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Hey I Had A Headache


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6 replies to this topic

#1 notme!

 
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Posted 25 October 2011 - 06:52 PM

and it is gone. for 3 days running! this is, like, the eight thousanth painful/uncomfortable/annoying/freaky thing that has gone away. i didn't even know i had it! and neck pain has been soooo much better. it's amazing what you can learn to live with as 'normal' :( also, 'baby hair' growing back on my head (you know, that little layer of new hair...! ) also, got a cold and my BODY fought it OFF instead of having it turn into pneumonia. i am so scared to be hopeful if anybody can relate to that. could this be my new deal??????? feeling awesome??????? not freezing to death in 60 degree weather? what??

i feel like i am shedding layers of sludge. i am afraid this is too good to be real?
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arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


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#2 Britgirl

 
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Posted 25 October 2011 - 06:57 PM

It is truly incredible what we think of as normal lol I am just starting down this road and can't wait to find a new normal ;)
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DX with Gluten Antibody Reactive 10/18/11
Lyme Disease, Hypothyroidism, Pre-Diabetic
On the Road to Recovery!!


#3 notme!

 
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Posted 25 October 2011 - 07:19 PM

almost forgot - and this is huge for me - went 4-wheeling (you know, 'quad') in the mountains saturday and sunday i woke up just fine. first time that i wasn't absolutely wiped out (i have been limiting my activities because i was over-doing it) and yesterday i washed windows. big windows. alot of them. is this for real???
  • 0

arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#4 Roda

 
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Posted 25 October 2011 - 07:29 PM

I'm happy for you that you are feeling well. It truely is wonderful to wake up one morning and say "wow I feel good."
  • 1

Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


#5 ravenwoodglass

 
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Posted 26 October 2011 - 03:26 AM

Yea it's for real. Amazing how many things improve that we would never think of as connected. Glad to hear you are healing well.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#6 dilettantesteph

 
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Posted 26 October 2011 - 03:49 AM

I didn't know how sick I was until I got better. It is amazing what we can think of as normal.
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#7 lizard00

 
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Posted 26 October 2011 - 04:25 AM

Those are my sentiments exactly. And the perma-headache... I had that, too. It was the first thing that went away and I thought, WOW! There's hope that I might actually feel better one day.

:) Love your post.


I didn't know how sick I was until I got better. It is amazing what we can think of as normal.


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Be yourself, everyone else is taken.
Oscar Wilde

Gluten free November 2007
IgA Deficient, Neg Bloodwork, Double DQ2 Positive
Dietary and Genetic Diagnosis June 2, 2008
Soy free Jan 09




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