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If Cross-Contaminated How Long Do Ur Symptoms Last?


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12 replies to this topic

#1 Applegirl

 
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Posted 20 October 2011 - 08:19 AM

I fear I could have possibly been cross contaminated. I'm not exactly sure how but I have a 2 year old and she does eat gluten so lord knows if I touched her stuff then put my hands in my mouth etc . I've begun getting bad sores on my tongue again and for the past I'd say 5 or so days I've been really sick again feeling shakey and weak, fatigue and mucus in stool and some dizziness again. I can't for certain gluten is what I'm allergic/intolerant too but this is a trial run of sorts. I felt fantastic for 5 days after coming off of it , but I'm on the decline again it seems. So how long do ur symptoms last if you are cross-contaminated?
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#2 GlutenDude

 
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Posted 20 October 2011 - 09:30 AM

You're probably going to get 12 different answers from 12 different people. If there is one thing I've learned over the years from this hideous disease, its that there are no "standard" answers to these types of questions. Not that they shouldn't be asked. It can be frustrating. For me...it depends on how much I've ingested. If a bit...I'm out of commission for a few days. If a lot...a few months. Let's hope for you it was just a dusting and you're back on your applefeet in a day or two.
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#3 Applegirl

 
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Posted 20 October 2011 - 09:41 AM

:unsure: yah I'm sure I will , just interested to see how different people react tho. I can't really say like I said if i was highly contaminated or just a little. Wish I knew if this was even the answer
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#4 Bubba's Mom

 
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Posted 20 October 2011 - 11:08 AM

My most recent "glutening" was from trace amounts in a Bob's Red Mill gluten-free flour mix used to make cookies. I had only one cookie, so the amount that entered my system had to be VERY small. My effects lasted about 24 hours.

It's really hard when you get cc by something and don't know what it is. It could be something very small that you're getting each day..or it could be one thing that's giving you symptoms from just one dose?
It's got to be very hard for you with a little one? Their little hands go everywhere..and so many things go into their mouths and could cc you.

Drink a lot of water to help flush your system.
(((hugs)))
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#5 GlutenDude

 
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Posted 20 October 2011 - 11:23 AM

My most recent "glutening" was from trace amounts in a Bob's Red Mill gluten-free flour mix used to make cookies. I had only one cookie, so the amount that entered my system had to be VERY small. My effects lasted about 24 hours.

It's really hard when you get cc by something and don't know what it is. It could be something very small that you're getting each day..or it could be one thing that's giving you symptoms from just one dose?
It's got to be very hard for you with a little one? Their little hands go everywhere..and so many things go into their mouths and could cc you.

Drink a lot of water to help flush your system.
(((hugs)))


Not to get off topic, but curious. How did you trace it to the flour?
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#6 Bubba's Mom

 
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Posted 20 October 2011 - 01:23 PM

I went to a gluten free bakery called Organic Bliss. My first time having anything not made by myself since my DX 3.5 months ago. I had been sticking with whole foods mostly. I got a variety of cookies, and 3 scones. I had a scone with tea that afternoon, and after supper I had 2 cookies. A short while later I started getting hyper and spent a whole night wide awake and very sick. I called the bakery in the morning to make sure what I got was truly gluten-free because I had a reaction. I talked to the baker. She asked what I had eaten and I told her. She said the cut-out cookie was made with the Bob's flour and she's heard that others react to it sometimes.

It makes me wonder if the flour is really that contaminated or if I'm going to be one of those people very g-sensitive?
I saw a display in a store and they had bags of just pure gluten for adding to baked goods for extended shelf life. That and gluten-free in the same building is pretty scary to me!
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#7 Wakingup

 
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Posted 21 October 2011 - 08:35 AM

My most recent "glutening" was from trace amounts in a Bob's Red Mill gluten-free flour mix used to make cookies. I had only one cookie, so the amount that entered my system had to be VERY small. My effects lasted about 24 hours.

It's really hard when you get cc by something and don't know what it is. It could be something very small that you're getting each day..or it could be one thing that's giving you symptoms from just one dose?
It's got to be very hard for you with a little one? Their little hands go everywhere..and so many things go into their mouths and could cc you.

Drink a lot of water to help flush your system.
(((hugs)))


Are you saying that there is gluten in Bob's Red Mill gluten free flour? I just bought some and if that's the case, I 'll be returning it.
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#8 sa1937

 
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Posted 21 October 2011 - 10:57 AM

Are you saying that there is gluten in Bob's Red Mill gluten free flour? I just bought some and if that's the case, I 'll be returning it.

I believe they test to <20 ppm and from reading the forum, it's manufactured in a facility that also process gluten-free oats. There is no test for zero ppm in gluten-free products.
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Sylvia
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#9 Bubba's Mom

 
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Posted 21 October 2011 - 01:38 PM

Yes..there seems to be some gluten in the gluten-free flour. I've seen quite a few people say they react to BRM products. :o
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#10 Wakingup

 
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Posted 23 October 2011 - 12:22 AM

Yes..there seems to be some gluten in the gluten-free flour. I've seen quite a few people say they react to BRM products. :o


Excuse my French but WTF?
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#11 sa1937

 
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Posted 23 October 2011 - 04:41 AM

Excuse my French but WTF?

There are no tests available that are sensitive enough to test for zero ppm. People can develop sensitivities to most anything. BRM gluten-free products are manufactured in a facility that also processes gluten-free oats. And those who have problems with oats could very well react to BRM gluten-free flours.
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Sylvia
Positive Celiac Blood Panel - Dec., 2009
Endoscopy with Positive Biopsy - April 9, 2010
Gluten Free - April 9, 2010

#12 Applegirl

 
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Posted 23 October 2011 - 05:30 AM

Thanks guys, unfortunatly I don't believe gluten is my problem anymore :unsure: . I've been terribly sick now for at least 2 weeks , in the ER twice and they can't find anything in my blood. I've had extreme weakness and shakiness (vibrating on the inside feeling) to the point that I'm not really able to get out of bed much, my inlaws have now taken my daughter. I'm constantnly pale and I'm loosing weight (which could aslo be from being on the gluten diet) but I've gone from 158 lbs to 146 in about 2 1/2 weeks. Yet the doctors aren't "alarmed" I dunno whats normal about a 28 year old not being able to get out of bed for 3 weeks but it must be the everyday thing. Then two days ago not 3 hours after being discharged from the er with a dignosis of general weakness and a script to take valium 4 times a day (yeah right) I started getting blood in my stool. I called them back in tears and once again not alarmed said I probably have a stomach virus and to take Cipro. Which I have been since fri and I'm not feeling any better at all. So I'm really scared right now I don't know whats going on but I don't think gluten is the problem anymore
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#13 DonnaMM

 
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Posted 07 November 2011 - 06:30 AM

Ummm yea I can't believe that anyone is not concerned about this. Usually rapid weight loss is a huge sign for cancer (not saying you have cancer) but it surprises me they are not more concerned. I would recommend a different hospital if they have one in your hospital. I am a nurse so I can give you a few tips to make sure they listen and admit you to the hospital. Tell them you have the worst abdominal pain in your life that will get them to listen up. Also double your weight loss when you tell them how much you lost. ( just lie) you should always say that you have been having black stools that is a sign of an upper gi bleed and is more alarming to doctors then bright red blood cause that usually means the bleeding is from the rectum and usually harmless ( like from a hemorrhoid or anal fissure). Hopefully if you say all these things it might get them to perk up. But if you have a primary doctor it might not be a bad idea to go see him they will usually listen a bit better. Oh and cipro is the wrong drug for a stomach bug. Cipro is for uti's and flagyl is for stomach infections
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Allergies to corn, tree nuts, shellfish, bees- 2010
Positive Lupus Anticoagulant-2011
Erosive esophagitis-2011
Severe iron deficiency anemia- 2012
Inappropriate sinus tachycardia-2013
Tested for celiac three times, blood and biopsies all negative
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