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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Pregnancy Reverse Celiac?
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11 posts in this topic

This might sound completely wrong, but I figured I'd put it out there and see if anyone else has had this occur to them. I was diagnosed with Celiac on 2/10/10. I got pregnant in March of 2010 (hardly even a month after my diagnosis). I stuck to the gluten free diet the entire time I was pregnant... knowing that was going to be best for my unborn child. Okay, so, I had him in December, and after I was done breast feeding, I felt the need to splurge.... so I did, and I admit that I never suffered any consequences for it. Now, that was back in March of 2011... I've watched what I intake for glutenous foods, and make sure that if I do "splurge", that I make sure there's weeks in between splurges. Well, since I figured that because I wasn't having a reaction to eating the foods that would normally send me running to the bathroom, I started lessening the gap between splurges, and have still found that I haven't suffered any consequences. This week has been a "bad" week for me as far as the exposure to those delicious glutenous foods, and I haven't been able to resist the temptation. I have probably eaten something glutenous every day this week and have yet to have any reaction. So, basically what I'm wondering is this. If celiac disease is something that you can carry your whole life and then comes out when triggered by something, is it possible that it can go back into hiding due to something like being pregnant? I know every person is different, especially when it comes to the effects of gluten on their system, but I would like to know if there's ANYONE else out there that has experienced what I'm experiencing! Thanks!

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This might sound completely wrong, but I figured I'd put it out there and see if anyone else has had this occur to them. I was diagnosed with Celiac on 2/10/10. I got pregnant in March of 2010 (hardly even a month after my diagnosis). I stuck to the gluten free diet the entire time I was pregnant... knowing that was going to be best for my unborn child. Okay, so, I had him in December, and after I was done breast feeding, I felt the need to splurge.... so I did, and I admit that I never suffered any consequences for it. Now, that was back in March of 2011... I've watched what I intake for glutenous foods, and make sure that if I do "splurge", that I make sure there's weeks in between splurges. Well, since I figured that because I wasn't having a reaction to eating the foods that would normally send me running to the bathroom, I started lessening the gap between splurges, and have still found that I haven't suffered any consequences. This week has been a "bad" week for me as far as the exposure to those delicious glutenous foods, and I haven't been able to resist the temptation. I have probably eaten something glutenous every day this week and have yet to have any reaction. So, basically what I'm wondering is this. If celiac disease is something that you can carry your whole life and then comes out when triggered by something, is it possible that it can go back into hiding due to something like being pregnant? I know every person is different, especially when it comes to the effects of gluten on their system, but I would like to know if there's ANYONE else out there that has experienced what I'm experiencing! Thanks!

While I cannot comment specifically to Celiac, I can tell you that my sister went into remission with her Crohn's Disease while she was pregnant and breast feeding her two boys. IMHO, it would be in the realm of possibility, but would not necessarily happen for everyone. My 2c...

Jen

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Why not? I'd always assume it could come back, though.

I probably have/had endometriosis - and the best "cure" for that is supposed to be pregnancy. And so far it has worked. My son is 9 and I don't have the awful cramps. Then again, I was in the middle of dx when I got pg, and since I also appear to have gluten issues (and intestines are awfully close to the uterus) - who knows. Maybe it wasn't endo, but was Celiac????

If you were dx'ed via endoscopy I'd ask for another one to see how your insides are doing.... You could just be asymptomatic and still be accumulating damage. Or, you could be having symptoms you simply don't relate to gluten.

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Why not? I'd always assume it could come back, though.

That's how it happened with my sister's Crohn's. It went into remission (and yes, they have said *remission* not cure) during both of her pregnancies and then reappeared after.

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Even if I were not having symptoms, I would still be concerned about the potential of long-term repercussions (or health risks) of eating gluten after being diagnosed celiac.

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Even if I were not having symptoms, I would still be concerned about the potential of long-term repercussions (or health risks) of eating gluten after being diagnosed celiac.

I agree completely. I will not even spend a second considering it, just saying that I do believe it is possible.

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Autoimmune disease generally can go into remission when pregnant, a rule of thumb is 30% get worse, 30% get better and 30% remain the same (not sure about the other 10% haha!). Mine did, as did my asthma, I felt a million dollars! (my gluten stuff didn't though - I made the mistake of eating it an ended up in ER) Having said that, they do come back. Even if you feel fine during pregnancy it won't last forever. Mine started back within weeks of giving birth- DOH. I had moments during the pregnancy thinking I had imagined my connective tissue stuff...but alas it's back. My rheumy says it is very common!

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I posted in the prediagnosis forum, but what I guess I didn't say was that since I delivered my son, a year ago, I haven't been taking my dapsone, I have DH, evidently in remission. I am pretty much on a normal glutenous diet. i want to know if even w/o symptoms, I could still be doing myself a disservive. Derm and GI both just say to enjoy a normal lifestyle, but even though I am in remission, I am very worried.

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I posted in the prediagnosis forum, but what I guess I didn't say was that since I delivered my son, a year ago, I haven't been taking my dapsone, I have DH, evidently in remission. I am pretty much on a normal glutenous diet. i want to know if even w/o symptoms, I could still be doing myself a disservive. Derm and GI both just say to enjoy a normal lifestyle, but even though I am in remission, I am very worried.

Personally, I would not be willing to take that risk. But you have to decide for yourself what you feel safe doing/not doing.

Jen

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I had my son 7.5 years ago, and I assure you, it didn't cure me.

If you wanted to take a risk, and it is a serious risk, you could eat gluten-y (at least = 2 slices of bread per day) for a month, then have the blood test again. If your antibody titer goes up, you're still having a significant antibody reaction and should not continue.

If it doesn't, well, I've never heard of anyone being "cured" of celiac disease before, but it could happen.

Good luck.

TK Kenyon

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I'm 8 months post partum with my second child in 4 years. I've likely been undxed celiac since childhood.

I lost lactose tolerance when I was 19.

When I'm pregnant I dont have any problems eating wheat or milk... Some malformed stool and constipation.. Meh, right?

Wrong. When you are pregnant your immune system must suppress itself to allow the baby to exist to term.

That suppression allows gluten to sneak in. Along with milk.. And whatever else because your body is trying to also get every nutrient it can.

When you do that it will bite u.

It started for me with the hard core ataxia 6 months ppd.. The dh on my stomach.. High blood pressure..visual stuff

Now I'm cross reactive to pretty much every grain.

If you react to things do not abuse your immune system's loopholes while pregnant!

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    • celiac disease is psychosomatic
      If you don't get the diagnosis you are happy with go to another doc.  Try to find a Celiac Friendly doc.  OR you can do what i did and give up and just go gluten free.  I didn't need a doctor to confirm that if my gas, bloating, migraines, depression, joint pain, rash, dry skin and brittle nails went away when i went gluten free that i must have celiac.  AND 6 months after i went gluten free on my own i had some blood tests repeated that i had done when they were trying to figure out what was causing my severe rash, all the things that were "wrong" with me or abnormal in the the first blood tests, went to normal on the second test.  INCLUDING MY THYROID LEVELS! Oh, i didn't mention that during this time they diagnosed me with early hashimotos.. 6 months later i was miraculously cured from this progressive thyroid disorder according to the blood test results.  I didn't have hashimotos to put it bluntly.   I am almost 10 years gluten free with no positive Celiac diagnosis.  But let me tell you this,  My daughter's neurologist did a DNA test on her 1 year after she too went gluten free and it came back positive for Celiac.  so.  js.     That's my story..  in short.
    • celiac disease is psychosomatic
      Were you officially diagnosed with Celiac Disease at the time she wrote that?  And, if so, for how long were you diagnosed & gluten-free but still complaining of those symptoms?
    • Weird Reaction
      Hi Richie By the sounds of it you could have gluten sneaking in somewhere, or maybe blood sugar issues,  or just plain anxiety, but it would be good to know for sure so you know what to do next. I think maybe the best course of action would be to see your GP and  tell him/her all your symptoms.  Book a double appointment as we say in the UK (but that isn't always possible!)  I dread seeing my own GP because as lovely as she is she is very fond of sending me for blood tests (which always seem to include liver function, thyroid and full blood count) which for someone with health anxiety isn't the recipe for a peaceful night's sleep!  But she is right, those particular blood tests, and others, can hold important clues when one has a lot of vague symptoms.   Celiac testing is of course another set of tests, which Flowerqueen has described well above.    If you do have all these tests and anxiety continues to be a problem, whether caused by by celiac disease, another medical condition or just being a stand alone problem, one book that I would recommend that really helped me understand the condition is 'At Last a Life' by  Paul David. I found it an immensely helpful tool in my recovery.   There is also a website. http://anxietynomore.co.uk/   Keep us posted Cristiana      
    • celiac disease is psychosomatic
      Unfortunately I feel this may be common.  For 6 years I was told I was fine.  Lungs fine, chest fine, just anxiety.  It was not until I pressed the anemia issue that I got a blood test.  Now I am a bit of a squeaky wheel to my doctor.  She referred me to Mayo Clinic in Rochester MN which has a celiac center.  I will meet with Dr. Murray (who is a leader in celiac research) next Friday.  If nothing else, you could always come to Mayo Clinic.
    • celiac disease is psychosomatic
      I read a summary report a doctor wrote about me. I thought doctors were more knowledgeable about celiac disease these days, but I guess not. The doctor diagnosed me with psychosomatic disorder when I told her the symptoms (including anxiety since the intestines regulate this) I had from years of undiagnosed celiac disease that affected my ablity to function. Please let me know if you had any disabling symptoms. I have heard stories of how others felt like they were dying. I felt the same way. I didn't mention that I felt like I was dying to my doctor, though. I just can't believe she thought my symptoms from celiac disease were all in my head like celiac disease isn't a real disease.
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