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Rib Cage Woes.... Again & Again & Again


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5 replies to this topic

#1 pondy

 
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Posted 01 November 2011 - 04:40 PM

I've seen so many threads here about rib cage pain, yet here I am with questions - sorry :blink:

I've had burning pains right underneath my rib cage - both sides - for the past couple days. They come and go, but mostly they are present.

This is the "mystery" pain that has stumped both my PCP & GI since early February, but the one that finally got the GI to (begrudgingly) do an Endoscopy & diagnose total villous atrophy.

Here I am about 9 months later & it feels just like old times!

I've been eating well - very few processed foods (with the exception of a couple Snickers during the past week), very little milk with my morning coffee... I've been careful.

So, does anyone know what causes the rib cage pain? Is is an "i've been glutened" sign? If so, then I need to look at possible cc sources.

I wonder about osteomalacia, because I have "whole body hurts" also (these are ongoing).

My last vitamin D level was 41, which the doctor said was within normal limits.

I'm just confused. I have a check-up on the 11th & wonder if a bone density scan is warrented. I'm a little afraid to ask for one because me coming in with "mystery pain" yet again makes me look like a malingerer in their eyes.

Thanks,
Pondy
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"It is not the strongest of the species that survive, nor the most intelligent, but the ones most responsive to change"
- Charles Darwin

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#2 rosetapper23

 
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Posted 01 November 2011 - 05:56 PM

I don't know if this is true for you, but this is one of the fist signs for me when I've been glutened. It can be caused by the very smallest amount of contamination....and sometimes is the ONLY sign. It was my "mystery pain" for at least five years before I was diagnosed with celiac. Also, for acquaintances of mine who mentioned this particular pain, several of them eventually found out that they, too, had celiac.
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#3 Kim27

 
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Posted 01 November 2011 - 07:19 PM

I get that pain as well. I think it happens to me when I have problems with cross contamination.
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Thanks!!!


---------------------------------------------------
Kim

Newly diagnosed Celiac trying to learn the ropes

Very Positive tTG 3/10
Positive EGD/Biopsy 4/10

#4 ravenwoodglass

 
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Posted 02 November 2011 - 03:52 AM

I didn't get rid of that pain completely until I got rid of soy. If you are still consuming products with soy perhaps try dropping it for a bit to see if it helps. I also get it when CC'd but oddly enough it isn't as severe as when I get soyed. For me Pepto Bismal liquid usually helps a lot.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 pondy

 
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Posted 02 November 2011 - 03:54 AM

Thanks for the responses!

I'm going to retrace my steps over the past few days & check for cc. Good news is that I did not wake up with the pain today - yea! Time to start anew...
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"It is not the strongest of the species that survive, nor the most intelligent, but the ones most responsive to change"
- Charles Darwin

#6 pondy

 
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Posted 02 November 2011 - 04:03 AM

I am trying to avoid soy & sugar but I've had a few Snickers bars lately
so that may have been too much... Guess gluten free doesn't equal safe for me.
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"It is not the strongest of the species that survive, nor the most intelligent, but the ones most responsive to change"
- Charles Darwin




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