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Celiac & POTS

Macbre

By Macbre
in Coping with Celiac Disease

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Macbre Explorer
Macbre
Posted

I was just wondering if anyone else has both Celiac's and POTS (Postural orthostatic tachycardia syndrome)......I don't think they are related. It seems you can get POTS from a viral infection, which I had approx 3 years ago, but I was wondering if anyone else has it. I'm just curious to know is if you have both if the symptoms are worse when you get glutened. When I get glutened my symptoms are mainly heart related. Does anyone else have this?

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celiac-mommy Collaborator
celiac-mommy
Posted

I've had POTS since I was a kid. I don't have (active) Celiac. Both my kids do. Neither of them have POTS though.

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DonnaMM Explorer
DonnaMM
Posted

I have severe ortho static hypotension and severe tachycardia ( up to the 180s) but I have cardiomyopathy and my cardiologist does not believe they are related

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Gfreeatx Apprentice
Gfreeatx
Posted

Hi there!

I was actually diagnosed with POTS back in 2005 then Celiac in 2010. My doctors believe my POTS was caused by having untreated Celiac for years. When I went gluten free most of my POTS symptoms went away, but I can tell as soon as I get glutened as I will start having heart issues within 15-30 minutes after eating. I never had the traditional GI issues prior to my Celiac diagnosis...all of my symptoms were heart and ANS. Now though I have the GI symptoms along with the POTS symptoms if I get glutened. :(

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