Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Undiagnosed And Looking For Natural Help And Healing
0

8 posts in this topic

I have had issues with my colon since I was in my 20's (I am 43). I have had test like Barriem(msp), Colonoscopy, blood work ups etc.. always being told they can find nothing- Even to the point of having surgery for a suspected cyst on my left ovary because of the lump that was felt by the Gyno. (turns out that was a good thing as I had a tumor inside my uterus that was twice the size of my uterus). About 8yrs ago I went to a 95% organic diet, including hormone and steroid free meats. But I moved about 3yrs ago and can not find a local organic store (and the regular stores are extremely limited). Recently I have had serious pain in my left lower abdomen again, now I have constant gas, heartburn, and upper abdominal pain as well, and now my left eye is twitching. My bowels movements are unpredictable and sometimes days will pass without anything but gas. Exercise is not a problem, as I sling steel 12hrs a day, 4 to 5 days a week and walk over a kazzilion miles(lol). I have tried everything to ease this pain from drinking tomato juice to papaya and sea salt. This has been a horrid 3 days. I am starving but eating food makes it worse and the smell of food makes me nauseous and I lose my appetite. Yesterday I started craving nothing but sugars( I am not big on candy at all). Today, if I do not move to much there is little pain, but when I do get up I cramp, pass an immense amount of gas, feel better for a few then bam feel sick again. I do not have time to feel this crappy. Can't stand going to the d*** dr and be patted on the poopoo and told everything is in 'normal' range yadda yadda. I am going to make another appt. with the Dr., because as I said, the last 3 days have been hell. I can not afford to miss work. I want to know if anyone is using 'organic'-'Natural' methods...I refuse to put man-made drugs in my body...this is enough to deal with, without worrying about side effects that are worse then the existing problem.

0

Share this post


Link to post
Share on other sites


Ads by Google:

So, you have uterine fibroids?

Have you ever read Dr. John Lee's book on progesterone cream?

If you suspect you have gluten issues, try the gluten-free diet. If you want to be tested for Celiac, get testing first before proceeding with the diet since gluten withdrawal negates the tests.

0

Share this post


Link to post
Share on other sites

Nothing more natural than a gluten free diet if you have Celiac. No need for medications.

0

Share this post


Link to post
Share on other sites

Nothing more natural than a gluten free diet if you have Celiac. No need for medications.

And if for no other reason than that, I'm very thankful that, of all of the auto-immune disorders I could have, I ended up with Celiac!

1

Share this post


Link to post
Share on other sites

So, you have uterine fibroids?

Have you ever read Dr. John Lee's book on progesterone cream?

If you suspect you have gluten issues, try the gluten-free diet. If you want to be tested for Celiac, get testing first before proceeding with the diet since gluten withdrawal negates the tests.

I do not have uterine fibroids that I know of...they found the tumor because I went in thinking my left ovary was going to explode, as the area was swollen and extremely painful to touch. Turned out my ovary was perfect and found the tumor in the uterus.... That was 4yrs ago. in my 20's they thought endometriosis...did a laproscopy told me they could find nothing...went to another dr. and they did a barrium test. Upper and lower test and said I was normal and they had no idea why I was having the problems I was having...In my 30's a Dr said his best guess was IBS and to cut out fatty foods and nuts. I hardly ate/eat fatty foods as they seem to make me vomit a lot. I am making another appoint to the Dr., because celiac keeps popping up in my internet research. I need to make it through this week until I can get in. and nothing I am finding is helping relieve the pain I am in. The only downside of this is that if I do have celiac, my options for obtaining food at the store has dramaticly decreased. I live in BF nowhere. The most I have seen on the shelves is gluten free crackers and cookies... and outside of no gluten what else will need to go/be replaced??

I do not trust dr's to give an honest diagnosis unless they can push a man-made drug on you to cure it.

0

Share this post


Link to post
Share on other sites




Ok, I know I'm hammering at this...but what kind of tumor was it? Was it a benign mass?

Most unprocessed food is gluten free - fruits, veggies, meats, herbs, spices. There are quite a few processed foods that are gluten-free but not labeled so. It's easier than you think. Read through the posts here about "newbies". You'll get a lot of ideas.

0

Share this post


Link to post
Share on other sites

Ok, I know I'm hammering at this...but what kind of tumor was it? Was it a benign mass?

Most unprocessed food is gluten free - fruits, veggies, meats, herbs, spices. There are quite a few processed foods that are gluten-free but not labeled so. It's easier than you think. Read through the posts here about "newbies". You'll get a lot of ideas.

yes it was benign and 95% removed using thermal-ablation (hot water in the uterus). I say 95% because there is still a part of it and uterine lining inside my uterus. I have an appt. with the Gyn on it as my periods are a flippen mess again..lol---I would say I am falling apart at this point. but the colon issues started in my 20's. diarriah to constipation...bloating and gas...nausea to vomiting..and every dr. telling me it was nothing to just ibs and quit eating fried foods.. When I went organic, it seemed that I felt great, makes me wish I hadn't moved because I was quit spoiled in being able to go down the road and get all the fresh organic and natural foods my heart desired and now I am scouring the internet to find food.

I do want to say thank you all for being here to help..

0

Share this post


Link to post
Share on other sites

Get a copy of Dr. Lee's book - I have What Your Doctor May Not Tell You About Menopause. Read it. Consider trying natural progesterone cream to help with your cycles and the mass.

When you go to the doctor, ask for a full celiac panel. See what the results are and go from there.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,655
    • Total Posts
      921,622
  • Topics

  • Posts

    • Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
    • I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,657
    • Most Online
      3,093

    Newest Member
    pablito
    Joined