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Determined To Try Gluten Relief
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43 posts in this topic

BG Before Grain here too. And Muffin the cat head stopped throwing up when she went gluten-free. She really likes here gluten filled cat treats and doesn't even eat the gluten-free cat treats. But when I give her the gluten treats she gets sick every time. So she no get those anymore.

@ALicewa,

Hi Alice,

The thing to understand about celiac is it is an autoimmune condition. Your body isn't dumb and it will automatically start cranking out antibodies when you eat gluten. Think what would happen if it didn't. If our immune systems took their bloody time getting busy we would all die of infectious disease in no time flat. So even if you had a pill that digested gluten, it would be too late, because your body reacts to the gluten real quick. Celiac's not the same as lactose intolerance which is not autoimmune. You can take lactaid enzyme pills for lactose intolerance and it helps. But there is no immune reaction in lactose intolerance so not a big problem. it doesn't matter if it takes a couple hours for the lactase pills to digest the gluten. That is a major difference between celiac and treatments with pills and other non-autoimmune conditions.

You know how people get sick once and then they are immune to that disease right? That's because their immune systems have adapted to fight that disease and they don't forget. That's really helpful as we don't have thousands of people dying all around us with polio and measles and etc, etc everyday.

Thanks for the blog link about cheating on the gluten-free diet. That is a nicely written article there.

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Perhaps the autoimmunity is caused by this though?

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Perhaps the autoimmunity is caused by this though?

Once again.... Who is writing this? Are they a Celiac researcher from one of the Celiac Centers? A random guy on the internet who writes well? Are they selling something?

I don't have the patience to search the website to try to see if they have any valid credentials. I would think If its Columbia or Mayo, that would be listed & easy to find.

The writing (grammer) isn't what one would expect from a serious medical article or website. I would be leery of anything written there.

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Perhaps the autoimmunity is caused by this though?

Really?.....Are you kidding me? :blink:

They state on the site:

"CureZone started as a personal homepage in Norway."

Does this sound like someone who can give you solid medical advice? :blink:

Geesh, hun....it's time to give it up. :rolleyes:

You're just wasting your time searching for a "cure" on the internet.

And you would be very ill-advised to do a "bowel cleanse"--as Ravenwoodglass already told you on the other thread.

IF THERE WAS A CURE, WE'D KNOW ABOUT IT!!!!!!!!!!!

We have given you our best and honest advice. But you keep ignoring it.

Why do you keep posting about these "scam cures"?????

In my humble opinion, it would serve you best--and give you peace of mind-- if you would spend your time learning about celiac disease and how to cope and live with it.

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Ok, I'm getting the idea. That's why I'm asking you. I had no intention of getting the product from CureZone, I was just interested in what caused this problem in case I someday have kids. I know there's not a whole lot that can be done or prevented. Should stop living with regret. :unsure:

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Alice,

Read about celiac disease from a REPUTABLE SITE. From the nature of your queries, it is obvious you have no real understanding of it.

Knowledge is power. And with that knowledge, acceptance will come. Be healthy and be happy!

http://celiaccenter.org/celiac/faq.asp

Best wishes,

IH

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We use Merrick's BG--Before Grain.

A 100% RAW natural diet is the way to go!

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A 100% RAW natural diet is the way to go!

What are you feeding your cat? Raw chicken? Got a funny image of you letting some mice loose in the laundry room and putting the cat in. :D

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What are you feeding your cat? Raw chicken? Got a funny image of you letting some mice loose in the laundry room and putting the cat in. :D

I don't have a cat, but I did raise a couple of generations of winning show dogs on a raw diet. The lady I bought much of hard to find foods from had several cats whom she fed a fully raw natural diet. She died of pancreatic cancer a few years back, but I believe her husband kept the business going. If you google 'My Pet Carnivore' you will see many articles she wrote about feeding her cats and dog raw.

Jen

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I've ordered Gluten Relief! After hearing from 2 others who tried and said they did really well with it I couldn't resist. I took the first 6 today. I also got another thyroid product with it for Vitamin B12 absorption, so I'll let you know of my results. :)

If I were to run tests afterward which would you recommend?

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Damnit, Alice. Get it through you head that THERE IS NO CURE FOR CELIAC. The people who say gluten relief works are most likely shills or slightly intolerant people getting placebo effects. Their so-called clinical trial was a joke with completely incorrect statistics and their data actually failed to show an effect.

You've got to get over this denial before you give yourself neuropathy or another autoimmune disease from eating gluten. I really think you need counseling.

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Damnit, Alice. Get it through you head that THERE IS NO CURE FOR CELIAC. The people who say gluten relief works are most likely shills or slightly intolerant people getting placebo effects. Their so-called clinical trial was a joke with completely incorrect statistics and their data actually failed to show an effect.

You've got to get over this denial before you give yourself neuropathy or another autoimmune disease from eating gluten. I really think you need counseling.

Skylark - I wasn't even going to comment. Sadly, there is no point.

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Skylark - I wasn't even going to comment. Sadly, there is no point.

I keep hoping to get through to her... :(

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Yes, Alice, listen to Skylark.

Also, really think about this:

If Gluten relief enzymes actually worked, don't you think that they would be mass marketed to all the celiacs out there just dying to conveniently eat bread, buns, cookies, cereals, trips to MacDonalds and so on?

Don't you think that if these things actually worked, the manufacturer would be trying to make millions off them by marketing them via doctors, health care centers and so on?

You have been had twice, Alice:

1. Through your money.

2. Through your trust.

There's good, decent people on here who have been around the celiac block many times over and can offer good, sound support. It would really benefit you if you gave them some credence.

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If I were to run tests afterward which would you recommend?

I WOULD RECOMMEND THAT maybe you should HAVE YOUR HEAD EXAMINED. :blink:

Alice, I have the patience of a saint, but you've pushed even me to the wall with your silliness. I have begged you to get counseling for this denial you are in, haven't I? Haven't we all?

There is no cure or magic pill for celiac. You cannot keep risking your life by eating gluten and expecting a miracle cure to "wash it out". How many threads have you started with this nonsense? I saw your "poll" about giving your hypothetical children gluten. What was that all about anyway?

YOU NEED COUNSELING.

YOU ARE IN SERIOUS DENIAL.

YOU HAVE A POTENTIALLY LIFE-THREATENING AUTOIMMUNE DISEASE.

Do you even read what we write back to you on all these threads you start? I think you just post this nonsense and then laugh at us all working so hard to help you.

No matter what we say, you do the opposite. Just like a little kid would do. Last time, it was you threatening to eat a cupcake and we all tried to stop you and you ate it anyway. Then, against our advice, did a "salt water cleanse" that is dangerous. <_<

Do you think this is a joke? I do not find you funny.

Honestly, I am beginning to think you are just screwing around with us --and frankly, I am wondering what your purpose here is.

GET HELP.

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I ditto what SkyLark and Irish Heart have said..except I would have sworn some too! I'm beginning to wonder if you're just a shill trying to sell this rediculous product? SURELY you can't be that thick headed? :blink:

I'm just not going to respond any more to this nonsense!

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I'm sorry I wasn't trying to get everyone worked up. :(

I asked my MD what his thoughts were and he said sure, but be absolutely sure that I watch my symptoms closely and if I'm having none then I should redo the celiac panel periodically. Of course, he figured the chances of something working were slim.

I just wasn't sure if you'd have any additional ones like Cyrex Labs with Arrays that should be performed.

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Alice, you have heard from so many people who care about you and want you to know the truth about celiac disease.

"Of course, he figured the chances of something working were slim." Well, actually slimmer than that. Zero, based on current scientific knowledge.

This discussion is going nowhere, and is wasting the time of everyone involved.

Good luck with your quest, Alice. If it doesn't work, we will all still be here for you.

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    • Thank you! I will call and ask for a full panel and see where it leads!!
    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
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