Need To Feel Better Asap
Posted 16 August 2005 - 07:54 AM
Posted 16 August 2005 - 08:29 AM
gluten-free since Feb 2005
Posted 16 August 2005 - 08:47 AM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Posted 16 August 2005 - 08:50 AM
Posted 16 August 2005 - 09:48 AM
Posted 16 August 2005 - 06:04 PM
Posted 18 August 2005 - 01:55 PM
I know of no cure. People have told me that popular remedies may themselves not be gluten-free. I am sorry for your situation; unfortunately, there may not be a remedy. You may have to just try to work around it. In my case, once I explained the situation (in not a lot of detail) the Judges and other Lawyers were quite understanding. (They know it'll likely be them in the same pickle in a few years) Good luck.
Posted 22 August 2005 - 03:23 PM
You might think this is ridiculous, but a dry martini slows down (not stops) my pain, cramps and grumblings. Hey, who am I to complain about an effective course of treatment? In fact, if I want to be really healthy, I'll have 2. (...just kidding about the second one) I'm serious, folks; however, I am not sure this could be considered one of the more standard remedies.
One thing that is apparent with all Celiacs is that their conditions manifest themselves in so many different ways, and their sensitivities are incredibly varied - although gluten remains the big one. This martini thing works for me; I don't know if there is an anaesthetic effect to the gin or what. And what's odd, other spirits don't have that effect. Hmmm...perhaps the subject could bear further extensive research....
Posted 22 August 2005 - 07:28 PM
That is quite an interesting remedy for you indeed! I can't say that I have ever had a Martini though...... not really a gin lover!
I usually just stick to white wine now. It seems to be the easiest. Although, I can remember when I first started going gluten free, I was devastated because I could no longer have my favourite drink. Up here in Canada, we have a drink called a Bloody Caesar, which is made from Vodka, Clamato Juice, Worshteshire sauce, a touce of tabasco, and celery salt around the rim. I loved having a few on the weekend during a BBQ. I discovered that Clamato juice contained gluten and I could no longer have it. I WAS DEVASTATED!!!! I was a Caesar connoisseur! I had literally perfected the art of making those drinks!!!
Oh well, the sacrifices we make for this disease......
positive bloodwork, positive biopsy
Celiac, collagenous colitis, hypothyroidism
endometriosis (at age 20)
spinal stenosis (early 20's)
Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.
Endoscopy also showed numerous stomach ulcers, have started taking Losec.
Mother to Eileen 13 yrs
Rhiannon 8 yrs
Daniel & Connor 6 yr twin boys......
"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."
Orison Swett Marden
Laughter is the shortest distance between two people.
-- Victor Borge
"An optimist laughs to forget. A pessimist forgets to laugh."
"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."
Posted 23 August 2005 - 05:04 AM
Posted 23 August 2005 - 10:05 AM
Immodium will work wonders and I've heard (but not yet tried) psylliam is good at helping slow things down, plus is soothing to the gut.
Finally, if you ever catch yourself at the beginning of a reaction, Alka Selzer Gold (the only gluten-free one) is supposed to somehow help minimize the reaction. I haven't tried that either but have heard it sweared on as a good method.
Gluten-free since 10/04
Gluten-sensitive genes: HLA-DQ 1,3 (Subtype 6,9)
Interstitial Cystitis, 7/07
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