, type 1 diabetes, MS, etc., etc.).

Were you diagnosed with SIBO? If so, what test(s) did the doc give you to reach that diagnosis? Or did you just suspect you have SIBO? What symptoms led you to that conclusion?

The SCD diet will only help if you react to the foods, which that diet restricts. Rather than trying a more restrictive diet, if you suspect you have SIBO, start taking a high dose (10-50 live cells per capsule) probiotic ASAP. That could help your body overcome whatever bacterial imbalance you have. (Yogurt doesn't contain enough live cells to help anything.) Good luck!
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Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#5 BrookeT

 
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Posted 07 October 2011 - 12:11 PM

I suspected that I had SIBO after reading about it in a book, "Real Life with Celiac Disease." (great book btw) I am very careful about staying gluten-free, so I know it was not gluten exposure, plus a lot of other bad symptoms that I was having resolved themselves with the diet. I was still however experiencing, diarrhea, lots of stomach noises, burping and bloating. I went to my gastro Dr. and he put me on a course of Rifaximin. I felt fantastic, like a normal person, for about a month and then it came back. What I didn't realize then and do now, after doing further research on SIBO, is that it is recommended to reduce carbs and sugar during & after treatment, which I did not do. I believe that is why it came back. So, I'm not sure if I should try another course of antibiotics and reduce my carbs and sugar or try a more natural route, which is what I would prefer. I was taking Align for awhile but didn't see that much improvement. (they're only 1 billion live cells per cap)

The whole probiotics thing is very overwhelming. There are so many different strains out there that do different things, so it's hard to know which one to take and for how long, before seeing results. Also, there is some conflicting info out there about probiotics and whether they can help or hurt in treating SIBO.

Thanks for the input. : )

Long undiagnosed celiac makes you vulnerable to other physical problems, especially gastro problems. I have 6 other delayed reaction (IgG and IgA antibody mediated) allergies, besides gluten intolerance. After experiencing those 8 gastro infections, I learned I had Hashimoto's. However, I'm lucky to have escaped all those other autoimmune diseases which are associated with gluten intolerance (rheumatoid arthritis, lupus, type 1 diabetes, MS, etc., etc.).

Were you diagnosed with SIBO? If so, what test(s) did the doc give you to reach that diagnosis? Or did you just suspect you have SIBO? What symptoms led you to that conclusion?

The SCD diet will only help if you react to the foods, which that diet restricts. Rather than trying a more restrictive diet, if you suspect you have SIBO, start taking a high dose (10-50 live cells per capsule) probiotic ASAP. That could help your body overcome whatever bacterial imbalance you have. (Yogurt doesn't contain enough live cells to help anything.) Good luck!


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#6 julandjo

 
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Posted 07 October 2011 - 02:06 PM

I suspected that I had SIBO after reading about it in a book, "Real Life with Celiac Disease." (great book btw) I am very careful about staying gluten-free, so I know it was not gluten exposure, plus a lot of other bad symptoms that I was having resolved themselves with the diet. I was still however experiencing, diarrhea, lots of stomach noises, burping and bloating. I went to my gastro Dr. and he put me on a course of Rifaximin. I felt fantastic, like a normal person, for about a month and then it came back. What I didn't realize then and do now, after doing further research on SIBO, is that it is recommended to reduce carbs and sugar during & after treatment, which I did not do. I believe that is why it came back. So, I'm not sure if I should try another course of antibiotics and reduce my carbs and sugar or try a more natural route, which is what I would prefer. I was taking Align for awhile but didn't see that much improvement. (they're only 1 billion live cells per cap)

The whole probiotics thing is very overwhelming. There are so many different strains out there that do different things, so it's hard to know which one to take and for how long, before seeing results. Also, there is some conflicting info out there about probiotics and whether they can help or hurt in treating SIBO.

Thanks for the input. : )


I'm on month 3 of fighting suspected SIBO. My GI team has me taking Rifaximin (Xifaxan), two weeks on, two weeks off (with probiotics), two weeks on. I feel fantastic while I'm on the antibiotic, and for about a week afterward. But toward the end of the two "off" weeks, I start getting gut trouble, joint pain, etc. My dr. said that for some people, a few months of this therapy will cure the SIBO. But for a lot of people, it's an ongoing problem. Some people can get by with doing this a few times a year; some people need to stay on the cycle. Ughhh... I'm praying I'll be a lucky one and kick this junk. My gut needs to heal so I can get some more foods back into my diet!
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Dx'd with Celiac June 2010 via positive biopsy. I got tested because both of my kids (3 and 5 years old) have multiple food intolerances, with gluten being the worst offender.

Free of: grains, dairy, soy, legumes, nightshades, nuts, fish, eggs, pork, citrus and tropical fruits (latex allergy), stone fruits, melons, squash, strawberries, flax, cruciferous veggies and celery.

Yes, I'm HUNGRY.

#7 BrookeT

 
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Posted 07 October 2011 - 03:51 PM

I know, this totally sucks! What type of probiotic are you taking? Have you been reducing your carbs & sugar as well?

I'm on month 3 of fighting suspected SIBO. My GI team has me taking Rifaximin (Xifaxan), two weeks on, two weeks off (with probiotics), two weeks on. I feel fantastic while I'm on the antibiotic, and for about a week afterward. But toward the end of the two "off" weeks, I start getting gut trouble, joint pain, etc. My dr. said that for some people, a few months of this therapy will cure the SIBO. But for a lot of people, it's an ongoing problem. Some people can get by with doing this a few times a year; some people need to stay on the cycle. Ughhh... I'm praying I'll be a lucky one and kick this junk. My gut needs to heal so I can get some more foods back into my diet!


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#8 burdee

 
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Posted 08 October 2011 - 11:12 AM

Rifaximin will only work with bacteria which are sensitive to that drug. If your doc did not test (usually stool sample) which gut bug (bacteria, parasite or yeast) actually caused your symptoms, Rifaximin may be the wrong treatment for your infection. Taking the wrong drug can kill off your good bacteria, while allowing the cause of your symptoms (a bad bacteria, parasite or yeast) to flourish. So you can actually feel worse after treatment with Rifaximin. Many docs use that drug as an 'all purpose' antibiotic. Perhaps the drug reps labeled that product as 'all purpose'. However, specific drugs kill specific gut bugs. All purpose drugs can do more harm than good. Docs cannot know which bacteria (or parasite or yeast) causes your symptoms, unless they test you.

Reducing sugar and carbs during and after treatment is recommended for treating CANDIDA (a yeast), but may not work on bacterial or parasitic causes of SIBO. Gut bacteria feed on prebiotics (usually contained in high fiber, but not necessarily high carb vegies). However, taking a good probiotic (live cells, 10-50 billion per capsule) can help protect against any gut imbalance (from bacteria, parasite or yeasts). However, you may need to first kill off the bad bacteria (parasite or yeast), before good bacteria can repopulate your gut. So you may need to take an antibiotic (or antifungal or antiparasitic) drug BEFORE probiotics can really help. That's why eating the low sugar/carb diet for candida doesn't necessarily eliminate candida (and its symptoms). Unless you only have a tiny amount of candida, it's difficult to 'starve' the yeast to death. Antifungals plus a low carb/sugar diet would be more effective.

Brooke: If you've never been tested for and diagnosed with a specific bug (bacteria, parasite or yeast) which causes SIBO, you may actually have a delayed reaction food allergy which causes your symptoms. Look for a naturopath who actually tests you for gut bacteria, yeast, parasites, as well as delayed reaction food allergies (blood test NOT skin test).
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Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#9 BrookeT

 
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Posted 08 October 2011 - 01:42 PM

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#10 mushroom

 
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Posted 08 October 2011 - 02:23 PM

I agree with Burdee that you need to find out what specifically is overgrowing in your small intestine, which makes all the difference in how you treat it. In my case it was both candida and c. difficile. I found the regular alleopathic medical doctors to be not very helpful (this is the kindest thing I can say); I was treated by an alternative medical doctor who was open to supplements or presciption meds - whatever worked. I was treated with a gentian formula for my c.diff. because I got to that point because of taking antibiotics and wanted no more of them. He also treated me with lots of other supplements, none of them prescription. Diagnosis was by stool sample through Genova Laboratories. A good naturopath should be able to handle this for you and I would certainly recommend it.
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#11 BrookeT

 
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Posted 09 October 2011 - 05:52 AM

What specific probiotics do you recommend? There are so many different strains and different brands. Some are not effective, as they are not live past the date of manufacture. It's difficult to know which one would be beneficial.

You stated that reducing carbs & sugar may not work on a bacterial overgrowth. This is a quote from Elaine Gottschall's book, Breaking the Vicious Cycle: "Complex carbohydrates that are not easily digested feed harmful bacteria in our intestines causing them to overgrow producing by products and inflaming the intestine wall. The diet works by starving out these bacteria and restoring the balance of bacteria in our gut." So, it makes sense to me that restricting these complex carbs and incorporating some good bacteria, could improve things if it is indeed an overgrowth that I have.

Just curious, you said to get allergy tested via blood, not skin. Why no skin testing?

Rifaximin will only work with bacteria which are sensitive to that drug. If your doc did not test (usually stool sample) which gut bug (bacteria, parasite or yeast) actually caused your symptoms, Rifaximin may be the wrong treatment for your infection. Taking the wrong drug can kill off your good bacteria, while allowing the cause of your symptoms (a bad bacteria, parasite or yeast) to flourish. So you can actually feel worse after treatment with Rifaximin. Many docs use that drug as an 'all purpose' antibiotic. Perhaps the drug reps labeled that product as 'all purpose'. However, specific drugs kill specific gut bugs. All purpose drugs can do more harm than good. Docs cannot know which bacteria (or parasite or yeast) causes your symptoms, unless they test you.

Reducing sugar and carbs during and after treatment is recommended for treating CANDIDA (a yeast), but may not work on bacterial or parasitic causes of SIBO. Gut bacteria feed on prebiotics (usually contained in high fiber, but not necessarily high carb vegies). However, taking a good probiotic (live cells, 10-50 billion per capsule) can help protect against any gut imbalance (from bacteria, parasite or yeasts). However, you may need to first kill off the bad bacteria (parasite or yeast), before good bacteria can repopulate your gut. So you may need to take an antibiotic (or antifungal or antiparasitic) drug BEFORE probiotics can really help. That's why eating the low sugar/carb diet for candida doesn't necessarily eliminate candida (and its symptoms). Unless you only have a tiny amount of candida, it's difficult to 'starve' the yeast to death. Antifungals plus a low carb/sugar diet would be more effective.

Brooke: If you've never been tested for and diagnosed with a specific bug (bacteria, parasite or yeast) which causes SIBO, you may actually have a delayed reaction food allergy which causes your symptoms. Look for a naturopath who actually tests you for gut bacteria, yeast, parasites, as well as delayed reaction food allergies (blood test NOT skin test).


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#12 burdee

 
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Posted 09 October 2011 - 08:12 PM

What specific probiotics do you recommend? There are so many different strains and different brands. Some are not effective, as they are not live past the date of manufacture. It's difficult to know which one would be beneficial.

You stated that reducing carbs & sugar may not work on a bacterial overgrowth. This is a quote from Elaine Gottschall's book, Breaking the Vicious Cycle: "Complex carbohydrates that are not easily digested feed harmful bacteria in our intestines causing them to overgrow producing by products and inflaming the intestine wall. The diet works by starving out these bacteria and restoring the balance of bacteria in our gut." So, it makes sense to me that restricting these complex carbs and incorporating some good bacteria, could improve things if it is indeed an overgrowth that I have.

Just curious, you said to get allergy tested via blood, not skin. Why no skin testing?


Simple answer: We don't put food under our skin when we eat. Food goes through our digestive tract and into our blood, where antibodies can react.

More answers: Skin tests only rule out IgE (immediate reaction, anaphylactic) allergies. Most food allergies (including gluten intolerance) are delayed reaction allergies (IgG or IgA antibody mediated). Skin allergies don't address IgG or IgA mediated food allergies.

"Complex carbs" are difficult to digest if someone has allergic reactions to specific complex carb foods, like gluten, barley, rye and even rice for some people. If someone has deficient stomach acid, they may have difficulties digesting entire meals which contain complex carb (as well as proteins and fats). Rather than just rule out whole categories of foods, because some people have difficulty digesting them, I prefer to get tested for food allergies, bacterial, parasitic or candida infections and stomach acid production. However, that's just my preference. Some people prefer to restrict whole categories of foods, because they've read those foods are bad. I have 6 diagnosed food allergies as well as celiac (gluten intolerance). For me restricting 7 major categories of foods is enough. I also must abstain from sorbitol types of sweeteners to prevent leaky gut reactions and anything which causes reflux (alcohol, caffeine, chocolate, peppermint, etc.) because I already have stomach acid deficiency. You can certain restrict as many foods as you like. However, that may not eliminate unpleasant gastro symptoms, unless those food actually cause your symptoms.
  • 0

Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#13 BrookeT

 
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Posted 10 October 2011 - 04:53 AM

Thanks for the info. What about the probiotics? Which brand/type do you take?

Simple answer: We don't put food under our skin when we eat. Food goes through our digestive tract and into our blood, where antibodies can react.

More answers: Skin tests only rule out IgE (immediate reaction, anaphylactic) allergies. Most food allergies (including gluten intolerance) are delayed reaction allergies (IgG or IgA antibody mediated). Skin allergies don't address IgG or IgA mediated food allergies.

"Complex carbs" are difficult to digest if someone has allergic reactions to specific complex carb foods, like gluten, barley, rye and even rice for some people. If someone has deficient stomach acid, they may have difficulties digesting entire meals which contain complex carb (as well as proteins and fats). Rather than just rule out whole categories of foods, because some people have difficulty digesting them, I prefer to get tested for food allergies, bacterial, parasitic or candida infections and stomach acid production. However, that's just my preference. Some people prefer to restrict whole categories of foods, because they've read those foods are bad. I have 6 diagnosed food allergies as well as celiac (gluten intolerance). For me restricting 7 major categories of foods is enough. I also must abstain from sorbitol types of sweeteners to prevent leaky gut reactions and anything which causes reflux (alcohol, caffeine, chocolate, peppermint, etc.) because I already have stomach acid deficiency. You can certain restrict as many foods as you like. However, that may not eliminate unpleasant gastro symptoms, unless those food actually cause your symptoms.


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#14 burdee

 
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Posted 10 October 2011 - 10:11 AM

Thanks for the info. What about the probiotics? Which brand/type do you take?


I don't know whwther this website will let me type a brand name, but here goes: I use Custom Probiotics, Adult CP-1 forumula with 50 billion live cells per capsule. Taking 2 capsules daily for 6 months after my last (8th) gastro infection kept me from getting new infections. I now just take 1 capsule daily and haven't had any new infections for the past year (after 4 years of one infection after another).
  • 0

Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#15 BrookeT

 
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Posted 10 October 2011 - 10:25 AM

Glad that it's working for you and you're doing better.

I don't know whwther this website will let me type a brand name, but here goes: I use Custom Probiotics, Adult CP-1 forumula with 50 billion live cells per capsule. Taking 2 capsules daily for 6 months after my last (8th) gastro infection kept me from getting new infections. I now just take 1 capsule daily and haven't had any new infections for the past year (after 4 years of one infection after another).


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