Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Any Non-Celiac Gluten Intolerant People Without Symptoms?
0

8 posts in this topic

This is probably a silly question, but I'm curious if there are any of you out there with non-celiac gluten intolerance who only have very mild symptoms.

Of course, I'm assuming that the whole reason someone discovers their gluten intolerance is because of the symptoms. With celiac, I know there are people who have very mild, if any, outward symptoms immediately after eating gluten.

0

Share this post


Link to post
Share on other sites


Ads by Google:

This is probably a silly question, but I'm curious if there are any of you out there with non-celiac gluten intolerance who only have very mild symptoms.

Of course, I'm assuming that the whole reason someone discovers their gluten intolerance is because of the symptoms. With celiac, I know there are people who have very mild, if any, outward symptoms immediately after eating gluten.

No, no...not a silly question at all.

Many people here have been diagnosed with Celiac as a secondary issue. Although gluten can not be attributed to all our issues, it can play a part - large or small. That part varies widely amongst us.

But, to answer your question, I have a minimal reaction to exposure after six years of being gluten free, 24 hours later.

0

Share this post


Link to post
Share on other sites

I don't know if my case counts, but I am gluten intolerant and experience fewer obvious symptoms the more often I eat gluten. If I have avoided gluten for a long time and accidentally consume it, I get gastrointestinal problems, bloating, fatigue, headaches, aches, depression, acne, inability to feel satiation from food, increased tolerance to alcohol, frequent hunger and probably other symptoms. When I accidentally get glutened by something several times, I only experience bloating, malabsorption (causes frequent hunger and higher alcohol tolerance) and acne. Before I realized I had the intolerance, I thought the bloating was actually fat, felt like I was simply a hungry girl who could handle her alcohol, and assumed my hormones caused the acne. So those symptoms wouldn't really be apparent as a reaction to a food sensitivity. Those are symptoms a ton of unsuspecting people have.

1

Share this post


Link to post
Share on other sites

This is probably a silly question, but I'm curious if there are any of you out there with non-celiac gluten intolerance who only have very mild symptoms.

Of course, I'm assuming that the whole reason someone discovers their gluten intolerance is because of the symptoms. With celiac, I know there are people who have very mild, if any, outward symptoms immediately after eating gluten.

I agree, this is not at all a silly question.

I am gluten intolerant, self diagnosed, never been tested except by eliminating gluten from my diet. My symptoms vary from uncomfortable to miserable, and don't start for 12 to 24 hours later, which can make figuring what the heck I ate, very difficult. Eating gluten triggers reflux and my fibromyalgia symptoms, which is something I try hard to avoid. Since going gluten free, I also get the big "D" after being glutened, although that symptom only started in the past 6 months or so. I've been gluten free for about 3 years.

The fibro is not completely 'cured' by being gluten free, but it certainly is much more manageable.

0

Share this post


Link to post
Share on other sites

[quote name='Lisa' timestamp='1318206095' post='737439'

Many people here have been diagnosed with Celiac as a secondary issue.

0

Share this post


Link to post
Share on other sites




I completely agree (including about celiac causing so many other issues as well.)

However - I'm interested in non-celiac gluten intolerant. It's just out of pure curiosity, really. I occasionally see people who are celiac mention that they have only mild (immediate) symptoms, but I've never heard people who haven't been officially diagnosed as celiac described their reactions as "mild."

I didn't think I was gluten-intolerant at all and only went gluten-free because of my son's extreme reactions to gluten. Now I realize that I do have symptoms from gluten. I would classify them as mild. When we first went gluten-free my reactions to being gluten-free were extreme. That was a clue to me that it was probably a problem. When I got glutened early on, I could feel it with brain fog and some D.

But we've changed our diet so much since then and we're so careful about gluten that I honestly don't know what my reaction would be now. I keep thinking maybe I should try it just to find out. I think my biggest improvements in overall health & neuro issues are not so much about gluten as about having gotten my blood sugar under control with GAPS.

0

Share this post


Link to post
Share on other sites

I am self- diagnosed, so don't know if i have celiac or NCGI.

The obvious outward sypmtoms I had were, well, not so obvious-- at least until i figured out my gluten issues! they were: cold sores, non itchy rash on arms & hands, constipation, minor ataxia. All but the ataxia can be attributed to other things, as far as I know. And I just thought all of them were normal for me.

0

Share this post


Link to post
Share on other sites

I completely agree (including about celiac causing so many other issues as well.)

However - I'm interested in non-celiac gluten intolerant. It's just out of pure curiosity, really. I occasionally see people who are celiac mention that they have only mild (immediate) symptoms, but I've never heard people who haven't been officially diagnosed as celiac described their reactions as "mild."

I guess mine are pretty mild. I'm non-celiac gluten intolerant. I'm sensitive to tiny amounts of gluten, but if it's a one off glutening, then my symptoms arrive almost exactly 2 hours later and don't last long (basically, really bad stomach ache and D). Nothing like the days or weeks other people seem to get.

If I get glutened over and over, then the neuro stuff kicks in and that's nasty. I see the benefits in being gluten free over the longer term.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,594
    • Total Posts
      918,296
  • Topics

  • Posts

    • In Dire Need Of Help
      Having anxiety is a major symptom of celiac disease per many of our members on this forum (including me).  These are the tests needed for diagnosing celiac disease but the catch is that you need to be consuming gluten in order for them to be valid.   http://www.cureceliacdisease.org/screening/ Your GP or PCD doctor can order the panel.  Try to go for the complete panel.  Often just the TTG tests are given in order to save costs.  It's good, but does not catch all celiacs. I hope you get relief!  
    • In Dire Need Of Help
      You need to have your adrenal glands checked. I was diagnosed with celiac after my adrenal glands started to shut down. Since then I have met at least 3 others that had the same thing happen. It was missed 3 times in the hospital, for some reason the adrenals often get missed.  It sounds like the latter stages of hypo adrenalism, not adrenal fatigue. Research it to see if that seems like what you are going through and make sure you find a dr that knows how to diagnose and treat it
    • In Dire Need Of Help
      Hi my name is Alex and I am 23 years old. I am suffering so badly right now in life. Everyday I have multiple, very severe panic attacks. I have called 911 many times in the last 6 months. I am suffering with vertigo, intense weakness and pains, I can not digest anything, I have terrible acid reflux, I can't sleep, I can't relax, my heart constantly palpitates, my breathing is "forced labor" all day. I am suffering in a mental fog. I have been from doctor to hospital to doctor and every EKG comes back normal, every doctor says the same thing, I am struggling with anxiety and they write me whatever prescription of the week they are offering  I recently took it upon myself to cut gluten out of my diet, and wallah! I felt like I did in high school within 2 days. I work in NYC and many times it is nearly impossible to find something containing no gluten, and many times when I ask they tell me "No Gluten" and I eat whatever food I ordered (probably salad w/ dressing) and i find myself driving home in a terrible panic attack. Panic is my main symptom. I have not been diagnosed yet, but the difference from how I feel and how to the people around me tell me I act I am 100% convinced. The question I'm having is, what do you think? Is it possible I have Celiac? Can panic be the main symptom? I'm telling you right now, my anxiety is unlike anything anyone has ever seen. I lay on the ground for 2 hours with numb limbs feeling like I am having a stroke unable to talk to anyone. I have 2 of these a day. Please let me know your thoughts. I truly am a novice with all of this. I am suffering and I need help. Thanks
    • celiac disease is psychosomatic
      The following link might be helpful for others experiencing simlar psychosomatic issues with doctors. Although it's only for psychiatrists, I think it should be for all doctors! http://www.psychsearch.net/complaints/ The neuropsychiatrist I saw might fall into this category? I can checkmark:

       Falsified medical records
       No Biological Test for "Mental Illness" (no blood, urine or other lab testing)
       Breach of Confidentiality (...if she sends my medical records to my doctor or discusses them with him. I am requesting a copy of my records from this doctor t see if she sent anything to him.)
       Physical Illness Misdiagnosed as "Mental Illness"
       I was told I have a "chemical imbalance" (without any lab tests)
       Unethical Conduct
       Unprofessional conduct
       Something else that didn't seem quite right  
    • Allergy or Preference? Waiter asks
      At my local Five Guys, I told the counter guy that I had to avoid gluten for medical reasons. I was ordering a burger with no bun and some fries. He yelled back "Allergy Alert!" and every line cook immediately changed gloves and cleaned their work space. Will I go back? You bet I will!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,695
    • Most Online
      1,763

    Newest Member
    LiftBrainFog
    Joined