Can Coeliac Mimic Meniere's Disease
Posted 09 November 2011 - 01:20 AM
Is it possible or probable that the anti bodies from Coeliac could be causing my hearing loss in my left ear. At one stage I went on a detox of liquids for two weeks and my hearing improved albeit slightly. I am unsure if it was because my diet was low in salt (which is related to Meniere's disease) or it was the fact I was also gluten free.
My hearing tests show a moderate loss in one ear and the graph follows a 'typical meniere's' diagnosis:
Only a slight variance on this.
As you can imagine though I am still clinging to the small chance that my tinnitus, vertigo and hearing loss is gluten related and when I cut that out the symptoms will disappear and maybe even the tinnitus and hearing may return.
Also since I am 22 spending the next 60 years of my life alcohol free, caffeine free and salt free is fairly daunting. So far I have come up with Vegetables & Nuts which I can actually eat without aggravating these two diseases. I cant do this. I am also unwilling think I wouldn't honestly prefer to be dead then spend the rest of my time eating vegetables and steak, it makes me gag the veggies and the steak you'll get sick of 7 days a week!
ATM I am going gluten free and just HOPING. I eliminated all antibodies in 3 months through strict dieting when I was 19, blood tests proved it, so ATM I am going gluten-free for about 3 months and if the hearing hasn't improved then I have to look at going salt free, although I will simply reduce salt I am not going to stop things all together because what is the point of even living if you cant enjoy the 'moments in life' (any moments no caffeine, alcohol, cake, takeaway absolutely f all, dirt and vegetates for a life time worse than jail) because of disease.
Anyway I saw a bunch of posts on here most from years ago and people who haven't responded to personal contact. In short has anyone had the syptoms did the hearing get better was it related are they two separate things SHARE.
Posted 09 November 2011 - 01:35 AM
Excellent link showing allergies and their relation to Meniere's. Many people diagnosed with Meniere's have been diagnosed with allergies to wheat, gluten, soy, and/or milk. Several people have simply reduced or eliminated these products from their diet and their vertigo and dizziness disappeared. For more information, research Celiac Disease. Experiment.
Yes this is the hope I cling too. Meniere's is progress I will end up death. At this rate if I could stop it now and it was coeliac related I could perhaps retain near normal levels. Significant difference. Two days gluten free and the ear is as loud and pulsating as ever though had a bunch of Salty chips today, from an uneducated view they seem to have turned up the volume on the tinnitus which means menieres which means deafness, disability and quality of life gone.
Posted 09 November 2011 - 02:03 AM
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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
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Posted 09 November 2011 - 02:15 AM
Posted 09 November 2011 - 06:03 AM
I think that my trigger to get this disease was Nasal spray to stop allergy. Hmm… It stopped the allergic reaction to dust, but gave myself Meniere's disease. I tried the spray ones and right after I got it. Then, year and half later a got different spray for my nose and week later I got it again. I blamed the sprays for it. I didn't use any spray from that time and I didn't have any problems with my ears.
Ask your doctor for antibiotics to dry the liquid. They should help you.
I also read somewhere that allergy to milk (casein) can cause Meniere's disease.
Posted 10 November 2011 - 12:10 AM
Posted 10 November 2011 - 08:03 PM
I make better diagnosis's on the internet by myself then this bum!
Posted 15 November 2011 - 09:06 AM
Posted 28 November 2011 - 02:27 AM
I went gluten free for 2 weeks it did absolutely sweet f--- all I aborted due to waste of time, waste of money, 0 benefits and huge inconvenience.
Hearing is getting worse everyday and got worse while Gluten-Free.
I think I got menires because I had coeliac got a virus and the immune system f'd up and now this menires is permanent one ear's hearing almost permanently gone in one ear in 6 months or so
Posted 08 June 2012 - 12:51 PM
There are many people that have more than one condition, especially with autoimmune diseases. So not seeing improvement with Meniere's after going gluten-free doesn't mean you don't have celiac disease. If you have celiac you need to stay gluten-free regardless of how your Meniere's symptoms act.
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Posted 08 June 2012 - 05:07 PM
I started having severe vertigo attacks almost 5 years ago (hours long, can' move). Was diagnosed with meniere's, mav, virus, bppv, etc. Every doctor said something different, nothing conclusive. I went gluten free almost 2 and a half years ago after hearing people at menieres.com say it helped them. So in the first 2.5 years of this vertigo stuff I had I think 6-8 severe attacks. In the second 2.5 years, after going gluten free I've only had two attacks. One of them was after an extremely stressful day, possibly the most stressful of my whole life, and the other was when I was quite sick with influenza. I cannot say with 100% certainty the gluten-free diet helped but I'm not willing to risk going back on gluten to test it. I've also gone very low sodium which may be helping - that was about a year or little more before going gluten-free.
However, what I haven't noticed a big difference in is the way I feel between attacks, motion sick and kind of off balance. My hearing is not too bad, it's worse in the high end than low end, which is opposite of menieres. I do have a lot of tinnitus which hasn't changed much over the last 5 years. It comes and goes.
Two weeks isn't long enough to give your diet time to work, you have months and months worth of damage so it will take time to heal. Be patient. If you are confirmed to have celiac you must stay away from gluten, no exceptions.
Vertigo is an extremely difficult symptom to get a correct diagnosis for and often both the doctor and patient end up very frustrated. The doctor because he can't fix it or even figure out what is causing it and the patient becaue she/he wants to be well and live a normal life like everyone else.
You are young and I feel so bad for you that you have to go through this at your age. Eating a special diet may make you feel like you are missing out on a lot. It is so hard to eat out when you can't eat anything on the menu and things like a barbeque may seem out of the question. It will get better. Please don't give up, there is no certainty that your hearing will get any worse. If it is found that gluten is the source of your problem then it most likely will not get worse and will probably get better, as long as you give up the gluten. I admit it is hard to eat gluten-free, especially when I see all these yummy recipes I want to try, I used to love cooking but not so much any more. I'm eating an anti-migraine diet, anti-meniere's, anti-celiac and anti-cholesterol, rather boring at times, but if it will keep the vertigo away it will be worth it.
11/2012 tested positve for 1 of the 2 celiac genes
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