Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Finally, Got Myself Tested Today...


kendon0015

Recommended Posts

kendon0015 Rookie

Back this past February, I had two pints of draught Blue Moon beer (wheat beer), and the next day spent over an hour in the bathroom. My first thought was that the beer was bad as I never has this problem before. Two weeks later I had the same bowel urgency (loose but formed stool) and spent another hour in the bathroom. Long story short as this repeated every two or three weeks, I decided to go gluten free in May. This decision was based on having Hashimotos, osteopenia, low D, and elevated homocysteine. I felt better immediately for the next three months and had the bonus of losing 8 pounds. The last month or so, I'm having the bathroom episodes all over again. Still gluten free, and strict about it. I haven't cheated once.

I went to the GI doctor last week and he has ordered blood work for Celiac and IBS. He didn't think it was IBS but is checking anyway. Also, stool samples for bacteria since I had recurring UTI's over last fall and winter...around 4-5 of them using Cipro each time. I went to the lab today and hopefully will have results by late next week. I LOVE this doctor. He is open minded, thorough, and current with gluten intolerant issues. I just hope that at least of these tests shows something.

Thanks for "listening".

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Newbee Contributor

You did consume some gluten containing food before having the blood test, right? I ask because you need to be eating food with gluten in it for the tests to come out correctly. Otherwise you may come back with a false negative result. My doctor did not tell me this when I had my blood test. Luckily I was eating gluten anyway, but I was disturbed that no one told me about this before I had the test.

Link to comment
Share on other sites
mushroom Proficient

Yes, unfortunately if you have been gluten free (or mostly so) for the last four months the likelihood of positive bloodwork is slim. You may have been getting some gluten cross-contamination from an unlikely source - lip gloss, meds, something unexpected. Did you start using any new products in the last month?

Link to comment
Share on other sites
Jenniferxgfx Contributor

Do you take thyroid meds? Are they gluten free? (same with your other meds but I hear the most popular thyroid med isn't gluten-free.) just a thought-- maybe you're getting gluten from elsewhere.

I'd gone gluten-lite before being tested so my results were negative, although I'm sure gluten is bad for me and I'll never go back on for a test.

Good luck and welcome!

Link to comment
Share on other sites
kendon0015 Rookie

Just came home to a message from my doctor....one stool sample came back positive and he wants to treat me right away. Positive for what I don't know yet, but at least that may be all or part of my problem. i have to call him tomorrow.

Link to comment
Share on other sites
kendon0015 Rookie

I've got a C difficile infection and will be treated for 10 days with Flagyl and probiotics, which I have been taking for months anyway. If I wasn't taking the probiotics, I think I'd be a lot worse! Blood work for gluten intolerance not back yet, but I feel a heck of a lot better without gluten. Wouldn't it be nice if that is all that was wrong with me for the past year? sheesh...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,508
    • Most Online (within 30 mins)
      7,748

    Penny Lowery
    Newest Member
    Penny Lowery
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • McNish
      If you're ever in the Peoria IL area - Queen of Squash is 100% gluten-free.   Pekin (just outside Peoria) Whiskey Taco is 90% gluten-free.  The owner's mom is Celiac so they get it!   Just let your server know.   https://thequeenofsquash.com/ https://whiskey-taco.com/
    • trents
      Do you have online access to your celiac panel test results such that you could post them? tTG-IGG is kind of a secondary test. A weak positive in that one could indicate celiac disease but since it isn't as specific a marker as the tTG-IGA it is not real convincing. You could also have NCGS (Non Celiac Gluten Sensitivity) for which there is no test. Celiac disease must first be ruled out. It is 10x more common than celiac disease and shares many of the same symptoms. Some experts believe it can be a precursor to celiac disease. The antidote for both is the same: total avoidance of gluten.
    • powerofpositivethinking
      I haven't been on this forum for a long time, but it was absolutely wonderful during the diagnostic process!  My path for celiac disease diagnosis was the following: -Had normal IgA level, and my only serology positive test was the DGP IgG -Deficiencies in both Vitamins D and K that did not increase at first despite massive supplementation -Diagnosis of fat malabsorption both total and neutral -Diagnosis of severe exocrine pancreatic insufficiency (EPI) -Testing was completed to rule out causes of EPI, and the only one not ruled out was celiac. -Both traditional endoscopy and pill capsule endoscopy yielded negative results for biopsy confirmation, but my GI doctor said that both procedures simply could have missed the damaged spots. -EPI and fat malabsorption resolved after taking Creon for 6 months since my EPI was caused by celiac -23 and Me said I don't have either of the two prominent genes for celiac disease   Remember that you might not have 'textbook' symptoms, but you still may have celiac disease.   Also, I am SO incredibly grateful for this site for all the learning it has allowed me to do. I have a senior dog, and these last few weeks with her were very scary! After two hospital stays, she finally received an IBD diagnosis after having gastroenteritis and pancreatitis. I know that celiac disease is not IBD, however, through reading this site, I learned more about it. I was relieved when I found out she had IBD and not cancer this past Wednesday. I know IBD can be managed thanks to what I've learned here!  So celiac.com, not only did you help me, but you helped my pup too! Thank you ❤️  
    • SuzanneL
      It was tTG IGG that was flagged high. I'm not sure about the other stuff. I'm still eating my normal stuff. 
    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. It is interesting to read of your experiences. Although I've not had TMJ, from time to time I have had a bit of mild pain in my jaw, sharp stabbing pains and tingling in my face which appears to have been caused by issues with my trigeminal nerve.  I read that sometimes a damaged trigeminal nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.  Also, sleeping with a rolled up towel under my neck is a tip I picked up online, again, that seems to bring benefits. Thank you again for your input - living with this sort of pain can be very hard, so it is good to be able to share advice.
×
×
  • Create New...