Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

The Obligatory "is This Dh?" Post.
0

18 posts in this topic

Hey guys- I've had what's always been diagnosed as acne

on my back and shoulderrs spreading all the way down to my butt since I was like, 10 years old. It's been unremitting, although it's less bad than it used to be. The skin of the affected area is also constantly red and pretty itchy. I always say the fastest way to my heart is via a good back scratch!

Here's a few pictures for reference. The bumps are red, and can definitely be painful, but they're not superating like acne is, if that makes sense. I'm curious as to whether this IS dermatitis herpetiformis. I'm kind of tired of going to the doctor's office and getting the hairy eyeball, like I have poor hygiene.

photo.jpg

And one with a little more contrast lighting.

photo2.jpg

0

Share this post


Link to post
Share on other sites


Ads by Google:

It's hard to tell because DH can present very differently on different people and depending where on the body it is.

I can only tell you how mine behaves...I feel a sensation of kind of prickly and itchy, then small itchy red bumps appear. If I have managed not to scratch them they will have little fluid filled blisters on them. Most of the time I can't see the blisters with the naked eye. I need a magnifying glass. When you get a new patch do you have someone who could take a look with magnification? The blisters are very fragile and break easily, even from clothing rubbing, so it might take a few tries.

Here is a link to some of the best pix of DH I have ever seen: DH photos

The "hairy eyeball"...I cracked up :lol: . I've been getting that for 8 years. It's hard to get a correct diagnosis if you have DH, and I'm beginning to think it is not only DH, it is any "non-specific" rash.

1

Share this post


Link to post
Share on other sites

Doesn't look anything like my DH did and it's not in a common spot for DH.

Richard

0

Share this post


Link to post
Share on other sites

Doesn't look anything like my DH did and it's not in a common spot for DH.

Richard

Really? Because from the above posters link, it looks like there are at least three different general clinical presentations of Dh- blistering, more of an acne type, and some really localized dark red spots over a large surface area. It also looks like it can vary from severe (holy schneickes, was I bit by a BROWN RECLUSE!?) to irritating annoying itchy red bumps. It also looks like it can appear anywhere on the body, including upper back and shoulders- there are at least three pictures of women who have very similar Dh in the exact same place I do. The pictures actually look almost identical.

Common areas appear to be the buttocks (ouch, I have to say), the groin, the upper back and shoulders and the stomach.

Dark red, large surface area:

dermatitis-herpetiformis-3.jpg

I've been bit by a spider! (Not really, but it looks just as painful)

dermatitis-herpetiformis-35.jpg

Chronic Bacne Presentation (Looks pretty darn similar to mine).

dermatitis-herpetiformis-1.jpg

More Bacne

dermatitis-herpetiformis-55.jpg

Symmetrical presentation of blistering, red type (what I'd consider probably the most common presentation based on the pictures)

dermatitis-herpetiformis-80.jpg

Point being, if my rash doesn't look like yours and isn't in the same place as yours...that proves what exactly?

Anecdotal evidence only gets us so far with Dh, generally speaking, because look, five different presentations on five different people! No wonder the doctors are confused.

0

Share this post


Link to post
Share on other sites

It's hard to tell because DH can present very differently on different people and depending where on the body it is.

I can only tell you how mine behaves...I feel a sensation of kind of prickly and itchy, then small itchy red bumps appear. If I have managed not to scratch them they will have little fluid filled blisters on them. Most of the time I can't see the blisters with the naked eye. I need a magnifying glass. When you get a new patch do you have someone who could take a look with magnification? The blisters are very fragile and break easily, even from clothing rubbing, so it might take a few tries.

Here is a link to some of the best pix of DH I have ever seen: DH photos

The "hairy eyeball"...I cracked up :lol: . I've been getting that for 8 years. It's hard to get a correct diagnosis if you have DH, and I'm beginning to think it is not only DH, it is any "non-specific" rash.

You have to laugh, and have a sense of humor about this- otherwise you're just gonna cry. Our bodies get beat up over years of celiac abuse!

Thanks for the link! I'd seen a few of those pictures before, but never so many in one place. Enormously helpful. It must be difficult to diagnose Dh because I presume doctors are taught that rash X looks like Y, not rash A can look like B, C, OR D, except when it rains,and then it might look like I, and don't forget to ask about the patients age, because then it can be P or Q....

0

Share this post


Link to post
Share on other sites




:lol: Saintmaybe; humor will make a survivor out of you. I know it's my #1 life survival tool.

Honestly, I get ones on my back that look like that & on that portion of my back too. I also get ones in many other places which present themselves quite differently. I think my body has seen any/all forms of dh on any given portion of my body at one time or another through this process. The one I'm most concerned with is.... GETTING THEM ALL TO GO AWAY!!! PERMANENTLY!

0

Share this post


Link to post
Share on other sites

Your pictures looks very similar to my diagnosed DH and is in the same areas as mine.

When I was 17 I did have it on my arms ( the week before my wedding :blink: )

Now (at 54) and for the past few years it is mainly on my shoulders ,back and bottom.

0

Share this post


Link to post
Share on other sites

Uhh, saintmaybe, you seemed to have been asking us if in our experience this looked like DH. I make no pretense that I can diagnose you in a photo, but like it or not, this looks absolutely nothing AT ALL like the DH I had for 20 years. Not even close. Mine looked like the guy showing us his elbow, although not quite that severe.

richard

0

Share this post


Link to post
Share on other sites

Lovegrov- rich, not trying to be rude, just asking an honest question. Because while it's not similar to yours, others have chimed in and said it DOES look like theirs. It's confusing! I think I've answered my own question, in that dh can probably only be definitively diagnosed via biopsy.

0

Share this post


Link to post
Share on other sites

I'm not diagnosed but gluten free works for me. I have to be extremely careful with gluten and salts/iodine. Eggs (yolk) are on my don't eat list now. I'm not game enough to even try seafood - my absolute favourite food. That will have to wait.

My DH went wild on my last day working at a bakery. I have it from head to ankle. :ph34r:

It looks like every DH picture I've seen, including the ones you have posted here(except one). And I've seen a LOT of skin pictures. I've been really careful to discriminate - legitimate medical (ie diagnosed) - and seen way too many pictures of other skin problems I'm glad I don't have. :P

The only pictures that don't resemble my DH are the ones like the one you tagged with "I've been bit by a spider! (Not really, but it looks just as painful)" It is way way way too painful and itchy to let it get so fluid filled. I describe it like toxin/acid/poison trying to get out of my skin and I have to help it out.

The different areas of my body appear slightly differently.

My hands/wrists are the most likely place to have the typical linear herpes looking ones. The few I get on my palms seem to be least itchiest. I know when I've been glutened because I get little bubbly ones on my fingers within the hour. These rarely appear when I've overdone the iodine.

The big (up to about a 75mm) and really nasty burning itch ones appear on my upper arm, upper thigh and buttocks. These are the ones that have (((thankfully!!!!!!!!)) had a very good reaction to gluten free.

My torso (belly, breast) tends to be much smaller bumps which are sometimes a bit like having blackheads.

My back is just like yours.

I can't wait to shave my underarms and legs :lol: Healing so shouldn't be too long now!!!

0

Share this post


Link to post
Share on other sites

Well guys, I can't stand the suspense. I also live less than an hour from Beth Israel, which has a major celiac research center and an appointed dermatologist (a Harvard professor no less) who can evaluate my Dh. I'm damned lucky to be able to take advantage of resources that other cellars can't, either financially or geographically. Making my appointment in the A.M.

0

Share this post


Link to post
Share on other sites

Well guys, I can't stand the suspense. I also live less than an hour from Beth Israel, which has a major celiac research center and an appointed dermatologist (a Harvard professor no less) who can evaluate my Dh. I'm damned lucky to be able to take advantage of resources that other cellars can't, either financially or geographically. Making my appointment in the A.M.

Have fun.

Yeah...if it acts like DH it probably is. That's the only consistency I've found in the zillions of posts compared to the scanty and repetitive info I've found.

0

Share this post


Link to post
Share on other sites

Well guys, I can't stand the suspense. I also live less than an hour from Beth Israel, which has a major celiac research center and an appointed dermatologist (a Harvard professor no less) who can evaluate my Dh. I'm damned lucky to be able to take advantage of resources that other cellars can't, either financially or geographically. Making my appointment in the A.M.

Good for you. Go, get it done with & then you can stop wondering & get on with whatever it is you need to do.

Let us know what turns up.

0

Share this post


Link to post
Share on other sites

Be sure to let us know how you go with the Professor!!!

0

Share this post


Link to post
Share on other sites

Hey guys- Made an appointment this morning with the professor. She's booked out until February unfortunately, but I guess if you want the best, you have to wait for the best. I figure this gives me time to finish my genetic testing, really update my food journal, and take some more time lapse pictures that might help make a diagnosis.

0

Share this post


Link to post
Share on other sites

UPDATE PART 2: I found a chiropractor that specializes in celiac disease that's not five miles away from my house and where I work. I am spoiled for riches lately. I'm making an appointment tomorrow to get this damn back realigned and get this sciatic pain evaluated, because, this hurts like a you know what. They also say specifically that they specialize in holistic and wellness evaluation. I'm sick to death of traditional doctors and pills. Give me a chiro or an acupuncturist any day. Cause you know what? They've always been the most helpful, even pre-diagnosis.

0

Share this post


Link to post
Share on other sites

Good idea. Apparently mine was incredibly obvious because my dermatologist, who is no celiac expert, took one look and knew what it was. I never even had a skin biopsy. Unfortunately, he didn't know at the time about the celiac connection to DH.

richard

0

Share this post


Link to post
Share on other sites

Wanted to say that my spots look EXACTLY like yours! Thank you! I've so far tested negative to the celiac blood panel test and a dermatologist did biopsy a blistery spot which came back negative but from what I've been reading here he did it wrong. He only took a slice off a spot, no punch and no unaffected skin.

Please do keep us posted as to what your doctors says. I'm off to find a new dermatologist.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,096
    • Total Posts
      920,334
  • Topics

  • Posts

    • Awok, Welcome to the forum.  Have you considered trace gluten?  Here is a study on the topic: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598839/pdf/1471-230X-13-40.pdf It could explain why you felt good for a while.  I personally was glutened badly last summer.  I have no idea what got me.  I suspect either a prescription medication or one gluten free product (not certified).  I ended up on a whole foods diet and avoided even certified processed gluten-free foods including grains until I was healed (three to six months).  
    • I've had a range of symptoms in the last 2 months and in the past few weeks I have discovered that my TTG abs (igA) levels were 41 (my igA tests were fine). The doctor said that he is pretty much certain that it is celiac disease and I am awaiting an endoscopy to confirm it.  Before I found out that my TTG abs (igA) levels were high, I noticed that my body was reacting really badly to dairy products. I went on an elimination diet and stopped all gluten and dairy products and felt much better. I carried this on after my results and thought that I must have developed a dairy intolerance due to my celiac. 2 days ago I accidentally consumed a glass of wine which I thought was dairy free but it contained Milk. I have not had any gluten.  I am currently in the middle of a flare up. All of a sudden rashes have started to appear on my hands and my anxiety has returned (usually not a anxious person). No diarhhoea, vomiting or digestive issues. I am currently suffering from muscle twitching, rashes predominantly on hands and feet, brain fog, pins and needles/numbness on hands, feet and arms. However, I have been tested for milk allergy and this came back negative. Is it possible that it is dairy that is causing my symptoms/autoimmune reaction and could this be a reason for elevetated TTG abs (igA) levels. Or has the doctor only picked up my celiac and missing something else. If it was dairy intolerance then I would have digestive issues but I don't seem to have any. Could it be the casein protein?  Anyone been in a similar situation or can anyone provide some insight? 
    • Hello Everyone, This is my first post here and I am writing to seek help from experienced people here. I have been suffering for over 4 years now and still no where close to having a solution/ satisfactory diagnosis of my problem. My problems started in Mar 2012 with sudden diarrhea which would not go away for days. At first, I was given general antibiotics medication which would help bring down the frequency for some days and then it would come back. Since then it has been going on. I am giving a time line and the series of tests and procedures I have gone through. Would like opinion from experienced and experts here. I can send the scans and reports if required. Would really appreciate the help. Male, Indian origin Mar 2012 - onset of symptoms - multiple bouts diarrhea - spaced 3-4 weeks, bloating, weight loss (to start with I was 74 Kgs), GP managed with antibitocs and loperamide for months Dec 2012 - consulted a GI doc towards end of 2012, Colonoscopy done - conclusion was "IBS" - was advised to manage stress. use Rifaximin and immodium Jan 2013 - Aug 2013 kept moderately fine for 3-4 months ..again started getting frequent diarrhea + weight loss (was around 70 Kgs) Oct 2013 - Consulted another doc, MD - stool and blood test - Ecoli and high Eosinophil Count, medication done for 5-6 months, montinored eosinophil from nov - Mar: always kept high.. came down but then again shot up in a month Mar 2014 - Consulted another GI expert - Endoscopy and duodenal biopsy done - H Pylori and Unremarkable Villious pattern, (weight 68 Kgs) - On and Off diarrhea continued. Given: Ivermectin July 2014 - again same doc - Blood test done: High Eosinophil count,  Colonoscopy and Ileum biopsy - preserved villous architecture, features of eosinophilic enteritis; Endoscopy  + duodenal biospy again - numerous H pylori bacteria, Preserved villous crypt ratio, features of eosinophilic enteritis > conclusion: I have eosinophilic enteritis. Started on Prednisolone (steroids) Aug 2014 - 3-4 days of severe diarrhea> weight came down to 65 Kgs. Hospitalised for 3 days - continued on Prednisolonerios Sep 2014 - After 10 days only again a serious bout of diarrhea - hospitalized again - put on IV fluid for 8 days - weight 59 Kgs. Colonoscopy + biopsy done: features of superimposed c. difficile colitis, non-specific mild colitis > c. difficle test came out negative. CT Enterolysis +Scan done: mesenteric lymphadenopathy > nothing wrong acc to docs. IgA deficiency found - diagnosed Celiac - advised for Gluten free diet.   Sep 14 - May 16: continued gluten-free diet, gained weight upto 63 Kg in Jan 16, but then started losing again and came to 59 Kgs in May. No signficant diarrhea. Minor issues. June 16 onwards: Again diarrhea started, still on gluten-free diet, weight lost - 54 Kgs now. hospitalised again under same GI doc - blood test - eosinophil high, CT Enterolysis done: Showing mucosal thickening in Jejunum and Ileum; Enteroscopy (going in jejunum) + jejunal biopsy - jejunal erosions + villous blunting, marked atrophic with V:C ratio of 0.5: 1 to 0:1. HttG blood test done - Came out negative> Conclusion : No gluten exposure (how?) + Refractory Celiac disease. June - July - have been suffering from continuous diarrhea (goes off for 5-6 days and comes back, bloating, trappings in abdomen - waiting for I don't know what. On Rifaximin + Ivermectin + Codeine Sulphate (for diarrhea) I am very depressed and have no clarity on what's going on. If it is celiac, why am I not doing better on gluten-free diet. If the villous damage is still there in small intestine, then why did I kept fine for Sep - May period? HTTG - negative now but was NOT taken in Sep when I was first diagnosed with celiac. Can we trust negative HTTG now and conclude that it has come down? I am 20 kgs down from my ideal weight and still going down. Have no clue what NOT to eat to stop this. Why is eosinophil always high. Can any of you expert help me to put my case to docs in other countries? With lots of hope, Alok          
    • So, I know I'm obsessing but...... University of Chicago Celiac Disease Center website says any total IgA result over 20 won't affect the celiac test.   If this is so,  I'm still confused as to what a weak positive ttg iga means even though her result was barely in this category.  Why bother having a weak positive anyway?   I just don't get it and our doc is on vacation so I won't know what he'll recommend for another week.  I'll be finding out this week if we can see a GI without a referral. Our lyme doc (she's had lyme, may still have it, like I said it's a long story) is having her do an IgG wheat test but I don't think that has any bearing on celiac does it?    
    • Hi!  I've had good luck at the Minnesota state fair because most food booths are only doing one thing so there is no cross-contamination. For example: french fries or chocolate covered bacon or Indian kebabs.   But I live in California and I am heading to the state fair today! Does anybody have any great food suggestions that are definitely gluten-free there? Thanks, Celiac C.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,131
    • Most Online
      1,763

    Newest Member
    Feralgurl
    Joined