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If Cross-Contaminated How Long Do Ur Symptoms Last?
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I fear I could have possibly been cross contaminated. I'm not exactly sure how but I have a 2 year old and she does eat gluten so lord knows if I touched her stuff then put my hands in my mouth etc . I've begun getting bad sores on my tongue again and for the past I'd say 5 or so days I've been really sick again feeling shakey and weak, fatigue and mucus in stool and some dizziness again. I can't for certain gluten is what I'm allergic/intolerant too but this is a trial run of sorts. I felt fantastic for 5 days after coming off of it , but I'm on the decline again it seems. So how long do ur symptoms last if you are cross-contaminated?

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You're probably going to get 12 different answers from 12 different people. If there is one thing I've learned over the years from this hideous disease, its that there are no "standard" answers to these types of questions. Not that they shouldn't be asked. It can be frustrating. For me...it depends on how much I've ingested. If a bit...I'm out of commission for a few days. If a lot...a few months. Let's hope for you it was just a dusting and you're back on your applefeet in a day or two.

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:unsure: yah I'm sure I will , just interested to see how different people react tho. I can't really say like I said if i was highly contaminated or just a little. Wish I knew if this was even the answer
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My most recent "glutening" was from trace amounts in a Bob's Red Mill gluten-free flour mix used to make cookies. I had only one cookie, so the amount that entered my system had to be VERY small. My effects lasted about 24 hours.

It's really hard when you get cc by something and don't know what it is. It could be something very small that you're getting each day..or it could be one thing that's giving you symptoms from just one dose?

It's got to be very hard for you with a little one? Their little hands go everywhere..and so many things go into their mouths and could cc you.

Drink a lot of water to help flush your system.

(((hugs)))

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My most recent "glutening" was from trace amounts in a Bob's Red Mill gluten-free flour mix used to make cookies. I had only one cookie, so the amount that entered my system had to be VERY small. My effects lasted about 24 hours.

It's really hard when you get cc by something and don't know what it is. It could be something very small that you're getting each day..or it could be one thing that's giving you symptoms from just one dose?

It's got to be very hard for you with a little one? Their little hands go everywhere..and so many things go into their mouths and could cc you.

Drink a lot of water to help flush your system.

(((hugs)))

Not to get off topic, but curious. How did you trace it to the flour?

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I went to a gluten free bakery called Organic Bliss. My first time having anything not made by myself since my DX 3.5 months ago. I had been sticking with whole foods mostly. I got a variety of cookies, and 3 scones. I had a scone with tea that afternoon, and after supper I had 2 cookies. A short while later I started getting hyper and spent a whole night wide awake and very sick. I called the bakery in the morning to make sure what I got was truly gluten-free because I had a reaction. I talked to the baker. She asked what I had eaten and I told her. She said the cut-out cookie was made with the Bob's flour and she's heard that others react to it sometimes.

It makes me wonder if the flour is really that contaminated or if I'm going to be one of those people very g-sensitive?

I saw a display in a store and they had bags of just pure gluten for adding to baked goods for extended shelf life. That and gluten-free in the same building is pretty scary to me!

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My most recent "glutening" was from trace amounts in a Bob's Red Mill gluten-free flour mix used to make cookies. I had only one cookie, so the amount that entered my system had to be VERY small. My effects lasted about 24 hours.

It's really hard when you get cc by something and don't know what it is. It could be something very small that you're getting each day..or it could be one thing that's giving you symptoms from just one dose?

It's got to be very hard for you with a little one? Their little hands go everywhere..and so many things go into their mouths and could cc you.

Drink a lot of water to help flush your system.

(((hugs)))

Are you saying that there is gluten in Bob's Red Mill gluten free flour? I just bought some and if that's the case, I 'll be returning it.

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Are you saying that there is gluten in Bob's Red Mill gluten free flour? I just bought some and if that's the case, I 'll be returning it.

I believe they test to <20 ppm and from reading the forum, it's manufactured in a facility that also process gluten-free oats. There is no test for zero ppm in gluten-free products.

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Yes..there seems to be some gluten in the gluten-free flour. I've seen quite a few people say they react to BRM products. :o

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Yes..there seems to be some gluten in the gluten-free flour. I've seen quite a few people say they react to BRM products. :o

Excuse my French but WTF?

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Excuse my French but WTF?

There are no tests available that are sensitive enough to test for zero ppm. People can develop sensitivities to most anything. BRM gluten-free products are manufactured in a facility that also processes gluten-free oats. And those who have problems with oats could very well react to BRM gluten-free flours.

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Thanks guys, unfortunatly I don't believe gluten is my problem anymore :unsure: . I've been terribly sick now for at least 2 weeks , in the ER twice and they can't find anything in my blood. I've had extreme weakness and shakiness (vibrating on the inside feeling) to the point that I'm not really able to get out of bed much, my inlaws have now taken my daughter. I'm constantnly pale and I'm loosing weight (which could aslo be from being on the gluten diet) but I've gone from 158 lbs to 146 in about 2 1/2 weeks. Yet the doctors aren't "alarmed" I dunno whats normal about a 28 year old not being able to get out of bed for 3 weeks but it must be the everyday thing. Then two days ago not 3 hours after being discharged from the er with a dignosis of general weakness and a script to take valium 4 times a day (yeah right) I started getting blood in my stool. I called them back in tears and once again not alarmed said I probably have a stomach virus and to take Cipro. Which I have been since fri and I'm not feeling any better at all. So I'm really scared right now I don't know whats going on but I don't think gluten is the problem anymore

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Ummm yea I can't believe that anyone is not concerned about this. Usually rapid weight loss is a huge sign for cancer (not saying you have cancer) but it surprises me they are not more concerned. I would recommend a different hospital if they have one in your hospital. I am a nurse so I can give you a few tips to make sure they listen and admit you to the hospital. Tell them you have the worst abdominal pain in your life that will get them to listen up. Also double your weight loss when you tell them how much you lost. ( just lie) you should always say that you have been having black stools that is a sign of an upper gi bleed and is more alarming to doctors then bright red blood cause that usually means the bleeding is from the rectum and usually harmless ( like from a hemorrhoid or anal fissure). Hopefully if you say all these things it might get them to perk up. But if you have a primary doctor it might not be a bad idea to go see him they will usually listen a bit better. Oh and cipro is the wrong drug for a stomach bug. Cipro is for uti's and flagyl is for stomach infections

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    • Hi, Ok good advice and I am sincere when I say how much I appreciate a lot of the responses, advice and encouragement that have been posted here. I'm not sure what a nutrionist is but a dietician (here in the U.K.) is a heavily regulated medical profession and my dietician is based most of her week in a hospital where doctors and MD's as they are known refer patients to her for help. She works every day with celiacs, dh sufferers and people with crohns, ibs etc and seeing my skin, listened to what I was saying (particularly about how my redness and blisters resolved on a gluten free (though not wheat free) diet for several years, and sent a report to my doctor/MD requesting a battery of tests - tests that can indicate dh, celiac and associated complications. I also have a friend with a wheat allergy and two with celiac (all diagnosed) and they are encouraging me to go ahead with getting these particular tests. So that's great but reading the above quote that suggests that situations like sharing an oven used to cook gluten-containing pizza, should not cause a gluten reaction. I thought, my god what's the point of going through these tests if my recent reactions aren't actually to do with gluten. Although my dietician is concerned about possible dh and has been through years of medical school, I also really trust the advice of an advanced member on this site and if they think oven-sharing shouldn't cause any gluten reaction, what hope do I have with an MD? It has taken me years to pluck up the confidence to ask for any medical help because I feared that sort of response along with a focus on psychological issues and hormones etc early on in the thread (even though, I only started feeling depressed since yesterday). Actually, I'm a mental health nurse so it's good to see people are alert to these issues but I am also pretty familiar with depression and I know that many people with physical health problems are fobbed off by doctors with talk of depression, stress, and hormones. I'm sorry that I took the (above) quote to heart and I know that I allowed that to colour my perception of the whole thread, which has been helpful in many ways. Best wishes to you all, even those I didn't agree with! Rhian 
    • I thought maybe doing a trial period to see if he reacts positively to being gluten free and then adding it back to see if symptoms come back would maybe be helpful to the doctor? But I guess that's true, it might skew things regarding any future tests that might be warranted. 
    • If you haven't had her tested yet please do not go gluten free. Get the celiac testing first as if she does feel better gluten free when she has to go back on gluten for testing she may have much worse symptoms.  There will also be a higher risk of false negatives.
    • I did not mean to imply that you should put him on a gluten free diet.    If you suspect a problem with gluten, please get an opinion from a GI who is celiac savvy.  All celiac testing requires a patient to be consuming gluten.  The slightly equivocal TTG?  That warrants a gene test at the very least.   http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf  
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