Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Elimination Diet - Success Story!
0

13 posts in this topic

Good Morning All-

Three months ago I could not get out of bed for more than an hour per day (had been gluten free for over two years but continued to get sicker and sicker)....you can read my other posts for more back story.

Today I am writing as a healthy, active, energetic, thankful woman.

On August 10th I began an elimination diet geared towards those with autoimmune disease. The first three days I had nothing but fruit and vegie smoothies. Since my base diet has been meat (I did not make sure it was farm raised, nor hormone free - due to cost to feed family of four); vegetables (no nightshades); fruit (no citrus or bananas as those bother my digestive system).

My health improved more than I can describe during the first week and has continued to get better nearly each day. I have gone from a body in complete pain, digestive mess with serious mental degredation (very serious brain fog/memory loss) that never slept more than an hour or two at a time to sleeping 5 solid hours each night, working full time (first time in years), cleaned and decluttered our home (wanted to do this every day for years but never had the strength for anything but barely getting thru the day without my kids suffering too much), exercise daily (ride my bike from 10 to 25 miles each day and will ski again very soon after sitting out the past two seasons).

After the first month I began challanging the removed foods. Approximately every three days I would challenge one item for a day (sometimes only ate it once because reactions were so severe). Two days back eating meat, vegies and fruit (I did cheat and eat some brown rice occasionally once I had a successful challenge to rice).

I am going to list some general reactions...if you'd like the complete log of symptoms, feel free to message me and I'll send you my detailed food log.

Peppers = severe joint/muscle pain and fatigue

Tomato = Mouth felt numb after 5 min, bloat, joints, brain fog, severe pain upper right abdomin (new pain to me) - better next day but joints still hurt - got worse all day - out cold by 6pm

Peas = felt like I took a sleeping pill

Peanuts = within an hour became very irritiable and continued to get angrier over the next hour -- reduced to uncontrolable tears at 2 hours

Soy = Major bloat - 8 months prego within 20 minutes of eating one cup soybeans - next day none had digested ;)

Corn = Achy morning after tortilla chips at night. Tried eating straight bowl of corn -- got violently sick within an hour…achy, foggy, REALLY sleepy -- two hours a bit better but itching started -- very bad itching like when dx'd with Celiac -- took ONE benedryl at 3 hours in -- helped in 20 mins

Beans - Black beans seemed fine, then tried red beans = felt drugged like sleeping pills while still eating them and then I locked up on way downstairs…Jack ran for benydryl -- not great the next day

Sunflower Seeds = While still at dinner table started bloating - joints locked up BADLY - took 4 enzymes, then benedryl - then real emotional - pain so bad it made be cry to hyperventilatation. Dave had to carry me down to bed cuz I could not move hips or shoulders AT ALL - once in bed snot factory - mucus clogged throat, nose - left ear leaked fluid - horrible pain in sholders, hips and back follwed by electrical pulses or tremors then feet went dumb to knees had Dave check if I could feel touch there and could. DH type itchy rash -- Then jaw locked up and couldn't talk -- dave poored water in my mouth and strangly I could talk again almost immediate. Second benydryl helped settle down mucus flow and calm me - fell asleep -- woke up around 2am locked up but much better -- 6am soaked in epsom salt - 7am some better, but not good enough to ride this morning :(

After the seed incident I decided to take a break until after the holidays to let my body recover from seed testing...a couple nights after the sunflower incident my husband accidentally used sesame oil in our dinner and I had another horrific night -- am now dx'd nut/seed allergic and carry epi-pen with me everywhere.

My story is truly amazing...all my family and friends have been speechless that I am back and back in no small way -- after spending so much of my life sick (I can now see I was much sicker than I ever thought -- a body compensates for an awful lot until it just can't anymore!). Another victory was my recent blood test results. All of my vitamin and minerals have been extremely low for years. A few weeks back every single vitamin and mineral All Bs, D, K, Iron, Ferritin, Copper, Zinc were ALL in the high normal range. Example - my B12 has always hovered around 200 -- recent test was 796!!!

I haven't been on celiac.com much lately -- but will try to follow this post to answer questions.

Wishing you all a pain-free day!

1

Share this post


Link to post
Share on other sites


Ads by Google:

Congratulations. I am also a big believer in elimination diets. That is what made a difference for me too.

1

Share this post


Link to post
Share on other sites

Good for you, glad you're are doing so much better! I too had to do much like yourself, still on a low acidic diet for the same reason. Our bodies are just amazing, they try so hard to keep functioning.....we just have to figure out what we need and can't have, and that takes awhile bt you did it!

I too just posted on my own progress today.....it was only 9 months ago that I was in ER, and like yourself I had so many issues, but I can say that I can look back almost like looking at someone else's life. The progress, while slow, has been amazing.

I wish you all the best for continued good health!

Annette

0

Share this post


Link to post
Share on other sites

Your journey into food intolerances is amazing. Thanks so much for sharing your story. It really reinforces the importance of a food journal and elimination diets.

I don't think there's any Dr that would have figured all of this out? You would have been labeled as a hypochondriac?

Several of the things that you reacted to wouldn't be too hard to avoid..but sunflower oil seems to be used quite a bit in commercial foods? I'm just omitting gluten and soy and it's hard to ind things without both sometimes.

I'm also trying a low salicylate diet, but not excluding them 100%. The elimination diet is hard.

Congrats to you for sticking with it and finding what was making you so ill. Happy skiing! :D

1

Share this post


Link to post
Share on other sites

Wow! Great job uncovering your problem foods! I'm glad you are feeling so much better and have a clear way to move forward!

0

Share this post


Link to post
Share on other sites




Thanks everyone!

So nice to finally find good health...hope everyone on this forum finds their way to same.

Happy Friday...oh it's only Thursday...correction -- Happy three day weekend!

0

Share this post


Link to post
Share on other sites

By the way, I love skiing too. I used to live in Vancouver, and Whistler/Blackcomb was my second home. Now I'm stuck in upstate New York. I do a bit of Nordic, but it isn't the same. Why is there no crying emoticon?

0

Share this post


Link to post
Share on other sites

By the way, I love skiing too. I used to live in Vancouver, and Whistler/Blackcomb was my second home. Now I'm stuck in upstate New York. I do a bit of Nordic, but it isn't the same. Why is there no crying emoticon?

I have family in Kingston/Hurley/Woodstock -- my cousin works in a snow sports store every winter -- she made it to our mountain with us one year...unfortunately it was the last days of the season and the snow was crud.

How long did you live in Heaven? We've skied all of California and Utah...but still need to do Colorado and BC!!! We live in San Diego so our closest hill is Bear Mountain...got early snow this year...I'll attach a pic from last weekend --

bear110511.jpg

0

Share this post


Link to post
Share on other sites

If you don't mind my asking, what elimination diet did you follow? I need all the help I can get. Thanks

0

Share this post


Link to post
Share on other sites

If you don't mind my asking, what elimination diet did you follow? I need all the help I can get. Thanks

Hard to explain in a post....as I researched many elimination diets online for quiet some time to combine all their advise into something specific for the research I completed. I'll be happy to send you the excel document that contains my personal food log...info for tracking challenges...some links for part of my research, etc.

0

Share this post


Link to post
Share on other sites

I lived in heaven for 16 years, from early teens to late 20's. Many of those years I had season's passes and friends with cabins up Whistler/Blackcomb. Blackcomb was built while I lived there. Those were prime skiing years. I was very lucky.

0

Share this post


Link to post
Share on other sites

Wow...that sounds like the perfect place to live from early teen to young adult. I'll have to get your advice when we head North...won't be for several seasons or more as I have one college freshmen and another headed to college in 1.5 years....but once college is paid for I aspire to be a ski bum!!!

0

Share this post


Link to post
Share on other sites

but once college is paid for I aspire to be a ski bum!!!

Me too. I have one going next year and another three years later.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,345
    • Total Posts
      917,406
  • Topics

  • Posts

    • Weird Reaction
      Yes, I was surprised about the MSG in broccoli as well. I just had a quick look now as I couldn't remember where I had read it but some mushrooms have it to. A Google search will bring up a few things. I always just thought MSG was an artificial food enhancer!! Insecticides are still a big possibility though. Why do you not want to try organic? We buy organic when we can and fruits and veges that are in season are usually the best and cheapest.  Thank you for the link, Cristiana. Very helpful. I have an appointment with my Naturopath in a couple of weeks and going to have a blood test done before that. She is excellent. Very knowledgeable and loves her work. Until then I'm not taking any supplements. I generally eat pretty well anyway so we'll see what she says. In the past I have used B12 injections (aka Neo Cytamen) which I found much better and safer than taken orally and very cheap. The energy boost was very noticeable. I didn't know it helped with anxiety though. She has also had me on Magnesium, Probiotics and Vitamin D3 and I also make my own Liver Tonic (Milk Thistle, Dandelion Root Powder, L-Glutamine, Taurine and Choline Bitartrate) which I use from time to time for a quick detox. Too much of anything can be bad but I think iron can be not real good in large amounts. Deficiencies can be related to gut health and/or competing for absorbtion with something else you may be taking I found. I'm no expert though but just a few things I've picked up during research. My normal GP told me to just eat some more red meat but I want to speak to my Naturopath first before supplementing. Her knowledge on nutrition is a bit more up-to-date.  I was just sitting there at lunch today after feeling great all morning and had a "weird feeling" come over me. Just a not quite right feeling. Very hard to describe and slight nausea. It's funny that as I get older any little thing I get I seem to think it's life threatening.  
    • Gluten and panic attacks
      There are great gluten-free pizza crusts out there, as well as good dairy free cheese. I find the key is to add good toppings, e.g. meats, carmelized onions, other veggies, white anchovies. Life goes on. Congrats. Hope the good feelings keep up. 
    • Gluten and panic attacks
      Just want to update incase anyone can find this helpful. I have stopped eating grains and dairy and everyday I'm feeling more and more like myself. It's amazing and I don't really care that I won't eat a regular pizza again. I mean 4 months ago I would have said I would die without gluteny soft pizza, now I am happy to never eat it again if it means I will never have to suffer a panic attack.
    • Daughter with celiac- need test result help
      Thanks so much for your reply and the encouragement! She has not had the dgp test. I will ask her doctor at the next appointment in two weeks. Her doctor is out of the country now for a family emergency so I can't talk to her before her appointment. Her thyroid is good. The whole thing has been tough - logistically dealing with the dietary change and how extremely careful we have to be. Emotionally - worrying about her health and her feelings about all of this. I'm happy her number came down so much. There's hope. I'm just praying there's not more wrong and trying to prevent any possible risk of cross contamination. It seems she's very sensitive. It's also tough she's a kid at school with gluten on every surface. 
    • Newbie: mother to coeliac kids
      Wonderful news to hear that he has finally had his testing done, and can go gluten free. I understand that he is afraid of needles. Most children are. It is great that the hospital have acknowledged his and your family's suffering. Hopefully now they will give him the A1 treatment that he deserves. I am really looking forward to hearing of his improvement, as no doubt he will come along in leaps and bounds. Children are remarkably resilient, and with any luck he will enjoy a healthy and bright future with adherence to his required diet. Way to go Mum, you have been through a lot, watching your boy suffer. I hope that you are handsomely rewarded with being able to watch him flourish now. Good luck with your older boy too. Keep us posted.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,478
    • Most Online
      1,763

    Newest Member
    Andrew Miller
    Joined