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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New Celiac 1; Non gluten-free Savvy Dietician 0
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6 posts in this topic

Would have been nice if my doctor sent me to a dietician that had a background in celiac disease. Not sure how this happened but I think that on day 4 as a celiac, I may be more informed as to appropriate food options than he was as a clinician with years of experience in the dietary field. Cross contamination- no worries that's only for the super sensitive... and other such interesting statements. Thank goodness for the internet ;). I went to Trader Joe's this morning and bought a whole bag full of gluten-free foods. woohoo. Lunch sucked and is now in the trash.

Hoping dinner goes better :)

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Would have been nice if my doctor sent me to a dietician that had a background in celiac disease. Not sure how this happened but I think that on day 4 as a celiac, I may be more informed as to appropriate food options than he was as a clinician with years of experience in the dietary field. Cross contamination- no worries that's only for the super sensitive... and other such interesting statements. Thank goodness for the internet ;). I went to Trader Joe's this morning and bought a whole bag full of gluten-free foods. woohoo. Lunch sucked and is now in the trash.

Hoping dinner goes better :)

Am glad to hear you are beginning your journey on a positive, humorous note. It does help to keep up that amusement!

Just wanted to note that I would be careful of pre-made food from TJ's especially, though elsewhere too. Both my bf and I had to learn the hard way that a lot of TJ's supposedly gluten-free food is not actually completely gluten-free due to cross contamination from stray gluten. The gluten-free yeasted ":Food for LIfe" rice bread made elsewhere is OK but the rest?? Not so. Esp. avoid their waffles. Shared equipment with wheat products does not make it in my book. I would also be careful of Glutino products. For some of us their allowable parts per million of gluten just does not cut it. We both got migraines from the stuff--not for as long as some things, but very unpleasant nevertheless...

Its far better overall to cook things from scratch, whether your supplies are bought at TJ's, Whole Foods or Food Maxx....

It is a journey, complete with its many ups and downs. You have come to a good place to share, vent and learn. Welcome!

Bea

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Yes, it's best in the beginning to eat naturally. Meat, fish, potatoes, rice, fresh veggies and fruit. It will help you heal better.

In order to appreciate gluten free fast foods, you need to forget what the real ones taste like. :P There is some good food out there, fear not!

It's an adjustment, but you'll get through it. Read through the "What are you cooking tonight" thread...it might give you some ideas. We are not deprived! :D

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By the time I got in touch w/ the hospital dietician (about a week after diagnosis) she told me I already knew way more than she did about celiac. That was 10 years ago. One can only hope they're more informed about celiac now!!

I've had some bad experiences w/ Trader Joe's gluten-free stuff... be careful.

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Thanks everyone for the advice on TJ foods. I am finding that just about anything in the prepared meals doesn't work for me. I was using them as well as other vegetarian meals over the summer before diagnosis and not able to eat most of them due to the high spice content. I can not have anything with chili pepper at all or my reflux flares horribly. Chili pepper is in almost as many foods as gluten it seems some days ;)

It really comes down to having to cook for myself. To quote my dear friend Eeyore- 'oh bother.'

Today I will cook with my beautiful new gluten-free pasta made with rice flour. If that doesn't cut it, I'll move on to the quinoa flour pasta. I have plan B ready :)

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    • Keurig K-Cups
      I haven't really disclosed much at this point as i just joined. Yes...I have Endoscopies done on a regular basis. yes...my dr here in NS is one of the main GI specialists who does specialize in Celiac Disease. I am actually having all the procedures done again next week. Just diagnosed with Limited Scleroderma. Also suffer from IBS and diabetes. We hardly ever eat out. My kitchen is completely gluten-free. I do have a separate toaster and a few untensils in case my hubby wants regular toast! Specialist has said that of all the Celiac patients has has I am probably one of a few who are extremely careful when following a gluten-free diet...however...I am seeing a dietician at the Hospital clinic to review my diet! I think I have addressed all of your questions and I commend you all for asking! I was diagnosed in 2010 but from the biopsies had the disease for 23yrs from then but wasn't experiencing major symptoms. Dr and I have talked about Prednisone however due to all my other issues we feel it's best for now just to do the procedures on a regular basis. I know refractory is rare however with my autoimmune issues..this probability is high. The only real consistent factor that I was questioning is the K-cups. I will probably be following a FODMAP for a bit under the consultation of the dietician. We'll see what happens!
    • Keurig K-Cups
      Sorry,  I know you didn't ask for info on refractory but I am worried that your GI does not  know much about Celiac.  I would hate for you to have to have the massive amounts of steroids, even Chemo, that will be prescribed for refractory Celiac.  If you haven't even had a repeat endoscopy, and he is just diagnosing based on a slightly elevated ttg (which could be from your other AI disease)... well that is a bit like getting a mammogram and finding a small lump and jumping right to invasive cancer with a complete breast and lymph node removal and chemotherapy!  Without even a biopsy of the lump!
    • Second Panel has come back...advice?
      Absolutely! Our Motto: READ EVERY LABEL EVERY TIME
    • Keurig K-Cups
      Many celiacs are not healing because they are not diet compliant due to hidden sources of gluten.    Read this research paper about this subject.  As Karen said, refractory celiac disease is rare but some doctors are quick to jump to that diagnosis  because they are not celiac savvy.   http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598839/pdf/1471-230X-13-40.pdf welcome to the forum!
    • Keurig K-Cups
      Envelope glue is another internet myth. You didn't mention that you had had repeat endoscopies showing continued villa  damage. (That is how refractory is diagnosed)That is completely different than a bit elevated tTg .  True refractory is pretty rare.  As you can see from my links, a slightly elevated tTg may have nothing to do with gluten ingestion and does not mean you are " refractory".    Before resorting to drastic treatments, you might want to look into the " Fasano diet".  It is a super strict diet - mostly whole foods, no eating out, etc -that cleared up people being labelled " refractory".  If that doesn't do it, look at the University of Chicago Celiac Center site,  they have some studies going for people with refractory.   And really, if you have other autoimmune diseases and have not had a repeat positive endoscopy, the other AI s are probably causing the elevated tTg and has nothing to do with Celiac and no villi damage.   That wouldn't be refractory.   http://www.cureceliacdisease.org/archives/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease
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