Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Is Considered Too Much Vitamin D ?
0

18 posts in this topic

My son is 15 and has been on a gluten-free diet for about 15 months at the reccomendation of our chiropractor after a bus load of symptoms that mimic Celiac Disease. After just 6 days all of his symptoms improved to the point that he wasn't willing to go off of the gluten-free diet and go back to the way he was feeling before the diet to be officially tested. So...he just continues on eating gluten-free. Blood work at that time showed that his Vitamin D level was low so he was put on 50,000 units of Vitamin D 3 times a week for 12 weeks. More blood work showed that it went up a bit but not like the Doctor thought thought it would taking that amount. This has continued for about a year and a half and he is now taking 50,000 units 2 times weekly at the suggestion of our Doctor. I have asked why his level is not going up and exactly WHERE is all of this Vitamin D going ? I know that too much isn't good either but have read conflicting info on exactly how much is too much. I am wondering if there is something else that they are missing. He is having trouble with his kidney's and bladder also that started around the same time he started taking these large supplements. It is making me very nervous...I am not sure what to do. Anyone have any experience with this ?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Vitamin d is one of those vits that our body does not produce. We actually receive it from the sun thru our skin and that is the best source for our bodies. However, many of here have asked this same question as many of us suffer from lack of vit d. If the body is having trouble absorbing in the first place, we are only getting part of the nutritional benefits of anything we eat and any supplement we take but how much we are actually receiving is hard for us to know.

Concerns for too much d is organ failure and I understand why you would ask this question.

Personally what I have done is I have played with amounts to keep the symptoms away. Perhaps kind of not so good measurement as we store our vits like banks in our bodies so depending on the vit, you may not see the results of a decrease or increase for 7-10 days. I take 5000 IU daily plus whatever is in my multi vit. As an experiment when clouds rolled in and I found myself terribly fatigued again, I increased my d to 10,000 for one week. Can tell you I felt a whole lot better but was concerned about the amount so have cut back to what I was tkaing before and trying to find ways to get sunlight every day.

You could cut back and see if his symptoms come back, and try to get more sun. There are foods that you can eat as well. Of course lots of dairy items are fortified with d but also eating fish with bones like sardines is supposed to help.

0

Share this post


Link to post
Share on other sites

I think you need to get him followed by someone other than a chiropractor. You definitely need a second (and possibly third) opinion at the absolute minimum.

2

Share this post


Link to post
Share on other sites

I agree with Skylark. That's also alot of vitamin D and if its bladder symptoms maybe its not absorbing through the intestines like it should and absorbing through the bladder instead. Or kidneys even.

0

Share this post


Link to post
Share on other sites




I first had my vitamin D levels tested about four years ago because of my osteoporosis. They were quite low so I increased my supplementation for a year and retested. The levels had dropped. My PCP and nutritionist had no clue as to why they were lower. For the past three years I have supplemented with about 12,000 units a day with testing every six months. The levels did not rise significantly until I went gluten free. I have now backed off some on what I take and will retest in a few months. Everyone's body is different. You need to get your levels up but be sure to test.

0

Share this post


Link to post
Share on other sites

I first had my vitamin D levels tested about four years ago because of my osteoporosis. They were quite low so I increased my supplementation for a year and retested. The levels had dropped. My PCP and nutritionist had no clue as to why they were lower. For the past three years I have supplemented with about 12,000 units a day with testing every six months. The levels did not rise significantly until I went gluten free. I have now backed off some on what I take and will retest in a few months. Everyone's body is different. You need to get your levels up but be sure to test.

Thanks for this reply. Could you tell the difference in your body from being so low compared to actually being able to absorb and backing off? Mine is very noticable for me. I get my bloodwork this next week and will talk to doc about it.

0

Share this post


Link to post
Share on other sites

Thanks for this reply. Could you tell the difference in your body from being so low compared to actually being able to absorb and backing off? Mine is very noticable for me. I get my bloodwork this next week and will talk to doc about it.

The increase was gradual over several years, so, no, I could not tell a difference.

0

Share this post


Link to post
Share on other sites

vitamin D is a fat soluble vitamin. If your son (or anyone for that matter) does not have an adequate intake of healthy fats in his diet, vitamin D cannot be metabolized properly, regardless of the dosage he takes.

The current government suggestions for a low fat high carb diet are all backwards, and leaves most people deficient in fat soluble vitamins A, D, E, and K. If you turn the food pyramid upside down though, your body will be better able to metabolize these vitamins. Eat healthy sources of fats like avocados, fish, chicken with the skin on, pork with fat on it, beef with fat on it, seeds like flax seed, chia seeds, nuts, dairy, olives, olive oil, coconut, coconut oil etc etc etc...

http://nourishedkitchen.com/fat-soluble-vitamins/

1

Share this post


Link to post
Share on other sites

My son is 15 and has been on a gluten-free diet for about 15 months at the reccomendation of our chiropractor after a bus load of symptoms that mimic Celiac Disease. After just 6 days all of his symptoms improved to the point that he wasn't willing to go off of the gluten-free diet and go back to the way he was feeling before the diet to be officially tested. So...he just continues on eating gluten-free. Blood work at that time showed that his Vitamin D level was low so he was put on 50,000 units of Vitamin D 3 times a week for 12 weeks. More blood work showed that it went up a bit but not like the Doctor thought thought it would taking that amount. This has continued for about a year and a half and he is now taking 50,000 units 2 times weekly at the suggestion of our Doctor. I have asked why his level is not going up and exactly WHERE is all of this Vitamin D going ? I know that too much isn't good either but have read conflicting info on exactly how much is too much. I am wondering if there is something else that they are missing. He is having trouble with his kidney's and bladder also that started around the same time he started taking these large supplements. It is making me very nervous...I am not sure what to do. Anyone have any experience with this ?

1) You are raising a smart son!

2) Is the Vit D that he is taking D2 or D3? If it is the little green footballs it is D2 and is not

the better choice.

3) Getting small amounts of SUN shine daily, is the optimum method of obtaining Vit D.

4) Good luck!

1

Share this post


Link to post
Share on other sites

I was also diagnosed by a chiropractor/nutrition specialist and he has me taking 10,000 iu a day of Vit D3. Healthy fats are definitely a must. I'm vegan, so this is usually avocado, olive oil, nuts, coconut oil etc. I cut down on my supplements on the days I can get at least an hour of sun with signifigant skin exposure (tank top and shorts) otherwise I keep it the same. I am going to talk to him about getting tested and possibly increasing his week because I have been very fatigued. Not sure if it is the cold cloudy weather or something else. Good luck!

0

Share this post


Link to post
Share on other sites

vitamin D is a fat soluble vitamin. If your son (or anyone for that matter) does not have an adequate intake of healthy fats in his diet, vitamin D cannot be metabolized properly, regardless of the dosage he takes.

The current government suggestions for a low fat high carb diet are all backwards, and leaves most people deficient in fat soluble vitamins A, D, E, and K. If you turn the food pyramid upside down though, your body will be better able to metabolize these vitamins. Eat healthy sources of fats like avocados, fish, chicken with the skin on, pork with fat on it, beef with fat on it, seeds like flax seed, chia seeds, nuts, dairy, olives, olive oil, coconut, coconut oil etc etc etc...

http://nourishedkitchen.com/fat-soluble-vitamins/

Thank you for this info, I found ir very helpful!

0

Share this post


Link to post
Share on other sites

Be careful suggesting sunlight. Some people are very sensitive and can damage in as little as 10 min per day. Also for some reason, I think some people can not metabolise Vit D from the sun. Best to get a blood test done.

0

Share this post


Link to post
Share on other sites

Be careful suggesting sunlight. Some people are very sensitive and can damage in as little as 10 min per day. Also for some reason, I think some people can not metabolise Vit D from the sun. Best to get a blood test done.

Since, in general, the human body is MADE to be touched by the sun......10 minutes causing damage would be rare...if you are talking photosensitivity caused by drugs we are on another subject. And I did specify SMALL amounts of sun.....

0

Share this post


Link to post
Share on other sites

As I said, best to get a blood test done. Different parts of the world, different seasons, different strength of sunlight!

0

Share this post


Link to post
Share on other sites

....and, thinking about it, I am sorry I bit back, though it did sound to me a bit attacking. :(

I had two of my vit D tabs the other day and was amazed at how much extra energy I had that day, will have to see if it is continued or just a fluke. :)

0

Share this post


Link to post
Share on other sites

Be careful suggesting sunlight. Some people are very sensitive and can damage in as little as 10 min per day. Also for some reason, I think some people can not metabolise Vit D from the sun. Best to get a blood test done.

Very interesting.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,608
    • Total Posts
      918,335
  • Topics

  • Posts

    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
    • Recovery diet, nutrition, leaky gut?
      I am having my endoscopy on Tuesday. I want to begin to heal my gut asap. I spent this morning in the ER with stabbing pain in my right shoulder blade, pain to the left of my belly button and vomiting. It's referred pain from my small intestine. I couldn't move or breathe hardly it hurt so bad. I NEED to get everything together to heal my gut asap. I don't want to ever go through this again. What are your recommendations? I've been reading a bit on leaky gut - anyone have good experience/links Or would the autoimmune diet be better? Are they one in the same? I know I am also reacting to casein and possibly potatoes. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,707
    • Most Online
      1,763

    Newest Member
    Ree8080
    Joined