Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Just Wanted To Say Thanks!

glutenfreemamax2

Recommended Posts

glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted

Just wanted to say I appreciate all of you. The more i read on here, the more I hear people talk about these "weird" symptoms I have had all my life. Im labeled a hypochondriac by my dr's and some family. It's nice to know I'm not the only one suffering.

Thanks again for all your posts. You guys have such great information and everyone brings something to the table.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Enthusiast
captaincrab55
Posted

Just wanted to say I appreciate all of you. The more i read on here, the more I hear people talk about these "weird" symptoms I have had all my life. Im labeled a hypochondriac by my dr's and some family. It's nice to know I'm not the only one suffering.

glutenfreemamax2, I feel your pain and it's Great to have Friends here that care & understand... I grew up hearing friends & family openly calling my Mom a Hypochondriac.. I learned at an early age that my Mom was different then other Moms in my neighborhood.. Back in the mid 90s my Mom (then in her mid 70s) was diagnosed as most likely having Rickets as a young child, by a Doctor from Johns Hopkins... She never did get diagnosed with Celiac.. I since learned that her Mom suffered from many different ills and died at was considered an early age back in the mid 1940s..

At an early age I overheard 2 different Doctors telling my parents that I had growing pains and just wanted attention.. After hearing family labeling me as a Hypochondriac at a very young age, I stopped complaining and kept it to myself... It wasn't till June of 09 that my 4th Dermatologist in 30 years diagnosed me with DH by biopsy & blood lab on my second visit... He was the first Doctor to hear me out, how I itched all my life and broke out.. He then questioned me about other possibe health issues and directed me to a GI..

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

Realizing your not alone is one of the best things about this site. So many of us have been sick for so long and are labeled hypocondriacs by doctors that we eventually lose hope of ever feeling well. Once you get that label it tends to follow you and doctors wonder why some of us don't want them to see our records from past doctors. I hope there is soon a day when doctors look for celiac first rather than last and stop telling us to live off immodium and handing us scripts for antidepressants because they think everything is 'all in our heads'.

Link to comment
Share on other sites
saintmaybe Collaborator
saintmaybe
Posted

Realizing your not alone is one of the best things about this site. So many of us have been sick for so long and are labeled hypocondriacs by doctors that we eventually lose hope of ever feeling well. Once you get that label it tends to follow you and doctors wonder why some of us don't want them to see our records from past doctors. I hope there is soon a day when doctors look for celiac first rather than last and stop telling us to live off immodium and handing us scripts for antidepressants because they think everything is 'all in our heads'.

No offense to the many, many men that suffer celiac, but I think there's a huge degree a misogyny in the way celiac, and indeed a lot of the autoimmunes are treated, to this day.

I can't tell you the number of times I've heard, oh, it's just feminine problems. It's hysteria. It's hypochondria.

You know what? No. These are REAL physical problems, with real physical pains. There s nothing imaginary about diarrhea every day for months on end, 40 pounds of rapid weight loss, hair falling out, or dizziness to the point of falling over! But these have all been explained away as vague stomach problems, why aren't you happy- you're a girl?, vanity, and "clumsiness." Give me a break.

If we took women's health as seriously as we took men's, no one would consistently say that to the face of a whole class of people.

Link to comment
Share on other sites
Jestgar Rising Star
Jestgar
Posted

Just wanted to say I appreciate all of you. The more i read on here, the more I hear people talk about these "weird" symptoms I have had all my life. Im labeled a hypochondriac by my dr's and some family. It's nice to know I'm not the only one suffering.

Thanks again for all your posts. You guys have such great information and everyone brings something to the table.

There is an amazing group of knowledgeable people here. :)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,069
    • Most Online (within 30 mins)
      7,748
    angie78
    Newest Member
    angie78
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      This forum might be the last hope I have in my life. Please I beg you

      By knitty kitty · Posted

      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      14 year old with Celiac & EOE still suffering...

      By Scott Adams · Posted

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...