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glutenfreemamax2

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glutenfreemamax2 Enthusiast

Just wanted to say I appreciate all of you. The more i read on here, the more I hear people talk about these "weird" symptoms I have had all my life. Im labeled a hypochondriac by my dr's and some family. It's nice to know I'm not the only one suffering.

Thanks again for all your posts. You guys have such great information and everyone brings something to the table.

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captaincrab55 Enthusiast

Just wanted to say I appreciate all of you. The more i read on here, the more I hear people talk about these "weird" symptoms I have had all my life. Im labeled a hypochondriac by my dr's and some family. It's nice to know I'm not the only one suffering.

glutenfreemamax2, I feel your pain and it's Great to have Friends here that care & understand... I grew up hearing friends & family openly calling my Mom a Hypochondriac.. I learned at an early age that my Mom was different then other Moms in my neighborhood.. Back in the mid 90s my Mom (then in her mid 70s) was diagnosed as most likely having Rickets as a young child, by a Doctor from Johns Hopkins... She never did get diagnosed with Celiac.. I since learned that her Mom suffered from many different ills and died at was considered an early age back in the mid 1940s..

At an early age I overheard 2 different Doctors telling my parents that I had growing pains and just wanted attention.. After hearing family labeling me as a Hypochondriac at a very young age, I stopped complaining and kept it to myself... It wasn't till June of 09 that my 4th Dermatologist in 30 years diagnosed me with DH by biopsy & blood lab on my second visit... He was the first Doctor to hear me out, how I itched all my life and broke out.. He then questioned me about other possibe health issues and directed me to a GI..

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ravenwoodglass Mentor

Realizing your not alone is one of the best things about this site. So many of us have been sick for so long and are labeled hypocondriacs by doctors that we eventually lose hope of ever feeling well. Once you get that label it tends to follow you and doctors wonder why some of us don't want them to see our records from past doctors. I hope there is soon a day when doctors look for celiac first rather than last and stop telling us to live off immodium and handing us scripts for antidepressants because they think everything is 'all in our heads'.

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saintmaybe Collaborator

Realizing your not alone is one of the best things about this site. So many of us have been sick for so long and are labeled hypocondriacs by doctors that we eventually lose hope of ever feeling well. Once you get that label it tends to follow you and doctors wonder why some of us don't want them to see our records from past doctors. I hope there is soon a day when doctors look for celiac first rather than last and stop telling us to live off immodium and handing us scripts for antidepressants because they think everything is 'all in our heads'.

No offense to the many, many men that suffer celiac, but I think there's a huge degree a misogyny in the way celiac, and indeed a lot of the autoimmunes are treated, to this day.

I can't tell you the number of times I've heard, oh, it's just feminine problems. It's hysteria. It's hypochondria.

You know what? No. These are REAL physical problems, with real physical pains. There s nothing imaginary about diarrhea every day for months on end, 40 pounds of rapid weight loss, hair falling out, or dizziness to the point of falling over! But these have all been explained away as vague stomach problems, why aren't you happy- you're a girl?, vanity, and "clumsiness." Give me a break.

If we took women's health as seriously as we took men's, no one would consistently say that to the face of a whole class of people.

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Jestgar Rising Star

Just wanted to say I appreciate all of you. The more i read on here, the more I hear people talk about these "weird" symptoms I have had all my life. Im labeled a hypochondriac by my dr's and some family. It's nice to know I'm not the only one suffering.

Thanks again for all your posts. You guys have such great information and everyone brings something to the table.

There is an amazing group of knowledgeable people here. :)

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      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      What kind of stool test was done? Can you be more specific? 
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      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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