Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Is There Any Reason To Go To A Gp?
0

7 posts in this topic

My husband has been experiencing a lot of gluten related symptoms/reactions lately. He won't even tell me what they all are but he is concerned it could be celiac, crohns, or cancer. The weird thing is he seemed fine until my DX and the change in our diet to Gluten Free. The symptoms seem to subside after he is gluten free for a while so I don't think it's cancer, but he has a difficult time maintaining the diet when he is out of the house and when he eats something with gluten, he starts having symptoms again.

This has been going on for a couple months now and he is ready to go see a DR. Should I make him an appointment for a General Doc, or should I send him straight to a GI Doc. (Ins doesn't require a referral from our GP). And any idea what tests they will want to run? Our ins won't cover any tests so I am trying to figure out the best way to go with this.

Thanks

0

Share this post


Link to post
Share on other sites


Ads by Google:

Send him to a GP, and one who is smart enough to tell him that if gluten makes him sick he shouldn't be eating it! The GI docs aren't nearly as good about gluten intolerance as the GPs. They'll probably try to celiac test and if your hubs hasn't been eating much gluten it may come back false negative. Your husband just needs to be told to exercise his common sense and stay gluten-free. ;)

1

Share this post


Link to post
Share on other sites

Go to a regular doctor with some celiac knowledge and get blood tests run first.

If this bears no fruit, you can also go over the counter to test for genes and intolerances to common foods like gluten, dairy, soy.

Not unusual for people who go gluten free, (and who need to do so, from a medical standpoint, because they are celiac or gluten intolerant) to become more sensitive to gluten after a period of time off of it.

0

Share this post


Link to post
Share on other sites

Have him read this thread:

0

Share this post


Link to post
Share on other sites

Have him read this thread:

I feed terrible for Bonnie because stomach cancer is very serious, particularly if it goes for months undiagnosed, but you can't jump to the conclusion that it had anything to do with her celiac disease. H. pylori infection is a more likely cause. There is an extremely rare leukemia associated with celiac but threatening people with one-in-a-million cancers to make them stick to a diet is bad karma.

0

Share this post


Link to post
Share on other sites




Send him to a GP, and one who is smart enough to tell him that if gluten makes him sick he shouldn't be eating it! The GI docs aren't nearly as good about gluten intolerance as the GPs. They'll probably try to celiac test and if your hubs hasn't been eating much gluten it may come back false negative. Your husband just needs to be told to exercise his common sense and stay gluten-free. ;)

I agree with you completely. How would I go about finding a good GP who would be sympathetic to gluten issues.( The irony here is his brother is a GP but he doesn't want to talk to him about his problem). He has been very low gluten for the last 6 months or so. What tests should he try to get done?

We are in the Nashville TN area.

0

Share this post


Link to post
Share on other sites

You need to gluten him up for at least two months to have a hope of the celiac tests working. Three months is a little better. He needs to eat 4 slices of bread a day worth of gluten. Anything with gluten like bread, pasta, cereal, or cookies is fine. If he starts feeling really ill eating the gluten, he might figure out the intolerance on his own. :lol:

For inexpensive home testing, you could order the CeliacSure kit. http://www.glutenpro.com/ They ship to the US for personal use. It is a home anti-TTG IgA celiac screening kit for $50 plus shipping.

At the doctor's, the bare minimum would be anti-deamidated gliadin IgA. It's the single most sensitive and specific celiac test available. You also need to ask for total IgA to be sure the test is valid. If deamidated gliadin is not available at the diagnostic lab your Dr. uses you could get the anti-TTG if you don't want to use CeliacSure. There are other tests but if I had to pay out of pocket, that's where I would start.

As far as finding a sympathetic doctor, do you have any sort of local celiac support group? They might know of someone good.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,503
  • Topics

  • Posts

    • I already did. Thats how i found the place. Its amazing to actually go to a restraunt again.
    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,417
    • Most Online
      1,763

    Newest Member
    Suzette Porter
    Joined