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Looking For A Support Group
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4 posts in this topic

Hello,

I have not been officially diagnosed with Celiac. However, my blood tests always come back not statistically significant. In addition, I have a family member who has been diagnosed. I have two family friends who are nurses and I have about 90 percent of the symtoms. I have decided to be proactive and give the gluten free diet a try. I am lost as where to start. If anyone has any ideas of what for me to look for in purchasing food or where to go I would be happy for the suggestions. Thanks so much for your help.

JAS

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The easiest way to go gluten free is to eat natural foods; e.g., meats, vegetables, fruits, nuts, rice, eggs, etc. If you feel you MUST have gluten-free bread, the best brands (IMHO) are Against the grain, Udi's, and Rudi's--and all of these can be found in the freezer section of an upscale or health market. The best gluten-free pastas are Tinkiyada and Glutino....and if you'd like to buy "regular" food that is gluten free, here is a link:

http://homepage.mac.com/sholland/celiac/GFfoodlist.pdf

Hope this helps!

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To really give this a good test, I'll give you the advise my gastro gave me......go off glutens and dairy for two months. Gluten and dairy intolerance many times walk hand in hand because of the damage it does to the villa in the intestines. Once damaged you have to repair your system in order to tolerate dairy again.

Read labels, go whole foods, natural, don't cheat. No fast foods, no frozen dinners, no boxed mixes, no marinades, check your canned foods and candy. Two months of this and you will have an answer. If you decide to give up both for a month, introduce only one at first to see if you have any effects.....you should know by the next day. Then go off both to clear your system again and then try the other. Dairy is actually the #1 food intolerance and gluten #2 according to my gastro.

I wish you the best of luck!

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Hello,

I have not been officially diagnosed with Celiac. However, my blood tests always come back not statistically significant. In addition, I have a family member who has been diagnosed. I have two family friends who are nurses and I have about 90 percent of the symtoms. I have decided to be proactive and give the gluten free diet a try. I am lost as where to start. If anyone has any ideas of what for me to look for in purchasing food or where to go I would be happy for the suggestions. Thanks so much for your help.

JAS

Welcome, JAS! I don't know if there is a support group in Frederick but I have heard there is one in Gettysburg, PA, which isn't far from you (don't know how active they are). You might want to call MOM's in Frederick (they're on Buckeystown Pike). I know my doctor's wife shops there and they would probably be knowledgeable as to support groups in the area.

I agree with others that a whole foods diet is the way to go when you first go a gluten-free and to stay away from a lot of processed foods in your diet.

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    • New to this gluten-free life
      Kareng is correct.  There are also a number of good reference books on celiacs and gluten free issues.  Also several magazines.  The main thing is to find out the hidden and unusual sources of gluten, and also to be very careful when eating at restaurants.  I got glutened quite a few times at restaurants before I learned to triple check and began to find safe places.  Good luck. 
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    • Kidney disease question
      Hi all,   I don't know whether kidney disease is celiac related or not but hopefully someone here can advise.
      I recently had a general blood test as I'd been feeling unwell. I think I've been glutened tbh but I also felt lethargic and out of sorts. I asked for thyroid and other levels to be checked. Frustratingly they didnt run the TTG - something I'm really down about. Anyway, The doctor looked at my test results and told me (via the receptionist) there was nothing to worry about. Given past experiences I requested a paper copy of the results and I found the following under the renal profile section:

      Renal profile 142 (135-145)
      Serum Sodium 4.7 (3.5 5.3)
      Serum potassium 5.5 (2.5 - 7.5)
      Serum urea 93 (62 - 120)
      Serum creatinine 93 (62 - 120)
      GFR 77ml/min/1.73m^2 - STAGE 2: CKD only if other evidence of renal damage

      The doctor is presumably happy with this but I'm a little concerned. Should I ask for a doctors appointment and perhaps a urine test? Is the GFR result on its own not sufficient reason to investigate further? 
      Many thanks for any advice you can offer

      Matt 
    • Test Results
      Thank you, guys. I will let you know how it goes sometime after 8 a.m. on Tuesday morning. 
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