Posted 15 November 2011 - 07:59 AM
I was diagnosed with Celiac Disease and a wheat allergy about a month and a half ago. I asked to have my children tested and they only ran one blood test on each child, which all came out negative. I'm really tired of fighting doctors over these issues and what I want, so I decided to give the two older children a choice to see if they notice a difference in any of their issues. They both decided to go for it. The only issue I've noticed with the 11 year old is the angry outbursts, and she is a little overweight, carrying it in her belly (I don't even know if either are really symptoms. The 8 year old has had tummy issues and bowel issues on and off, plus she is skinny and hasn't grown as fast as her sisters (She wears about the same size clothes as her 5 year old sister). The five year old sometimes gets canker sores, but with her I can't press the issue.
My husband thinks if I talk about wheat causing any problems, I'm going to cause our kids to be hypochondriacs. He has GI issues that I think are wheat caused as well, but he won't listen to me about it, and believes his only issue is an inherited weak sphincter, causing acid reflux. So, he doesn't like the fact there are three of us gluten free. Maybe he's just in denial. I know we're all tired of fighting with MY medical problems, but I really don't want my children to go through any of the stuff I've had to over the years, when it can be prevented.
Back to the 11 year old. She has actually been really sweet and almost no outbursts the last couple of weeks. A couple days ago, she started having outbursts again. I only realized this morning that it was about the same time I started having anxiety, rapid heartbeat and more extreme acid reflux/swollen tongue. It seems like a pretty strong correlation that we have been getting cross contaminated lately. I think the rice I bought (bulk, I know it was stupid) had some flour or something in it. I ground it up and used it to make bread and pizza the last few days.
I'm going to scrub out my grain mill really well. I bought some new grains-- bulk but in 25lb bags this time so there's no risk of CC from the other bulk items. I'm going to have to be a lot more careful now. I really hate going through all of this.
Posted 16 November 2011 - 03:15 PM
I can't imagine how hard it is to feed a family when some are celiac and some are not, but rest assured you're doing a great job as a mom. Good luck to you!
Posted 22 November 2011 - 01:18 AM
Maybe you shouldn't tell your kids that their problems are caused by wheat, I don't know. But at the very least you can tell them that not eating it anymore should make everyone feel a little better. If it clears up their tummy troubles, or other problems...thats fantastic. You can teach them about how to eat gluten free outside your home because it's healthier.
Maybe your husband is in denial...so much of what we normally eat is wheat based. If he doesn't have issues eating wheat, that means he can keep eating everything and anything...if he has seen the struggles you've gone through trying to become gluten free, i think that would push him even further into denial about the possibility of it being his problem as well.
But can anyone get mad at you for changing your family's diet to make them healthier? I don't think so. If you make that the focus, and it just happens to be gluten free because thats what YOU need to be healthy...thats just better for everyone right?
By the way, when I've eaten gluten I get extremely irritable and I'm prone to wicked tempermental outbursts that are completely outside my control. There is no reason your daughter isn't the same.
Posted 22 November 2011 - 02:49 AM
The first sign, aside from a belly ache, my almost 7 year old has when he accidently gets gluten is raging temper tantrums. Before gluten free it was an almost daily occurance, but very rarely has them unless he gets glutened.
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
celiac disease(positive IgA tTG, no biopsy- 11/2010)
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
Posted 22 November 2011 - 06:28 AM
Positive Celiac Blood Panel - Dec., 2009
Endoscopy with Positive Biopsy - April 9, 2010
Gluten Free - April 9, 2010
Celiac.com - Celiac Disease Board Moderator
Posted 27 December 2011 - 12:02 AM
I also used to bang my head against walls and hit my head really hard repeatedly. It seemed like something I could not prevent, I just had to do it and it felt really good to do. Have not had a single urge to do that since a year and a half ago when I went off of gluten, and other intolerances like dairy, corn, soy, eggs.
Posted 27 December 2011 - 04:38 PM
Posted 03 January 2012 - 09:31 AM
Posted 03 January 2012 - 09:37 AM
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