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Hey guys! I'm so sorry I have been away for a few months, the wifi at my inlaws was spotty at best. Anyway, I had the baby on 9/28/11 and brought all my own gluten-free food to the hospital- they weren't sure how to feed me so they went to PUBLIX and bought an Amys bowl! I was like "Um, I hope you didn't bill my insurance for that..."

Jacob was 9 pounds, 11 oz... amazing what a healthy diet can do for you AND your kiddos! I can't wait to jump back in now that I am home. The husband is still deployed (and may be extended) soooo... I guess I'll just have to cook to keep busy haha

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I was just thinking about you the other day! Wondered if the the (not so) little one had arrived. Congrats!

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Welcome back! and welcome Jacob!!

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:D Congratulations!!!!! :D Holy moley K8tling you gave birth to a little linebacker!!!!! ;)B)
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I was just wondering the other day where you'd gone. Congratulations!!!!! Welcome Jacob, yay!

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We have missed you. Congratulations and hope hub gets to meet Jacob soon!

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Congratulations and welcome back.

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Congratulations! Enjoy him; they grow so fast, and I hope your husband will be home soon.

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congrats!!!!

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Congrats and welcome to little Jacob! We've missed you :)

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YAYYY K8!!!!! sounds like you are doing great (except the hubby away part) 9lb 11oz dang it, girl :D sounds like he is pretty healthy! such great news :) and jacob is one of my favorite names: my great grandfather's name and my nephew/Godson's name: jacob. hope dad gets to come home soon. we are stillllll waiting for daughter's husband to get back (extended :( we feel ya) hopefully in february *crosses fingers*

so glad everything is well! :)

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I'm such a sap. It brought tears to my eyes. I hope dad gets to see Jacob soon and wishing you all the best.

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CONGRATULATIONS! Good for you for taking your own food and I am really glad to hear the hospital worked with you to make a good experience!!

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Thanks so much guys, I missed having all of you to ask questions/share vents on sharing a kitchen (my inlaws fed my kid wheat the whole time we were there! THEN suggested I allow wheat into MY kitchen ... yeah... no.). I could see the board but only on my iphone so it was tiiiny.

So SO happy to be home, and breastfeeding is going well this time. I ran out of milk by 3 weeks with Collin and had lost 24 pounds. This time I am holding steady at 180 and breastfeeding VERY well. SO glad I got diagnosed before I had another baby.

So! What have I missed???

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So! What have I missed???

3 people had affairs and one is pregnant & not sure if her husband is the father. The evil doctor was shot & almost died. 4 people came back from the dead. 1 girl was re-cast. Wait......that was the soap opera I watch! :o

On C.com....the usual- constipation, diarhea, bloating, gas, foggy brains, nerve problems, anxiety issues, bread recipes,unsympathetic relatives, "does it contain gluten or not?" discussions, etc.

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On C.com....the usual- constipation, diarhea, bloating, gas, foggy brains, nerve problems, anxiety issues, bread recipes,unsympathetic relatives, "does it contain gluten or not?" discussions, etc.

Not to mention the usual...dredging up old threads from 2004. :lol:

ETA: Also sending my congratulations on your new baby!!!

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hahahahaha I love it.

ok well, that's good to know!

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Congratulations on your baby. Kind of wish I'd been on here for some tips pre-pregnancy myself!

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Yay! Your little one shares my son's birthday, a good day for babies!!! I'm happy for you that breastfeeding is going well, keep it up, mama :)

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    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
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