Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Gut Healing Support
0

14 posts in this topic

what can I do to improve the gut-healing process? I don't necessarily want to speed it up (I can be patient), but I want to know how best to support it. My doctors aren't any help in this area. I went gluten-free in July, but since then I've found gluten in OTC's I was taking, plus cross-contamination episodes. So I probably have only been gluten-free for a few weeks at this point (how frustrating!!). What can I do to help my gut heal? Do I need to remove dairy? I am severely hypoglycemic (reactive, need a lot of protein and low carbs), iron-deficient anemic, malabsorption/malnourished, and losing weight faster than I'm comfortable with. I'm hungry all the time and don't want to take dairy out of my diet if I can avoid it. What else can I do? Probiotics/Enzymes? What kinds and how much? What kind of practitioner should I seek out for help locally--Naturopathic? Kinesiologist? Thank you!

1

Share this post


Link to post
Share on other sites


Ads by Google:

A Naturapath would probably be a good bet. Mine keeps mentioning "building the gut" and I keep on running.

Would you elaborate on your hypoglycemia? I appear to be heading down that road myself, and need pointers. How were you dx'ed with hypoglycemia?

I was emailing with my ND today and she kept saying liver/thyroid/gallbladder and adjusting to gluten-free and healing and it taking a while. She said the nausea was from the impaired liver function and the gallbladder. I'm thrilled.

1

Share this post


Link to post
Share on other sites

At celiac conferences, it is often mentioned that L-glutamine helps to heal the gut. I had been gluten free for three years when an integrated medicine doctor recommended that I take Metagenics UltraClear Sustain Medical Food, which contains L-glutamine. He told me that it would make me feel as though I didn't have celiac....and he was right. I put one tablespoon into a smoothie every day, and I felt fantastic after only a few weeks. I continued to take it for about a year, and even when I discontinued it, I continued to feel great.

1

Share this post


Link to post
Share on other sites

At celiac conferences, it is often mentioned that L-glutamine helps to heal the gut. I had been gluten free for three years when an integrated medicine doctor recommended that I take Metagenics UltraClear Sustain Medical Food, which contains L-glutamine. He told me that it would make me feel as though I didn't have celiac....and he was right. I put one tablespoon into a smoothie every

day, and I felt fantastic after only a few weeks. I continued to take it for about a year, and even when I discontinued it, I continued to feel great.

Wow. Gotta get me some of that! Seriously!

1

Share this post


Link to post
Share on other sites

what can I do to improve the gut-healing process? I don't necessarily want to speed it up (I can be patient), but I want to know how best to support it. My doctors aren't any help in this area. I went gluten-free in July, but since then I've found gluten in OTC's I was taking, plus cross-contamination episodes. So I probably have only been gluten-free for a few weeks at this point (how frustrating!!). What can I do to help my gut heal? Do I need to remove dairy? I am severely hypoglycemic (reactive, need a lot of protein and low carbs), iron-deficient anemic, malabsorption/malnourished, and losing weight faster than I'm comfortable with. I'm hungry all the time and don't want to take dairy out of my diet if I can avoid it. What else can I do? Probiotics/Enzymes? What kinds and how much? What kind of practitioner should I seek out for help locally--Naturopathic? Kinesiologist? Thank you!

I was doing some reading on this today and I don't really have any answers unfortunately. A lot of what I read came from Heidi of adventures of a gluten free mom and her journey to heal herself and her family. The clinic they went to suggests a few different tests to rule out any related obstacles (gut flora was the new one I've never heard of). The clinic also suggests eliminating dairy since casein is partially cross reactive with gluten. I'm not too sure of the science behind cross reactivity but it certainly makes sense and cutting out dairy is the easiest step in their list.

0

Share this post


Link to post
Share on other sites




If you really want to concentrate on healing your gut, you really do need to avoid dairy. Realize it is not forever, it is only temp. I would definately invest in a good quality probiotic, not the stuff that sits on grocery store shelves. You need to build the good bacteria and the probiotics will help you with that. Are you taking vit supplements for your anemia? or any other supplements? Any burning going on in the stomach?

0

Share this post


Link to post
Share on other sites

Thank you for your replies! I'll look into L glutamine.

PricklyPear, my hypoglycemia escalated last fall and landed me in the emergency room with a hypoglycemic attack--I thought I was having a stroke (facial numbness, cold sweats). I insisted that my dr. do a full blood glucose test even though they fluffed it off, and this is what started my path to removing gluten. My blood sugar dropped down into the 50s during the test and I almost passed out in the lobby where they had me wait. Make sure to accept the bed they offer you in the lab during the testing period! I have to eat carefully regulated fat/protein/carb meals every 2 hours. When I have a gluten-exposure, by blood sugar is terrible--it yo-yos, and my vertigo, dizziness, and blurred vision return. During the worst of it, I could hardly sit upright for fear of falling over.

AVR, I will definitely look into the probiotics, just not sure where to go? Health food stores? I have been taking iron supplements for almost a year now, and of course a multi and some C and D. this time last year I was nearly bed-ridden with hypo, body pain, stomach problems and fatigue. Doing a lot better now, as long as I don't have a gluten exposure. I did stop eating high-lactose dairy this week. My stomach only "burns" (not sure I would call it that though??) when I have a gluten exposure, as far as I can tell. I have nausea, cramping, and D for about a week, plus all of the peripheral symptoms. Then I feel great again. I also have some ataxia concerns, seeing a neurologist next month. But despite all this, and all of the doctors, I don't feel like there is anyone committed to helping me through the gut-healing process, you know? they all just sort of scratch their heads because they can't throw pills at it. I have heard kinesiologists are helpful.

0

Share this post


Link to post
Share on other sites

When I have a gluten-exposure, by blood sugar is terrible--it yo-yos, and my vertigo, dizziness, and blurred vision return. During the worst of it, I could hardly sit upright for fear of falling over.

AVR, I will definitely look into the probiotics, just not sure where to go? Health food stores? I have been taking iron supplements for almost a year now, and of course a multi and some C and D. this time last year I was nearly bed-ridden with hypo, body pain, stomach problems and fatigue. Doing a lot better now, as long as I don't have a gluten exposure. I did stop eating high-lactose dairy this week. My stomach only "burns" (not sure I would call it that though??) when I have a gluten exposure, as far as I can tell. I have nausea, cramping, and D for about a week, plus all of the peripheral symptoms. Then I feel great again. I also have some ataxia concerns, seeing a neurologist next month. But despite all this, and all of the doctors, I don't feel like there is anyone committed to helping me through the gut-healing process, you know? they all just sort of scratch their heads because they can't throw pills at it. I have heard kinesiologists are helpful.

I would be very interested in hearing what your neurologist tells you at your appt. I have been dealing with ataxia & vertigo issues for 8 months now. I have had very little help from my docs. I did increase my vit D intake which has helped.

0

Share this post


Link to post
Share on other sites

So, I was curious and asked my ND about the Metagenics product. She knows a rep for them (who is also Celiac and an ND) and this is what she said and reco'd to me:

They are top-of-the-line as far as supplements go.

0

Share this post


Link to post
Share on other sites

I would be very interested in hearing what your neurologist tells you at your appt. I have been dealing with ataxia & vertigo issues for 8 months now. I have had very little help from my docs. I did increase my vit D intake which has helped.

I definitely will. I am skeptical too; the docs where I live don't seem to know anything about celiac/gluten intolerance--sometimes I think I know more than they do. I'm concerned the neuro won't be open to gluten ataxia, even though it's been documented. That's just my experience lately, the docs around here won't take this stuff seriously unless you have the standard blood work/biopsy affirmation, which I did not. Plus, HMO's make it impossible for docs to stay up on the latest stuff. My PCP is on board, but he can only do so much. *sigh* Can you tell I'm a little jaded? ;) But I'll certainly let you know what happens!

0

Share this post


Link to post
Share on other sites

I definitely will. I am skeptical too; the docs where I live don't seem to know anything about celiac/gluten intolerance--sometimes I think I know more than they do. I'm concerned the neuro won't be open to gluten ataxia, even though it's been documented. That's just my experience lately, the docs around here won't take this stuff seriously unless you have the standard blood work/biopsy affirmation, which I did not. Plus, HMO's make it impossible for docs to stay up on the latest stuff. My PCP is on board, but he can only do so much. *sigh* Can you tell I'm a little jaded? ;) But I'll certainly let you know what happens!

I'd appreciate that. Good luck with your doc! I go back in 2 weeks to get the results of my MRI and my diabetes test.

I was reading an interesting article last night that links yeast to problems with ataxia also but when I looked at the diet, with the exception of a piece of fruit a day I am eating a fairly yeast-free diet. Have you found any connections to your ataxia issues, what makes it worse or better? I do know alcohol aggrevates my issues so I have really been watching that. The longer I stay away from glutens it also improves and the vit d seems to have helped.

0

Share this post


Link to post
Share on other sites

We are using the GAPS Diet which is aimed at restoring gut health. I've posted a lot about it on this forum and the blog linked from my profile.

0

Share this post


Link to post
Share on other sites

I just read up on what can cause ataxia, and it appears that a deficiency in manganese can cause it. I came to believe that I was low in manganese because my tendons had become floppy....so I know it can happen....and now my tendons are healthy again. You might try supplementing with chelated manganese to see if the ataxia improves. When it comes to celiac, I always suspect nutritional deficiencies are causing symptoms.

0

Share this post


Link to post
Share on other sites

I'll look into GAPS and maganese. Thanks for the suggestions--I'm thinking I should have a naturpath look over my lab work to tell me what vit deficiencies I really have. I fear the traditional docs look past some of this.

AVR, my ataxia gets worse when I'm gluten-exposed, definitely, although part of that is hypo related (I'm sort of like a zombie in terms of cognition and movement when I've been glutened). Coffee doesn't help either (I know I need to cut it out but really, can't I have a vice? :) But because I'm not very far into the healing process yet, it's difficult to say what makes it better or worse right now. And I just learned about ataxia, and started connecting the dots, so my awareness of symptoms/environment connections is rather new. I should probably do a symptom diary. What about you? Have you discovered any connections? And if you don't mind, what are your ataxia symptoms like? I have muscle weakness/twitching, peripheral neuropathy (primarily escalated by heat exposure), vision issues, balance/vertigo/depth perception, numbness/cold, raynaud's like symptoms, headaches.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,688
    • Total Posts
      921,757
  • Topics

  • Posts

    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
    • Hi everyone, I am doing job in restaurant at evening 5 to 12 during working hours no time to do a dinner. I'm thinking to make a shake but don't know the gluten free vitamin or supplement brand which one is good for me and easily available in Berlin Germany to make me fit cause last one week i feel weak. I'm 28 year old. Sincerely
    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,691
    • Most Online
      3,093

    Newest Member
    EllianaEthan
    Joined