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Any Non-Celiac Gluten Intolerant People Without Symptoms?


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#1 Katrala

 
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Posted 09 October 2011 - 03:26 PM

This is probably a silly question, but I'm curious if there are any of you out there with non-celiac gluten intolerance who only have very mild symptoms.

Of course, I'm assuming that the whole reason someone discovers their gluten intolerance is because of the symptoms. With celiac, I know there are people who have very mild, if any, outward symptoms immediately after eating gluten.
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#2 Lisa

 
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Posted 09 October 2011 - 04:21 PM

This is probably a silly question, but I'm curious if there are any of you out there with non-celiac gluten intolerance who only have very mild symptoms.

Of course, I'm assuming that the whole reason someone discovers their gluten intolerance is because of the symptoms. With celiac, I know there are people who have very mild, if any, outward symptoms immediately after eating gluten.



No, no...not a silly question at all.

Many people here have been diagnosed with Celiac as a secondary issue. Although gluten can not be attributed to all our issues, it can play a part - large or small. That part varies widely amongst us.

But, to answer your question, I have a minimal reaction to exposure after six years of being gluten free, 24 hours later.
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#3 kdonov2

 
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Posted 09 October 2011 - 04:29 PM

I don't know if my case counts, but I am gluten intolerant and experience fewer obvious symptoms the more often I eat gluten. If I have avoided gluten for a long time and accidentally consume it, I get gastrointestinal problems, bloating, fatigue, headaches, aches, depression, acne, inability to feel satiation from food, increased tolerance to alcohol, frequent hunger and probably other symptoms. When I accidentally get glutened by something several times, I only experience bloating, malabsorption (causes frequent hunger and higher alcohol tolerance) and acne. Before I realized I had the intolerance, I thought the bloating was actually fat, felt like I was simply a hungry girl who could handle her alcohol, and assumed my hormones caused the acne. So those symptoms wouldn't really be apparent as a reaction to a food sensitivity. Those are symptoms a ton of unsuspecting people have.
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#4 BethM55

 
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Posted 10 October 2011 - 12:17 PM

This is probably a silly question, but I'm curious if there are any of you out there with non-celiac gluten intolerance who only have very mild symptoms.

Of course, I'm assuming that the whole reason someone discovers their gluten intolerance is because of the symptoms. With celiac, I know there are people who have very mild, if any, outward symptoms immediately after eating gluten.



I agree, this is not at all a silly question.

I am gluten intolerant, self diagnosed, never been tested except by eliminating gluten from my diet. My symptoms vary from uncomfortable to miserable, and don't start for 12 to 24 hours later, which can make figuring what the heck I ate, very difficult. Eating gluten triggers reflux and my fibromyalgia symptoms, which is something I try hard to avoid. Since going gluten free, I also get the big "D" after being glutened, although that symptom only started in the past 6 months or so. I've been gluten free for about 3 years.

The fibro is not completely 'cured' by being gluten free, but it certainly is much more manageable.
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Self diagnosed gluten intolerant, gluten free since 12/09.
Diagnosed with fibromyalgia about 15 years ago. Fibro symptoms have improved but not gone away with gluten free living.
Osteoarthritis, mostly in hands and neck and lumbar spine. Not sure if going gluten-free has helped that problem, but it certainly can't hurt. (Am very grateful that so far no sign of the RA that is devastating my mother lately.)
Considering a dairy free trial. Considering.

#5 Katrala

 
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Posted 10 October 2011 - 01:49 PM

[quote name='Lisa' timestamp='1318206095' post='737439'

Many people here have been diagnosed with Celiac as a secondary issue.
[/quote]

I completely agree (including about celiac causing so many other issues as well.)

However - I'm interested in non-celiac gluten intolerant. It's just out of pure curiosity, really. I occasionally see people who are celiac mention that they have only mild (immediate) symptoms, but I've never heard people who haven't been officially diagnosed as celiac described their reactions as "mild."
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#6 domesticactivist

 
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Posted 10 October 2011 - 01:55 PM

I completely agree (including about celiac causing so many other issues as well.)

However - I'm interested in non-celiac gluten intolerant. It's just out of pure curiosity, really. I occasionally see people who are celiac mention that they have only mild (immediate) symptoms, but I've never heard people who haven't been officially diagnosed as celiac described their reactions as "mild."


I didn't think I was gluten-intolerant at all and only went gluten-free because of my son's extreme reactions to gluten. Now I realize that I do have symptoms from gluten. I would classify them as mild. When we first went gluten-free my reactions to being gluten-free were extreme. That was a clue to me that it was probably a problem. When I got glutened early on, I could feel it with brain fog and some D.

But we've changed our diet so much since then and we're so careful about gluten that I honestly don't know what my reaction would be now. I keep thinking maybe I should try it just to find out. I think my biggest improvements in overall health & neuro issues are not so much about gluten as about having gotten my blood sugar under control with GAPS.
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Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.

#7 wheeleezdryver

 
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Posted 10 October 2011 - 04:42 PM

I am self- diagnosed, so don't know if i have celiac or NCGI.

The obvious outward sypmtoms I had were, well, not so obvious-- at least until i figured out my gluten issues! they were: cold sores, non itchy rash on arms & hands, constipation, minor ataxia. All but the ataxia can be attributed to other things, as far as I know. And I just thought all of them were normal for me.
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Becky (me)-35yo; hypothyroid 8yrs (symptoms at least 1 yr prior); Plantar Fasciitis (PF) (tendonitis in foot) 4 yrs; ovary & softball size cyst removed Feb 2008; Sleep Apnea 3yrs; Dec 2008- realized wheat affects hormones-- went semi- gluten-free (aka, gluten lite!). Interstitial Cystitis (IC, aka painful bladder syndrome) (self dx. controlled by diet- can't have acidic foods/ drinks). July 2010-- realized there was more going on, was going to do the sensitivity/ Celiac testing, decided it wasn't worth it! Am now truely learning to live the gluten- free lifestyle!
My DH-38 yo; born w/ Spastic cerebral palsy. legally blind, uses wheelchair. back surgery Aug 2007, has continued back troubles.

#8 anabananakins

 
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Posted 10 October 2011 - 06:03 PM

I completely agree (including about celiac causing so many other issues as well.)

However - I'm interested in non-celiac gluten intolerant. It's just out of pure curiosity, really. I occasionally see people who are celiac mention that they have only mild (immediate) symptoms, but I've never heard people who haven't been officially diagnosed as celiac described their reactions as "mild."



I guess mine are pretty mild. I'm non-celiac gluten intolerant. I'm sensitive to tiny amounts of gluten, but if it's a one off glutening, then my symptoms arrive almost exactly 2 hours later and don't last long (basically, really bad stomach ache and D). Nothing like the days or weeks other people seem to get.

If I get glutened over and over, then the neuro stuff kicks in and that's nasty. I see the benefits in being gluten free over the longer term.
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