Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Is There Any Reason To Go To A Gp?
0

7 posts in this topic

My husband has been experiencing a lot of gluten related symptoms/reactions lately. He won't even tell me what they all are but he is concerned it could be celiac, crohns, or cancer. The weird thing is he seemed fine until my DX and the change in our diet to Gluten Free. The symptoms seem to subside after he is gluten free for a while so I don't think it's cancer, but he has a difficult time maintaining the diet when he is out of the house and when he eats something with gluten, he starts having symptoms again.

This has been going on for a couple months now and he is ready to go see a DR. Should I make him an appointment for a General Doc, or should I send him straight to a GI Doc. (Ins doesn't require a referral from our GP). And any idea what tests they will want to run? Our ins won't cover any tests so I am trying to figure out the best way to go with this.

Thanks

0

Share this post


Link to post
Share on other sites


Ads by Google:

Send him to a GP, and one who is smart enough to tell him that if gluten makes him sick he shouldn't be eating it! The GI docs aren't nearly as good about gluten intolerance as the GPs. They'll probably try to celiac test and if your hubs hasn't been eating much gluten it may come back false negative. Your husband just needs to be told to exercise his common sense and stay gluten-free. ;)

1

Share this post


Link to post
Share on other sites

Go to a regular doctor with some celiac knowledge and get blood tests run first.

If this bears no fruit, you can also go over the counter to test for genes and intolerances to common foods like gluten, dairy, soy.

Not unusual for people who go gluten free, (and who need to do so, from a medical standpoint, because they are celiac or gluten intolerant) to become more sensitive to gluten after a period of time off of it.

0

Share this post


Link to post
Share on other sites

Have him read this thread:

0

Share this post


Link to post
Share on other sites

Have him read this thread:

I feed terrible for Bonnie because stomach cancer is very serious, particularly if it goes for months undiagnosed, but you can't jump to the conclusion that it had anything to do with her celiac disease. H. pylori infection is a more likely cause. There is an extremely rare leukemia associated with celiac but threatening people with one-in-a-million cancers to make them stick to a diet is bad karma.

0

Share this post


Link to post
Share on other sites




Send him to a GP, and one who is smart enough to tell him that if gluten makes him sick he shouldn't be eating it! The GI docs aren't nearly as good about gluten intolerance as the GPs. They'll probably try to celiac test and if your hubs hasn't been eating much gluten it may come back false negative. Your husband just needs to be told to exercise his common sense and stay gluten-free. ;)

I agree with you completely. How would I go about finding a good GP who would be sympathetic to gluten issues.( The irony here is his brother is a GP but he doesn't want to talk to him about his problem). He has been very low gluten for the last 6 months or so. What tests should he try to get done?

We are in the Nashville TN area.

0

Share this post


Link to post
Share on other sites

You need to gluten him up for at least two months to have a hope of the celiac tests working. Three months is a little better. He needs to eat 4 slices of bread a day worth of gluten. Anything with gluten like bread, pasta, cereal, or cookies is fine. If he starts feeling really ill eating the gluten, he might figure out the intolerance on his own. :lol:

For inexpensive home testing, you could order the CeliacSure kit. http://www.glutenpro.com/ They ship to the US for personal use. It is a home anti-TTG IgA celiac screening kit for $50 plus shipping.

At the doctor's, the bare minimum would be anti-deamidated gliadin IgA. It's the single most sensitive and specific celiac test available. You also need to ask for total IgA to be sure the test is valid. If deamidated gliadin is not available at the diagnostic lab your Dr. uses you could get the anti-TTG if you don't want to use CeliacSure. There are other tests but if I had to pay out of pocket, that's where I would start.

As far as finding a sympathetic doctor, do you have any sort of local celiac support group? They might know of someone good.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,689
    • Total Posts
      921,759
  • Topics

  • Posts

    • Yes like a protein powder. I visit a local store there is so many brands and on every brand have write gluten free.that's way I confused which one is best any suggestions ! 
    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • GLUTEN-FREE CERTIFICATION · FOOD SERVICES ... Celiac disease is an inherited condition, meaning that genetics do play a role. The chances ... View the full article
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,692
    • Most Online
      3,093

    Newest Member
    EllianaEthan
    Joined