Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone In The Lehigh Valley, Pa?
0

11 posts in this topic

Hello.

I'm new here and I am wondering if there is anyone currently residing in the Lehigh Valley, PA that can recommend a new doctor for me that specializes in Celiac Disease or Crohn's. My old doc just isn't helping me enough and I need help NOW.

I cannot seem to gain any weight, I have diarehea, chills in my hands/feet, sinus congestion (which is probably just my allergies) dry skin, hair is brittle and falls out, and sometimes pain in my sides.

I am on Clidinium right now for IBS/anxiety but I think I am having major malabsorbtion problems.

I eat fish, broccoli, meat, but I try to go light on breads but it's hard.

Any helpful advice would be grand!

thanks!

Erik

0

Share this post


Link to post
Share on other sites


Ads by Google:

I live in MD so my recommendations would probably be too far for you. However, if you go to this home page and scroll down there is a link to recommended doctors by other celiacs and look in your area. Hope that helps a bit.

0

Share this post


Link to post
Share on other sites

Yes...Thank you..saw the link, but most are in Philly or just outside. I'll look thru the phone book and make some calls. Right now I have no medical benefits anyway. I'm waiting for mine to kick in. I just started a new part-time job...so I have to wait.

I also wanted to mention that this morning I had a soft-boiled egg a banana and a piece of yeast-free toast and (just like clockwork) about 30 minutes after I eat I start to yawn, nasal congestion and my eyes water. It's like my body is having a reaction to anything that goes into me. I've had these symptoms for awhile. At least a year, now.

Is my body "attacking" the food like an outside enemy?

I just don't get it. :unsure:

I have some phone numbers for couseling too. This whole thing has really been upsetting me and my family. I don't know if it's wise to go to a therapist right now, unless I can receive free care or a sliding pay scale. Worth a shot, huh? By the way, are you the woman on the left or the right?

0

Share this post


Link to post
Share on other sites

Ok... You need help..fast. :( Going light on the breads means you're still eating gluten. Yeast free doesn't mean gluten free. You have to eliminate gluten if you want to try the gluten free diet to see if you feel better. Most celiacs will tell you they have their own butter stick, peanut butter jar, cream cheese, jelly, mayo, etc....the reason is that a SINGLE CRUMB of gluten will bring a celiac to his or her knees.......for days. Now, don't panic.. You can do this diet. You only have to understand what it is you're needing to eliminate. Remember, if you have Celiac Disease, your gluten free diet isn't equivalent to any other diet you've ever heard of. This is not the atkins or south beach diet and cheating happens and we move on. If you have Celiac Disease, you have an auto-immune disease which will win every time you challange it. You must understand you have to be 100% gluten free in order for your body to regain it's normally happy disposition. Please ask as many questions as you feel you need answers to. People here want nothing more than to hear you tell them you're feeling better. :)

0

Share this post


Link to post
Share on other sites
I cannot seem to gain any weight, I have diarehea, chills in my hands/feet, sinus congestion (which is probably just my allergies) dry skin, hair is brittle and falls out, and sometimes pain in my sides.
Based on these symptoms you could definately be suffering from celiac diease. Once you find a doctor, you should request a celiac blood test, preferably the tissue transglutamase test or the celiac blood panel. Don't go gluten free before the tests or you may get false negative results.
0

Share this post


Link to post
Share on other sites




You definitely need to get tested for celiac, but I want to also suggest maybe getting your thyroid checked. Both conditions can bring on your symptoms.....

Welcome to the board!!!

Karen

0

Share this post


Link to post
Share on other sites

I'm not sure how far you're willing to drive, but I went to a GI specialist in Paoli, PA. I got his name off this website. His name is Dr. Keith Laskin. That may be too far of a drive for you, but here's his info:

Keith Laskin, M.D.

Main Line Gastroenterology

Paoli Memorial Medical Building 3

Suite 333

255 West Lancaster Ave

Paoli, PA 19301

Tel: (610) 644-6755

0

Share this post


Link to post
Share on other sites
I'm not sure how far you're willing to drive, but I went to a GI specialist in Paoli, PA.  I got his name off this website.  His name is Dr. Keith Laskin.  That may be too far of a drive for you, but here's his info: 

Keith Laskin, M.D.

Main Line Gastroenterology

Paoli Memorial Medical Building 3

Suite 333

255 West Lancaster Ave

Paoli, PA 19301

Tel: (610) 644-6755

<{POST_SNAPBACK}>

Awesome! I printed it out on Mapquest. Thank you, Thank you!

Now, one more question before I get off of this computer.

Everyone talks about their symptoms. How celiac disease brings them to their knees? What are talking about here as far as symptoms, reactions, or other things to look for?

How about fatigue on the right side hip area? ADD? Yawning? Mood swings? Depression? Anxiety? I mean, I know everyone is different, but where can I get a list of symptoms that are quite common with all of you?

I wish I could hug all of you today!

Thanks!

Erik

0

Share this post


Link to post
Share on other sites
By the way, are you the woman on the left or the right?

I am the one on the right(the shorter one at 5'4)

Also, to answer your ? about symptoms...they vary person to person and there are over 200 symptoms.

Fatigue is actually the most common symptom.

Anxiety, depression, pain, nausea, mood swings, weight loss, weight gain, etc.you name it, it can come with it. Celiac can cause chaos anywhere in the body.

Some of your symptoms sound like mine...you should for sure get tested. They thought I had Crohns at first because it runs in my dads side of the family but it turned out to be Celiac. Also, getting your thyroid checked was a good suggestion too because some of your symptoms can come with that as well.

0

Share this post


Link to post
Share on other sites
where can I get a list of symptoms that are quite common with all of you?
This is my favorite list of symptoms:

http://www.wrongdiagnosis.com/c/celiac_disease/symptoms.htm

Here are a list of the symtoms that I have had from gluten:

Hair loss

Extreme fatigue

Lack of energy/stamina

Brain Fog - or what I call pure stupidity

Joint pain - mainly in the knees and hips

Chicken pox like dots on the skin

Gas

Bloating

Diarrhea

Stomach pain (mild to severe)

Weight loss

I also get irritable and get very down about things (minor depression)

Lack of concentration - I get easily distracted and bored with things

0

Share this post


Link to post
Share on other sites

I used to live in Allentown until I was eight years old. I don't know of any gastros, but there is a neurologist who might be able to help you if you have brain fog/severe malnutrition--Dr. Pileggi. He was practicing in the 80's back then (he diagnosed my ADD in 1987), but he was fairly young and I'm sure that he may still be there.

I remember Sacred Heart Hospital---I went there to get an x-ray for a broken toe. I suggest trying them as well.

Where in Lehigh Valley do you live?

If you're willing to drive to Reading (my birthplace), I trust West Reading Hospital. They helped out my paternal grandmother when she was dying of lung cancer.

Dr. Rocco (Rocky) Chireleisen is my cousin. He has a general practice at the same hospital.

Hope this helps!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,371
    • Total Posts
      917,537
  • Topics

  • Posts

    • Newbie: mother to coeliac kids
      Are there any foods, like broth, that don't make your son feel sick?
    • Newbie Mom - How is my son feeling?
      I agree. As an adult its a little easier to withstand the rolling of eyes and exaggerated sighs from people who think you are over reacting and being too fussy.  My youngest has anaphylaxis to fish and seafood and people are incredibly understanding and careful - but it seems celiacs has become a "fad" due to gluten intolerant people removing credibility from true celiacs.  Adults can argue but kids are vulnerable. Socially its really isolating for them.    I totally relate to the waiting on endoscopy. For my very sick 12 year old the 8-9 weeks we waited for sheer hell and I felt I was feeding him rat poison. Now my 17 year old is waiting on his, booked for later this week.  Its a total nightmare waiting knowing you can start the healing if only you could stop feeding them gluten.  But I figure for future reference, having a solid diagnosis via biopsy is important. Good luck to you and your son.
    • Newbie Mom - How is my son feeling?
      Hugs to you and your daughter. My son and I are in the same boat, or at least,  paddling alongside your boat.  At their age being scrupulous about their diet is not only incredibly hard but socially isolating. Adults consider celiac people to be a pain so imagine what their young friends think.  Feeling so unwell and having no energy adds to their distress. And the thing is - I don't think at that age that they really understand that even the slightest bit of gluten will set them back badly.  I know my son is convinced one sweet won't matter. It really really sucks.  
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      No one in my wider family gets it, although my sister is certainly trying to understand. She gets that I will bring all food for my coeliac kids when we come for meals and is okay with that.    For other social events, I will suggest the meal is at my place so I can control the gluten.  But my biggest battle is my children's father (my ex husband) who refuses to get it, and thinks I am being stupid and trying to prevent him seeing V.  I have offered that V can visit but not eat nor stay the night.  Ex does not have the means or the brains to manage gluten free meals.    At this point it looks like I may need to go to court to get an order to prevent V from being forced to go and get glutened. I really really hope to avoid this, but its not looking good. 
    • celiac disease is psychosomatic
      I guess it's the "natural flavoring" which throws me off. It could or could not contain gluten and it's in so many products. I haven't been on a gluten-diet for as long as you...6 years. I may have bee undiagnosed and untreated for more than 25 years since i had signs that went back to chidhood. Yes, I have balance/anxiety/neuro issues. I know anxiety is connected to damage in intestines, but I don't know for sure if celiac causes balance/neuro issues. I was already tested for brain ataxia, but I didn't get too far on that. Well, there wasn't an exact test, but the neurologist noted that I was walking straight or something on those grounds so I must not have it. I know studies have shown Transglutaminase 6 antibodies indicate gluten ataxia, butthat test is not yet available to the public.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,516
    • Most Online
      1,763

    Newest Member
    milliew
    Joined