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Why Does The Reaction Linger So Long


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8 replies to this topic

#1 GFreeMO

 
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Posted 02 November 2011 - 08:12 AM

I am wondering if anyone knows why the reaction to gluten lingers for a while. First the gas and stomach issues, mucus,D, joint pain, anxiety...etc....then I get a massive headache then C then finally cold sores all over my face. This all takes about 2 weeks and then I am good to go until the next time and it all repeats. Just wondering why it all is so drawn out?

Thanks!

Edited by GFreeMO, 02 November 2011 - 08:12 AM.

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#2 Celtic Queen

 
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Posted 02 November 2011 - 08:18 AM

I don't know why it's so drawn out, but I have the same problem. It takes me 10 days to 2 weeks to get it all out of my system. That's more frustrating to me than staying on the diet. I have no problem not eating gluten, but I get so frustrated when I get glutened by accident and know that's two weeks of my life that I'll feel bad.

Maybe that's how long it takes for it to get out of your intestines and blood?
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Blood tested 8-11 positive, Biopsy 9-11 negative (long story, most gastro drs. are morons)

gluten-free 7-11, Dairy Free (mostly) 8-13 - Everything but butter.  Can't live life without butter....
 

DS - negative blood test, just diagnosed with ADD and other learning disorders, DNA test positive - high risk

Issues related to gluten: depression, low iron, hair loss, positive ana test for lupus, low vitamin D, headache, sinusitis, environmental allergies, brain fog, GI problems, weight gain....the list goes on....


#3 Leper Messiah

 
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Posted 02 November 2011 - 10:03 AM

Yeah me neither although I'd be delighted to know what's going on over the 2/2.5 weeks I get nailed. All I know is that it makes me really really tired!!

I also get frustrated when I get glutenned especially when I try so hard to avoid it. I guess you just have to be wary of everything and anything that touches your lips.
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Knowledge is power; arm yourself - Propagandhi

#4 blueshabooMoon

 
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Posted 02 November 2011 - 12:08 PM

I am wondering if anyone knows why the reaction to gluten lingers for a while. First the gas and stomach issues, mucus,D, joint pain, anxiety...etc....then I get a massive headache then C then finally cold sores all over my face. This all takes about 2 weeks and then I am good to go until the next time and it all repeats. Just wondering why it all is so drawn out?

Thanks!

Thanksfoe posting about this, I follow strictest gluten free eating and I know I have been gluttened somehow, had 13 days chronic Diarhea, cannot leave house, cannot go up to hospital see my new born grandson, am reduced tears and I never cry. Feels like 7 months ago before celiac diagnosis, scares me that I will relaspe get wrdsw worse again.I am going to live on chicken broth, roast chicken, gluten free yogurt, blandest foods see if I can pull myself out of this nightmare. Terrilynne
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#5 Macbre

 
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Posted 02 November 2011 - 04:06 PM

I am wondering if anyone knows why the reaction to gluten lingers for a while. First the gas and stomach issues, mucus,D, joint pain, anxiety...etc....then I get a massive headache then C then finally cold sores all over my face. This all takes about 2 weeks and then I am good to go until the next time and it all repeats. Just wondering why it all is so drawn out?

Thanks!


I don't know why it last so long either, but I did try something different the last time I was accidently glutened. Even though I felt horrible and had absolutely no energy and my joints ached...I made myself exercise....I have to say that I sweated more than usual but I felt better afterwards and my symptoms didn't last as long. I guess sweating is kind of like a detox for your body. I know most people will think there is NO WAY they can exercise when they feel so bad, but I think it helps. I didn't leave the house because I knew I couldn't get too far from the bathroom, so I popped a workout disk in and and suffered through it. I told my husband that no matter how sick I get in the future with accidental glutenings that I want him to encourage me to exercise because it definitly made a difference.
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#6 bartfull

 
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Posted 02 November 2011 - 05:15 PM

I don't know if it will work for gluten (probably not), but a friend suggested I drink a glass of water with 1/4 to 1/2 teaspoon of baking soda to get the salicylates out of my body. I looked it up, and it IS suggested for metal poisoning, AND for salicylates.

That's probably why it WON'T work for gluten though - heavy metals are somehow bound in the baking soda and excreted. And for the salicylates, well, those are an acid, and I guess the baking soda neutralizes them.

Just a stab in the dark. Who knows, maybe it WILL work on gluten, and it can't hurt.
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gluten-free since June, 2011

Can't eat soy, corn, or foods high in salicylates.

Nightshades now seem to bother me too.

 

BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!

 


#7 DerpTyler

 
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Posted 02 November 2011 - 07:59 PM

Holy crap I feel for you guys, my symptoms(Diarhea) usually only last about an hr if I have a little bit of gluten accidentally.

also when I was undiagnosed but still having bad stomach pains my doctor gave me some pills to take when I was having problems and they actually helped and stopped the cramps within 15mins, not sure what they were called though sorry.
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#8 Marilyn R

 
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Posted 03 November 2011 - 05:04 PM

I checked out a book on AI diseases about 2 years ago. I can't attribute the author, but she said a good soak with a mixture of epsom salts and baking soda (I believe two cups of the former and 1 cup of the latter) was really good as a detox soak. I personally like to add pepperment oil.

The soak has never hurt me, and has made me feel better than I felt before, so I thought I'd post. You should use water as hot as you can stand to soak in. I'm not a freak, but the book said you should lay in the hot bath and visualize the toxins being soaked out of your body. I can do that. I'm not sure if it helps (the visualization thing), but it's worth giving it a whirl when times are tough.
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Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

#9 tarnalberry

 
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Posted 04 November 2011 - 07:37 AM

I am wondering if anyone knows why the reaction to gluten lingers for a while. First the gas and stomach issues, mucus,D, joint pain, anxiety...etc....then I get a massive headache then C then finally cold sores all over my face. This all takes about 2 weeks and then I am good to go until the next time and it all repeats. Just wondering why it all is so drawn out?

Thanks!


I don't have the source to cite for you at the moment, but when I last looked up the reasearch, the chemical reaction that causes intestinal damage is somewhat self-sustaining in the intestines - it requires gluten to trigger it, but it can propel itself for some time after that. It lasts generally up to two weeks.
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Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA




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