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You Might Be Celiac If.......
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62 posts in this topic

You might be celiac if....

You've gone to the grocery store and were excited to find a gluten free isle just to turn around and see that it's also the bread isle. Doh! lol :D

GGGGRRRR..that is TRue for my local HEB grocery store!!! :angry:

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...if you find yourself "seeing celiacs everywhere" and have to stop yourself from telling them their obvious ill health is from gluten.... :ph34r:

That's so true... Everytime I meet people on forums and they complain about GI-problems I tell them about celiac disease. Call me weird, but I feel it's my duty to do so. celiac disease is largely undiagnosed here in NL: only 1 out of 8 is diagnosed and that's an optimistic number. Missing: over 125,000 patients. The biggest problem is that doctors don't take it seriously here. Most Dutch coeliacs have been sent home for years with "everyone's got GI-problems at some point, it's just IBS". It usually takes years before doctors actually start testing anything, and even then wrong advices are given.

My doctor put me on a diet before I ever had a biopsy. This elongated the whole process with a year, I even had to do a gluten reintroduction to get my biopsy. Gluten reintroduction failed horribly after a few weeks, leading to a nice stay at the hospital again. It was unsafe to continue, so my gastroenterologist gave me the diagnosis by evidence of my severe reactions to gluten.

After these experiences I feel that someone has to educate the public. If the doctors know nothing about it, how else should people know? So I never hide that I have celiac disease and I explain a lot to whoever wants to hear. The more people know about it, the better.

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Don't feel bad for the Dutch, Ellile -- they estimate that 97% of Americans are undiagnosed :unsure:

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I think this is probably anywhere?? I look at people now and think 'get off the gluten'.

anyways.. back to topic...

you might be celiac if you feel/look like crap

Aim should be to test babys at birth...

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You might be celiac when you go to the bathroom and can identify the last thing you ate. :blink: (yeah, I know it was gross) :P

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You might be Celiac if you think this is a funny gift for your GI when filled with vegetable soup:

The Toliet Mug

2449.detail.a.jpg

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Aim should be to test babys at birth...

I believe they do in Italy. Very wise.

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You might be Celiac if you think this is a funny gift for your GI when filled with vegetable soup:

The Toliet Mug

2449.detail.a.jpg

That is AWESOME!!!!!!.....Dr G. is sooo getting this for Christmas....

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After these experiences I feel that someone has to educate the public. If the doctors know nothing about it, how else should people know? So I never hide that I have celiac disease and I explain a lot to whoever wants to hear. The more people know about it, the better.

I could not agree more! Same for me!!!

My cousin says if I were Native American, my given name would be "She Who Sees Celiacs Everywhere" (much like that creepy little kid in the movie who sees "dead people" :lol: )

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Imagine you only have the energy to make 2 christmas cards. You might be a celiac if one of them goes to your grandfather and the other one to your gastroenterologist.

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Y M B a C.... if your GI doc is on speed dial.

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Y M B a C.... if your GI doc is on speed dial.

Y M B a C .......took me a minute! :P

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Y M B a C .......took me a minute! :P

Yes, but I know you all are quick....How lazy of moi, I know....My Mom was here for a week and it was my first THX since 2006 that I was NOT SICK (YAAAY!!) and I was a hostess once more and I am a wee bit tired today. whew. :lol: eating pie and being lazy

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There's a stomach bug going around and you are actually jealous of the people with diarrhea. (true story lol)

:lol: Let me guess, you also get C after being glutened?

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Here is a thread that was begun several years ago....sit back and enjoy!

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You may be Celiac if ... you lose your sense of humour for a number of days at a time..

and you are SO much more grateful than others when you get it back. :)

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You may be Celiac if ... you lose your sense of humour for a number of days at a time..

and you are SO much more grateful than others when you get it back. :)

:lol: Glad you're feeling better, kiddo.

Y M B a C if you totally understand when someone is feeling out of sorts because they don't feel so hot.... ;)

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You might be Celiac if....

You have in depth discussions on toast, toasting times and toasters.

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You may be a celiac when...you have to recite the celiac information in your head that you'll be telling people for the rest of your life, and your getting good.

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...if you wait for the first Tuesdsay of the month to get 20% off at your favourite store that stocks those expensive gluten-free flours and recognize everyone in the store... ;)

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Y M B a C if you look forward to reading funny new posts on C.com

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......You roll your eyes at someone discussing a "tummy big" that gave them a day of gastrointestinal issues.

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......You roll your eyes at someone discussing a "tummy big" that gave them a day of gastrointestinal issues.

:rolleyes: Do you just wanna say "waaaaa, poor you!" and then play a tiny fiddle on your fingers? :lol:

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Here is a thread that was begun several years ago....sit back and enjoy!

Thanks Lisa, what a great laugh and smile I have now. Thanks for sharing that post.

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  • Topics

  • Posts

    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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