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Celiac & Fertility
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18 posts in this topic

So, I'm sure there is a lot of information on here & other discussions about this... but I'm really needing some encouragement to stay positive and be patient more than anything.

My husband and I have been trying to conceive for 3 months now. I've been charting my cycle & we've had very regular sex (every 1-2 days) before, during, and around the time of ovulation.

I haven't been on any birth control for 2 years & 3 months (since my celiac disease dx). I'm extremely careful about gluten and cc, and haven't been glutened in a very long time. I'm taking prenatal vitamins, I've abstained completely from alcohol, and have kept my caffeine intake down to either one cup of coffee per day, or two mugs of tea per day maximum. I am active, eat healthy, exercise regularly, don't smoke, etc. My husband is also healthy and we're both relatively young (I'm 28 and he's 31).

I know these things take time, but each month I've been so "sure" I'm pregnant, and then the HPT is negative and I'm seriously disappointed. :( I can't figure out what, if anything, we're doing wrong ... or if I just need to relax and be patient (which is probably the most likely thing).

But if anyone does have any tips for increasing fertility, I'm all ears!! (or eyes :ph34r:)

Thanks

:)

Edited to add: My last test of ttg levels were nil, so I haven't had any contact as of that time, and my last vitamin panel (which was right before we started trying to conceive 3 months ago) was perfectly normal.

Edited by JillianLindsay
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Robitussin. Check and see if it's gluten-free.

Take it as you approach ovulation, stop after you know you ovulated. Increases cervical mucus.

And 3 months really is just the beginning - I hit it on 11 months. When I gave up. And took Robitissin.

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Interesting! When I googled Robitussin & cervical mucous, I found this: http://www.fertilityplus.org/faq/cm.html

I wonder if this product is gluten-free! http://www.early-pregnancy-tests.com/cervicalmucus.html

Has anyone ever taken it?

Thanks for the info :)

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3 months is a very short time. I would not start to worry until it's been a year or more. Are you using the methods in the book "Taking Charge of your fertility" to chart your cycle? You can learn a lot from that book if you have not read it yet.

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3 months is not long. IIRC, it takes about 6months for 60% of couples to conceive. (90% by 9 months of trying.) So be patient. If you're just using OPK's for checking ovulation, do try charting to help you see if you can learn any more - and get more advanced notice on ovulation, for many women.

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Thanks, a friend just recommended that book for me and it is on order from chapters online (I am at a conference right now and can't go shopping for it). I also have just started to track using their online calendars at http://www.tcoyf.com

Thanks

Also, what about charting basal body temperature?

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I charted bbt, watched mucus....

In the end I knew the cm was the problem (if it wasn't endometriosis).

I also had TCOYF. Great book.

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Thanks! I'll start tracking my bbt too when I'm home from this conference ;)

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Also, got a helpful & quick response from service@early-pregnancy-tests.com

"Hi there,

Thank you for your note. The Fertilaid for Women is gluten free, however the FertileCM is deemed as not.

Please let me know if you have any further questions!

Thanks,

Pat Phillips

Customer Support"

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Everyone I know who struggled to get pregnant (3 mos, 6 mos, 2 yrs+ of trying) all had a lot of success when they just said, F*** it, I'm not going to think about it this month. I'm just going to relax and not chart anything, etc etc.

And yes, have a drink. Or two. ;)

The month I gave up (it was a December) I thought, what the heck, and had me lots o' eggnog with rum. Also had some wine with dinner. Found out shortly after Christmas I was preggers.

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Yep, there is such a thing as 'trying too hard' ;)

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Thanks folks. Another "miss" this month, but I have purchased some Robitussin and a digital ovulation kit. I also relaxed and had a drink and plan to have more fun with it this month!

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Oh yes, try to have fun! I know it's ridiculous to tell you to relax, so I won't. But DO have fun!!!

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Thanks folks. Another "miss" this month, but I have purchased some Robitussin and a digital ovulation kit. I also relaxed and had a drink and plan to have more fun with it this month!

You too? I was just coming on to say that we didn't either this month...period started overnight last night. :(

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Another disappointment :(

I have read that maca root can help boost fertility, has anyone tried this? Anyone know of a macasure product that is gluten-free?

Thanks

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Update:

I got pregnant in January, and miscarried (chemical pregnancy) at 5 weeks on Jan. 31st :(

Then, just yesterday I found out I'm pregnant again!

Fingers crossed this one is a sticky, sticky bean. I've read that 85% of pregnancies following an early m/c go to full-term, so the stats are on our side!

:D

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Hang in there and think positive. A previous poster with miscarriages recently gave birth to twins, so I'm sending you similar multiple good thoughts. :P:)

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    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
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