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Symptom Frustration Cramps


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2 replies to this topic

#1 PT2B

 
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Posted 16 October 2011 - 05:41 PM

I was going on long and well until i decided to cook some Italian sausage that "did not" list any gluten items. Of course here i am with that hard to describe crampy gi feeling. Of course symptoms comes with the lack of motivation to do the necessities.
My only solution is to eat as much non gluten free stuff to flush it all out. carrots fruit fiber capsules caffeine, the works.
I hear of people supplementing b12, digestive enzymes, fish oil. what has worked for anyone else? I'll make sure to look at older posts too.

Gluten free lifestyle can be frustrating and lonely any responses are welcomed
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#2 ravenwoodglass

 
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Posted 17 October 2011 - 02:17 PM

Sorry you are feeling so awful. How long have you been gluten free? We can have some ups and downs for awhile. Did you have that sausage with gluten-free pasta? If you did is the strainer you used a new one? We need a new one to prevent CC from the gluten pastas we ate before diagnosis.
It is also possible that the sausage spices and grease were just too much for your system if you are new to the diet and still healing.
I hope your feeling better soon.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 AVR1962

 
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Posted 21 October 2011 - 11:04 PM

Could it bee spice you are feeling? For the longest time I could not put spiec in my diet, still have to be careful.
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Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.




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