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Operation: Pregnancy
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Hello,

I am just re-kindling my gluten/wheat issue research. I have been gluten free for about a year and a half, maybe a little longer. Shortly before going gluten-free I went refined fructose super-lite and right after going gluten-free I went grain, dairy, soy, and canola oil free. I have a long history of thyroid issues, rashes, dead intestines (leaky as all get out and had part of them removed 2 years ago), migraines, nerve issues, muscle issues, insmomnia, anxiety, fatigue, asthma, tons of secondary food allergies (mostly fruits)...the whole works. I am strict, the concept of 'cheating' is alien to me. My house is gluten-free. I know I have a long way to go toward healing my leaky gut but I also know I am the healthiest I have probably ever been in my life.

Since I am trying to get pregnant I realized that I have never researched this and need too. Anyway. I am 38. I had a pregnancy and birth 14 years ago. I was 24 and sick before during and after. I had no fertilty or delivery difficulties but I was not well durng the pregnancy. Tons of ridculously severe acid reflux, high blood pressure, water retention, migraines, thyroid was hard to stabalize, 'morning' sickness...and I was pushing that line between overweight and obeseity at conception and gained a lot of weight during. I know these things are 'normal' to an extent.

I don't really know what I am looking for, I am just starting my way through this thread right now. This is just a shout-out in case anyone out there has some adivce or a kernal of wisdom they'd like to throw back ;)

Thanks!

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Hello,

I am just re-kindling my gluten/wheat issue research. I have been gluten free for about a year and a half, maybe a little longer. Shortly before going gluten-free I went refined fructose super-lite and right after going gluten-free I went grain, dairy, soy, and canola oil free. I have a long history of thyroid issues, rashes, dead intestines (leaky as all get out and had part of them removed 2 years ago), migraines, nerve issues, muscle issues, insmomnia, anxiety, fatigue, asthma, tons of secondary food allergies (mostly fruits)...the whole works. I am strict, the concept of 'cheating' is alien to me. My house is gluten-free. I know I have a long way to go toward healing my leaky gut but I also know I am the healthiest I have probably ever been in my life.

Since I am trying to get pregnant I realized that I have never researched this and need too. Anyway. I am 38. I had a pregnancy and birth 14 years ago. I was 24 and sick before during and after. I had no fertilty or delivery difficulties but I was not well durng the pregnancy. Tons of ridculously severe acid reflux, high blood pressure, water retention, migraines, thyroid was hard to stabalize, 'morning' sickness...and I was pushing that line between overweight and obeseity at conception and gained a lot of weight during. I know these things are 'normal' to an extent.

I don't really know what I am looking for, I am just starting my way through this thread right now. This is just a shout-out in case anyone out there has some adivce or a kernal of wisdom they'd like to throw back ;)

Thanks!

Thanks for posting this, Muffy! While I cannot offer any advice, I do hope others can/will as I am in a similar situation as you are. I'm 35 and have only just very recently started on my gluten-free journey, all the while TTC (or, as we like to say, not NOT trying...lol...with very strong hopes). Neither my husband nor I have other children, however, so no history to draw upon. Since going gluten-free almost one month ago now (Sept. 13 was my last day of consuming gluten, so tomorrow will be one month for me), I already feel like I've gained at least 10 years of my life back! Good luck TTC! I hope we both have good news to share soon!

Jen

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Just found out Gluten was the key to everything... We've been trying since November to get Prego. And I've been gluten free for a month now.. Any advice on how to get prego would be great!! I have a 2 year old now. We want one more then we are done. It seems like TTC is a struggle since we got prego with our first on the first try. My body feels different and everything feels like its not working right.

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My advice would be don't rush healing and make sure your doctor is involved. I was gluten free for 2 months and got pregnant completely unassisted after 10 cycles of fertility meds. We lost the baby at 7 weeks and I can't help but feel we just tried to soon. I was just starting to really feel better when I added the stress of a baby into my already weakened body and although I healed enough to conceive it wasn't enough support the fetus.

I hope that helps....

Jess

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Definitely does help.. my best friend just had a miscarriage.. And I don't think I could handle that... I want to heal first so i can be as healthy as I can be...But at the same time, I'm not getting younger either.. Its so hard to know when, I'm working with my GI closely.. Maybe he'll tell me when I seem ready.

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I too had a miscarriage before my current pregnancy but you can't blame yourself if that happens - they can be caused by any number of reasons and are most often nature's way of dealing with a fetus that wouldn't have lived anyway. Personally, if I was 38 I wouldn't be waiting for the perfect time unless there are obvious health reasons to wait.

However if you haven't already been checked for nutrient deficiencies I would get blood tests to check your folic acid, vitamin b12, iron and vitamin c levels in particular. These are often deficient in people with gluten intolerance and can take some time to restore. I had injections for b12 deficiency (which is important for fertility) and along with folic acid this is also important to prevent neural tube defects such as spina bifida. Beware if you are taking a high dose of folic acid when they test your b12 levels this can mask a deficiency. I have just found out I am low in b12 again and it is not recommended to have b12 injections during pregnancy so I recommend you check this out so you can get any injections required before getting pregnant.

By the way, you may find you can have dairy products again. After 6 months on the gluten free diet I found I had healed enough that I no longer had a lactose intolerance. It is good to be able to eat lots of calcium rich dairy products while pregnant, especially when you have cravings for custard.... :)

Goodluck

Eleanor

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Just to share, I was gluten-free for 2 1/2 years when I got pregnant the first time. I was in excellent health and still had a miscarriage. Many perfectly healthy people have unexplained m/c, sadly it is just a part of TTC. I'm happy to say, that I'm now 6 weeks and 2 days along and so far everything is going well :)

I agree with keeping your DR in the loop and following his or her advice as you go along. I did have initial bloodwork done before we started trying, and everything was in the normal range, even my iron, which hadn't been the case since I was a teenager! Good luck!!

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    • Here is another point.  My hubby went gluten-free per the poor advice of his GP and my allergist.  It worked.  A tough first year, but he got well.  Thirteen years later, I got diagnosed with celiac disease.  I was shocked!  😱.   Does he have celiac disease?  We will never know because we can not afford to have him do a challenge.  He refuses and I can not blame him.  He knows he will be very sick!   The point?  I am so lucky that we both can not have gluten.  I never worry about him making me sick or vice versa. We made the house completely gluten free for  1) our health and 2) the fact that our kid started helping in the kitchen. Kids make mistakes and I personally need a safe haven.  She wants gluten?  I buy prepackaged stuff and she takes it to school.  All parties and events at my house are gluten free.  Lots of work, but we stay healthy.  She does not have celiac disease.  When she is preparing for a celiac test,  I send her on the porch to eat cookies or bread or whatever floats her boat.  We travel in a gluten-free RV.  I have five sizes of ice chests.  We just have to be prepared for any event.   How can we live this way?   We love feeling good.
    • Freize is right, you need to think about your environment.   Based on that a study I posted for you, you will note that the patients who were diagnosed with refractory celiac disease and THOUGHT they were diet compliant found that they WERE NOT diet compliant.  How is this possible?   This is way out there, but unless you are growing all your own food, you don't really know if it is gluten free.  In the US, we do have laws to help protect our food supplies (no perfect, but a start).    I can not speak for India.  For example, what about your soy?  It can be contaminated by the farmer as it is often rotated with wheat.  Here is an article by Jane Anderson who has celiac disease.  She is very strict as she has DH (celiac rash), but she cites Trisha Thompson who tests foods for gluton contamination, The gluten-free WatchDog (like Consumer reports).  She found that soy which is naturally gluten free, but can be cross contaminated by wheat: https://www.verywell.com/is-soy-gluten-free-562371 so, start thinking about your food supply. As far as a negative TTG IGA or TTG IGG?  I test negative to both.  Only the DGP IGA has ever been elevated in my blood tests (even repeats), yet I had a Marsh Stage IIIIB on my biopsy.  Have you had a DGP IGG?  (I do not see this in your posting).   http://www.cureceliacdisease.org/screening/ These additonal celiac tests might help you feel confident that you have celiac disease and not something else that is damaging your villi.  But remember, some  folks have celiac disease even with negative blood.  I am not IGA deficient, so this is an area I have not researched.  Not to mention that some celiac researchers do not think that the celiac  antibodies tests are good for diet compliancy.   I wish I had better answers for you.  Try a grain free, whole foods diet of meats, fish, eggs, and vegetables for a while.  All food prepared by you. Who cooks your food now?  Is your home gluten free?  Cross contamination at home?  Kissing a loved one.  We had a doctor with celiac disease who was getting glutened by her little children who were consuming gluten!  
    • I won't say I will never eat out but I can't see me eating out for the foreseeable future. Even then, I will most likely only eat at a dedicated gluten free place. I am extremely sensitive to the tiniest amount of gluten and it's just not worth the risk to me. Eating out is playing Russian Roulette as far as I'm concerned and I'm not ready to play that game yet.
    • You are right. The weirdest part is that I feel fine, however, I am sure cross-contamination is doing damage even when we don't think it is. 
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