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Nearly-Normal Villi


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#1 India

 
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Posted 01 November 2011 - 10:36 AM

I've been gluten free for almost two years. Early this year, I had a follow-up endoscopy which showed my villi had almost returned to normal.

However, although some symptoms have improved, I still have a restrictive diet as I have a lot of bloating and food intolerances. If my gut is recovering well, why do I still have problems? Is my gut health still generally poor?

Thanks :)
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Self diagnosed but confirmed by biopsy
Gluten free Jan 2010
MSG free Jan 2010
Corn free Apr 2010
Soy free Jun 2010
Following a FODMAPS plan

Also have RSI, widespread myofascial pain and hypermobility problems

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#2 Takala

 
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Posted 01 November 2011 - 12:25 PM

If you're having to avoid soy and corn, it is difficult.

We don't really get to pick and choose which sorts of additional things are wrong with us, it's sort of random. I'm much, much better than I was 10 years ago, but still won't ever be "normal," although I can "pass" on most days.
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#3 dilettantesteph

 
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Posted 02 November 2011 - 03:27 AM

If you are having villi problems, you are probably reacting to some gluten contamination from somewhere.
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#4 India

 
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Posted 02 November 2011 - 10:05 AM

Thanks for your replies. I'm at peace with never eating gluten again but with so many other foods that bother me, I don't feel fully recovered. I am improved since a year ago though, so perhaps, like Takala, there will be a point where can feel at least much better :)

However, I'm not having villi problems - but I can't eat fructose, onions, legumes, corn, soy and lots of other things despite the almost-clear endoscopy.
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Self diagnosed but confirmed by biopsy
Gluten free Jan 2010
MSG free Jan 2010
Corn free Apr 2010
Soy free Jun 2010
Following a FODMAPS plan

Also have RSI, widespread myofascial pain and hypermobility problems

#5 dilettantesteph

 
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Posted 03 November 2011 - 03:41 AM

Sorry, I interpreted "almost returned to normal" to mean that they aren't normal yet, so that you are still having villi problems. Some of us react to lower amounts of cc than others. That is what I have been concentrating on with good results.
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#6 India

 
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Posted 04 November 2011 - 11:37 AM

They were 'nearly normal' early in the year so I'm guessing they've continued to improve. I'm wondering if it's possible to become more sensitive to gluten after being gluten-free for a while though?
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Self diagnosed but confirmed by biopsy
Gluten free Jan 2010
MSG free Jan 2010
Corn free Apr 2010
Soy free Jun 2010
Following a FODMAPS plan

Also have RSI, widespread myofascial pain and hypermobility problems

#7 dilettantesteph

 
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Posted 05 November 2011 - 03:03 PM

I'm wondering if it's possible to become more sensitive to gluten after being gluten-free for a while though?

That's what happened to me.
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