Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Update On My Dizziness
0

5 posts in this topic

Hi all. I posted awhile back on some dizziness issues I have been having. I went to see an ENT to have my ears checked or to rule out issues with my jaws since I do occassional grind my teeth. Well, according to the doctor it is not my jaws causing the prob lem and he does not classify my symptom as "dizziness". It is more of an unsteadiness. He had me close my eyes and I could not stand up without leaning over, nor could I stand and lift one leg with my eyes closed! That is so not like me. I have had good balance my whole life with the exception of the last 2 years. He asked me if I knew what could be wrong with me??? I told him, no that's why I came to you!!! :o After looking into it,I wonder if this could be more of an ataxia problem, and if so, why is it getting worse when I have been gluten free for a year and a half??? Just thought I would update in case anyone is experiencing the same thing!!! :D

0

Share this post


Link to post
Share on other sites


Ads by Google:

Yes, I'm experiencing much the same thing, but I have increasing dizziness on-going for the past 10 months or so. I've seen 2 ENTs and neither one of them have even the slightest inkling of what's wrong with me. They just keep sending me for more tests. There's nothing wrong with my inner ears, no infection, no evidence of damage at all.

I am convinced it's another auto-immune disease, I just don't know which. So I shall just keep going back to my GP/PCP until we figure it out. Which is soon I hope. Yesterday I was so dizzy and nauseous I thought I was going to puke all over myself.

0

Share this post


Link to post
Share on other sites

Glutout & Reba32, do you both find you are more dizzy (off-balance) when you have been glutened? Does it then slowly fade? Are you repeatedly getting glutened? The reason I ask is this has been one of my hardest symptoms to get rid of for me as well. High fructose does the very same thing to me. It will take me 3 weeks before I feel like I am not floating, my vertigo gets worse during these times. The only things with me is I don't think in 5 months I have made it past 3 weeks without getting glutened somehow so this has not passed entirely for me. I know that any alcohol makes it worse but that is the only association I have made. I was reading today and decided to increase my B12 and magnesium, increased my iron earlier this week.

0

Share this post


Link to post
Share on other sites

I found this in a search, one paragraph from the link below:

Cerebellar ataxias including the genetic ataxias however do not have any definitive treatments. Some of the disorders have been reported to be slowed by taking antioxidants such as vitamins A, E, B12, idebenone, and Coenzyme Q10. Vitamin E is the treatment of choice in ataxia caused by vitamin E deficiency. Vitamin B12 or copper supplements are used to treat ataxia related to vitamin B12 or copper deficiency respectively. When associated with parkinsonism, such as seen in the cerebellar form of multiple system atrophy (previous referred to as olivopontocerebellar atrophy), levodopa may be helpful.

http://www.bcm.edu/neurology/parkinsons/?pmid=14178

0

Share this post


Link to post
Share on other sites

For me, it is there all the time, just in varying degrees--I do not believe I have been glutened. I have been complaining about it for years. I feel I need to get my vitamin levels checked, but do not know which ones are accurate and the best type to get???

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,697
    • Total Posts
      921,781
  • Topics

  • Posts

    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,702
    • Most Online
      3,093

    Newest Member
    Gigi Fagon
    Joined