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Exhaustion, Anemia, Gi/flatulence/headaches
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I've just had blood results that show anemia, but went gluten free for 1week now. Have had horrible few months. Exhausted, hardly just getting up/dressed/washed. Months of serious flatuence, headaches and nausea. Finally, symptoms got so bad, starting vomiting, as if my food/body refused to accept food at all. About six months ago started with asthma age 54, everything gone downhill since. Every couple months they double my meds, had 1 asthma attack, vomiting. Also have ongoing migraine,plus compressed disc in kneck affecting nerve endings.

Eggs and cheese can be migraine triggers, but cheese is not so bad now. Doc wants to send me for tests. He put me on iron tablets and said it may take 3-4months to feel better. They want to find out what is making me anemic by putting a camera down my throat and taking a biopsy for celiac - which would mean taking bread beforehand for a while to show up in tests.

within 2-3days of going gluten free, my GI/flatulence gone, nausea gone, headaches radically reduced. So am happy to stay on this although it's going to cost a fortune.

Sourdough bread seems to keep coming up as a good idea. I love bread, cakes and biscuits, but since going gluten free, the substitute bread seems a lot more filling so you eat less of it. I put on over 2stone this last six months to. is sudden weight gain normal?

Am thinking of doing a hair test for intolerances, to idenitfy things properly, any thoughts on this?

My doc gave my some peppermint oil tablets to try 1/2hour before food, which seem to help. also I'm taking the Acidophilus

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Just remember you have to be eating gluten for at least 2 months prior to testing for celiac. Tests are not real reliable so if they come back negative don't worry. You can go on a gluten-free diet yourself to see if your condition improves. I have a feeling buyt your symptoms that gluten is the problem and I think you will be surprised what happens when you get off and stay off.

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Just remember you have to be eating gluten for at least 2 months prior to testing for celiac. Tests are not real reliable so if they come back negative don't worry. You can go on a gluten-free diet yourself to see if your condition improves. I have a feeling buyt your symptoms that gluten is the problem and I think you will be surprised what happens when you get off and stay off.

I don't think I can put my body through that again, I was soooo ill to the point of vomiting..I thought just a week or two would be enough to show up. I feel 100% better just after a week on gluten free. It does seem very common to have anemia pre diagnosis from what I've read on here and internet.

What do most people do about bread? do you bake your own? what do you think about gluten free sourdough bread?

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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