Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Itching And Twitching!
0

13 posts in this topic

Many people have talked about itching and twitching on this site in the process of recovery. How long on average did you find it took for these symptoms to disappear? I don't itch all the time like I used to but now just in the middle and the end of my cycle (about 3 days in the middle and 7 - 10 days at the end). Out of interest has anyone here also suffered from Obstetric or normal cholestasis? I had this with both of my pregnancies and neither time did it stop after pregnancy. Only after being gluten free for 8 weeks or so did it start to diminish.

0

Share this post


Link to post
Share on other sites


Ads by Google:

There could be a few reasons for itching. Look up http://www.celiac.com/articles/22021/1/Five-Common-Skin-Conditions-Associated-With-Celiac-Disease/Page1.html

Twitches are more than likely due to the lack of magnesium in yoiur diet. Potassium and magnesium both regulate muscle contraction. Some people have trouble with magnesium supplements but are fine with potassium. I was able to get my twitches to stop by using potassium supplements and putting more potassium rich foods in my diet. You can find lots of info on both on the Internet if you want to reserahc it more for yourself.

0

Share this post


Link to post
Share on other sites

Many people have talked about itching and twitching on this site in the process of recovery. How long on average did you find it took for these symptoms to disappear? I don't itch all the time like I used to but now just in the middle and the end of my cycle (about 3 days in the middle and 7 - 10 days at the end). Out of interest has anyone here also suffered from Obstetric or normal cholestasis? I had this with both of my pregnancies and neither time did it stop after pregnancy. Only after being gluten free for 8 weeks or so did it start to diminish.

Could also be salicylate and/or phenol sensitivity. Might be worth looking into. If epsom baths and/or baking soda helps against the itching and twitching, its a good indicator... If it is salicylate or phenol sensitivity, you can find info and both acceptable and non acceptable food lists by trolling the internet. Hopefully it isn't so bad you have to be on a full scale reductive diet like some of us. Meaning being, its better to catch it earlier rather than later...

0

Share this post


Link to post
Share on other sites

Could also be salicylate and/or phenol sensitivity. Might be worth looking into. If epsom baths and/or baking soda helps against the itching and twitching, its a good indicator... If it is salicylate or phenol sensitivity, you can find info and both acceptable and non acceptable food lists by trolling the internet. Hopefully it isn't so bad you have to be on a full scale reductive diet like some of us. Meaning being, its better to catch it earlier rather than later...

This is really useful, thank you! I hadn't thought of Phenols. I've been eating as clean as I possibly can but it seems I might be reacting to my children's playdoh! Someone mentioned B12 so I have taken some foodstate B vits over the last 24 hrs and it does seem to have calmed the twitching down... awesome result! Hopefully as my gut heals the itching will get better too!

0

Share this post


Link to post
Share on other sites

This is really useful, thank you! I hadn't thought of Phenols. I've been eating as clean as I possibly can but it seems I might be reacting to my children's playdoh! Someone mentioned B12 so I have taken some foodstate B vits over the last 24 hrs and it does seem to have calmed the twitching down... awesome result! Hopefully as my gut heals the itching will get better too!

Benefits of B12: http://adrienne2.hubpages.com/hub/Health-Benefits-of-Vitamin-B12

Symptoms of magnesium deficiency, scroll down to muscle spasms and twitches: http://www.calmnatural.co.uk/magnesium-deficiency

0

Share this post


Link to post
Share on other sites




This is really useful, thank you! I hadn't thought of Phenols. I've been eating as clean as I possibly can but it seems I might be reacting to my children's playdoh! Someone mentioned B12 so I have taken some foodstate B vits over the last 24 hrs and it does seem to have calmed the twitching down... awesome result! Hopefully as my gut heals the itching will get better too!

Glad to be of help. Hadn't heard that about Playdoh!! Does it have gluten in it?? Or Phenols??

I have had contact poisoning just from touching wintergreen and aloe...

Let us know how it goes and what you discover.

I too am still discovering more over time. For some of us it takes a while... Am so very greatful I am sleeping better these days. The Epsom Salt baths help me hugely plus taking MSM and of course the B vitamins (co-enzyme complex for me to absorb them) and various minerals including the magnesium (an essential ingredient to stop the twitchies).

Recently I also have discovered homeopathics really help me sleep. I take the homeopathic Sulpher with Hyland's Bioplasma cell salts and it makes a huge difference too in improving my skin as well as sleep. If I still can't sleep, I take their insomnia remedy. For homeopathics to work one has to be off all caffeine (including chocolate) as well as mint (full of salicylates anyway).

And for some reason, although I tolerate maple syrup quite well, I don't tolerate sugar at all. If I have even a smidgen of it I don't sleep and twitch away...

Bea

0

Share this post


Link to post
Share on other sites

Just a quick update. After a little thinking I remembered linseed tea that my nutritionist had me on when pregnant with my daughter four years ago. That seems to have calmed a lot of my symptoms down of itching and twitching. The acupuncturist said my blood was dirty last time. Apparently the mucilage from the linseed helps absorb and elimination of toxins from the liver, without allowing their reabsorption in to the blood stream from the gut. Awesome! I'm also taking some goldenseal and echinacea for an earache related to a cold my children have come out with. Strangely I'm not getting any adverse affects from the echinacea... i.e. no blowing up of symptoms. Might mean that finally my gut is starting to heal... only 12 weeks since I gave up gluten for good so there is light! I tried upping the Vitamin B's but had some dreadful lucid dreaming going on so thought probably better to just take one good multivit for the time being. :D Thanks so much for all your input.

0

Share this post


Link to post
Share on other sites

Just a quick update. After a little thinking I remembered linseed tea that my nutritionist had me on when pregnant with my daughter four years ago. That seems to have calmed a lot of my symptoms down of itching and twitching. The acupuncturist said my blood was dirty last time. Apparently the mucilage from the linseed helps absorb and elimination of toxins from the liver, without allowing their reabsorption in to the blood stream from the gut. Awesome! I'm also taking some goldenseal and echinacea for an earache related to a cold my children have come out with. Strangely I'm not getting any adverse affects from the echinacea... i.e. no blowing up of symptoms. Might mean that finally my gut is starting to heal... only 12 weeks since I gave up gluten for good so there is light! I tried upping the Vitamin B's but had some dreadful lucid dreaming going on so thought probably better to just take one good multivit for the time being. :D Thanks so much for all your input.

Linseed tea, very interesting. I will have to check into that. Thanks or sharing that info.

0

Share this post


Link to post
Share on other sites

Linseed tea, very interesting. I will have to check into that. Thanks or sharing that info.

Myself--I have always been sensitive to Linseed...AVR, Not meaning to put a wet blanket on it, however with Sals I learned much later you have to be careful of seeds and nuts in general...

Bea

0

Share this post


Link to post
Share on other sites

Myself--I have always been sensitive to Linseed...AVR, Not meaning to put a wet blanket on it, however with Sals I learned much later you have to be careful of seeds and nuts in general...

Bea

Yes, I agree with this. But the tea doesn't contain the linseed, only the mucilage. Anyhow, last night I had a reaction to something so I'll cut out the goldenseal/echinachea to see if it's that, otherwise it's the linseed! I did react to raw linseeds but I think that was the moulds as they were quite old. Yesterday I upped the Goldenseal/Ech mix a little, that might be what did it. Or it might just be me and the time in my cycle. My tummy tends to get wierd at the middle and the end. Or it could be the cold?!

0

Share this post


Link to post
Share on other sites

Thanks Caroline and Bea for the info!

0

Share this post


Link to post
Share on other sites

Yes, I agree with this. But the tea doesn't contain the linseed, only the mucilage. Anyhow, last night I had a reaction to something so I'll cut out the goldenseal/echinachea to see if it's that, otherwise it's the linseed! I did react to raw linseeds but I think that was the moulds as they were quite old. Yesterday I upped the Goldenseal/Ech mix a little, that might be what did it. Or it might just be me and the time in my cycle. My tummy tends to get wierd at the middle and the end. Or it could be the cold?!

I'm really agreeing with you now! I'm inflamed beyond belief this morning. Something I took/ate over the last few days has been working on my system. It could be a number of things so back I go to gluten-free sausages and peas for two meals a day and chicken for one. I am sooooo bored of eating like this!!! Any tips for keeping the constipation from setting in? I think taking anti-constipation stuff like aloe, magnesium, only adds to the inflamation and imbalance of water in the body/bowel.

0

Share this post


Link to post
Share on other sites

Yes, I agree with this. But the tea doesn't contain the linseed, only the mucilage. Anyhow, last night I had a reaction to something so I'll cut out the goldenseal/echinachea to see if it's that, otherwise it's the linseed! I did react to raw linseeds but I think that was the moulds as they were quite old. Yesterday I upped the Goldenseal/Ech mix a little, that might be what did it. Or it might just be me and the time in my cycle. My tummy tends to get wierd at the middle and the end. Or it could be the cold?!

Just be careful. I believe echinacea, despite all its wonders, is an immune stimulant--something we as celiacs need to avoid. I believe goldenseal is OK--though its worth checking out further considering your sals problem. Dandelion traditionally is safe however both for celiacs and borderline sals folks. Parsley and garlic are completely safe all around. If you can tolerate lemon or lime, make a hot drink with it -- it should help cut the mucous. Hot chicken/vegetable/rice soup is also of great help (celery, peeled chopped yam, cabbage, green onions if you can tolerate them, and string beans, with lots of garlic and parsley added in at the end). If none of this is sufficient, consider homeopathics. I know Hylands makes a "complete flu care". Just make sure you are taking no caffeine and no mint anything (or other herbs from the mint family) and it should work well.

Hope you get well soon!

Bea

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,873
    • Total Posts
      919,409
  • Topics

  • Posts

    • Help
      Ok so I had my colonoscopy & endoscopy last Thursday. Don't get results until July 13th as GI is on vacation. I've had bad pain in my lower left abdomen that wraps around to my lower back as well for the past 4 days..even hurts to touch lightly. Went back to the ER & they did an ultrasound & CT scan. The Doctor said that I have "prominent" lymph nodes in the area that is painful as well as thickening & inflammation of my Sigmond colon? Um ok what is that all about? Kind of freaking out over the whole swollen lymph nodes thing. Has anyone ever dealt with this before? 😒
    • Enormous Stool
      My 2 year old daughter has sufferd with extremely large stools for over a year. She will have a bm once or twice a week there has been blood sometimes i took her to the docs and they gave her some stool softner which didnt help they tried uping the dose which still didnt help and they told me it would eventually work which didnt she was then put on movicol which she was only supposed to get half a sachet still no diffrence i uped it to the the full sachet which helps a little she doesnt always have large stools but most of the time she does. She has got to a stage where she clenches and wont let it out because of how sore it is i try to put her on the toilet for it to come a little easier for her but she screams and will try hide herself in a corner and wont let you anywere near her it is heart breaking to watch her. If anyone has any in advice i would really like to hear.   Thanks.
    • News: Celiac.com: This Is the Most Severe Symptom of Gluten Intolerance You've Ever Heard Of
      Gluten is public enemy number one for women with celiac disease—an autoimmune ... A gluten-free diet dramatically improved her symptoms. View the full article
    • Starting Over with GI Dr.
      Everything I have learned I have learned through this forum or simply from my last EGD results and labs and then looking them up on the internet.  The drs have given no information except for do a gluten free diet.  My understanding is that a repeat EGD is needed to confirm healing.  When I was tested about this time last year I was a Marsh3b.  Which in my research is pretty serious.  I am still having ill effects from god only knows what these days.  I went strictly gluten free June 2015.  I have had glutenings (not by choice) and the last one I had was because of an antibiotic that I took that has sent me through the roof with anxiety issues.  I try to be as careful as possible but it is like it doesn't seem to matter how careful I am I am either aching and hurting in my joints, tired all the time or OK one minute and the next feel like crap and that my world is about to end.  It is very frustrating to say the least when you go to the dr and you are expecting support or some sort of answer and don't get one.  I have eliminated milk from my diet as of about a month and a half ago.  That seemed to help, some.  But I still have days where I hurt and ache in my elbows and in my hands.  I have moments when I am about to freeze to death and sit with a heater and where I live the temps outside are 90+ degrees plus humidity and the AC is not even on.  Most of this has just started happening I would say in the past 4 months or so.  At night when I go to bed I wear sweat pants and a sweat shirt and sleep under 4 blankets and a sheet.  They say my thyroid is fine.  I feel like I have some issues with my nervous system but to be honest with you I haven't seen drs enough to mention this to them because all they are worried about is if I have diarrhea.  Cycling Lady I will be keeping any all records that I have and continue to gather the ones for anything I have done in the future.  .  I have been through health issues with my husband and would keep all of his records and labs so we would have proof.  Just seems like doctors don't care anymore.  The last GP I went to actually listened to me and I will see her again next month after the EGD.  I did give ALL of my records, EGD, labs, medical records, etc. to the new GI prior to our first visit back in January.  She said she reviewed them.  And told me we would re-draw the labs and schedule EGD to check healing when I went to her this month.  We have scheduled the EGD but no mention of labs.  JMG I am having the procedure re-done so that I can see if I am healing.  Mostly because of all the ailments I still have or seem to be developing every day.  I used to be a person who could remember things and get things accomplished but lately that has not been happening and scares me more and more every day. I understand that no procedure is risk free.  I have had 2 C-sections, wisdom teeth removed and tubal ligation.  Each one had its own issues after they were done.  I am a person who has to see it to believe it I guess.  If I don't see it, it is hard for me to understand it.  It is hard to figure this out when I am the one who usually takes care of everyone else but then when I need to be taken care of, nobody knows what to do.  I think that is it in a nut shell.  All that ya'll have told me is a big help.  Around here I have no support groups or even a good friend I can talk to about stuff that would even come close to understanding.  My husband will listen, but he doesn't understand.   
    • Loved ones with Celiac in nursing home
      It will be in Gluten-Free Living later this year, October I think
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,908
    • Most Online
      1,763

    Newest Member
    jalvarez1010
    Joined