Jump to content



   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Newborn - Mother With Celiac


  • Please log in to reply
11 replies to this topic

#1 Swimmr

Swimmr

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 282 posts

Posted 16 November 2011 - 04:05 AM

Hi all...it's been QUITE a long time since I've posted. But I have been lurking here and there. My elimination diet was successful by the way.

So in that amount of time that I've been MIA, I managed to get myself pregnant and hubby got deployed. He's due back really soon. However I went into labor 4 days before my EDD. My biggest fear was that she would have Celiac like me. DH has never been tested and doesn't want to. I can't talk him in to it - even for the sake of our baby. He says that it wouldn't matter since I'm Celiac and we all eat gluten free anyways. Well...right now my baby is 9 days old. Her poops look like they are supposed to so I'm sorta looking for other ways I can know if something I am eating is bothering her gut. I know that most Celiacs will have at least ONE other intolerance to something. For me it's soy. So I stay soy and gluten free.

I am too nervous/scared to try an elimination diet while breast feeding. I feel it would cause me a little too much stress. I did one over a year ago for myself with success, like I mentioned but I just don't feel it's "safe" to do for my daughter.

Whats happening is during feeding or right after she'll go from 0 to screaming bloody murder like I pinched the crap out of her. She seems angry/mad. I'll do everything - swaddling, rocking, talking to her, reading to her, shooshing her, bouncing, etc. I can't figure out what it is aside that it may just be something as simple as her fighting going back to sleep and since she is so new, there are so many things that both of us are still unsure about. Ya know?

Anyways, what can I do now or what signs are there that would ease my mind that she is getting ahold of something through my milk?

Thanks all.
  • 0
-Self-diagnosed gluten/wheat intolerance 2007. Negative (basic) blood test for celiac disease March 2009.
-Diagnosed positive for Celiac 5/11/2010!!
-Vitamin D low (last year was deficient), Iodine low, Protein S low. Balance/dizziness not related to Celiac.
-Elimination diet 11-4-2009 and ended 02-28-2010. Tolerating dairy again. Highly intolerant to soy, sensitive to green peas and corn kernels.
"Oh CRAP! Are you SERIOUS??

Celiac.com Sponsor:

#2 Di2011

Di2011

    Advanced Community Member

  • Members
  • PipPipPipPipPipPip
  • 660 posts

Posted 16 November 2011 - 05:09 AM

What is your gluten free routine? NO wheat, etc.?
Have you had to be careful about wheat/gluten derivatives when you were gluten-free?
What products are you using or using with bub for bathroom - soap, shampoos etc?
  • 0

#3 Di2011

Di2011

    Advanced Community Member

  • Members
  • PipPipPipPipPipPip
  • 660 posts

Posted 16 November 2011 - 05:12 AM

and never (like I did) think (be told) that it could be something that wasn't coming from you
  • 0

#4 GottaSki

GottaSki

    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,819 posts

Posted 16 November 2011 - 05:36 AM

First - Congratulations on the birth of your beautiful baby girl!

Second - Thanks to you and your husband for his service to our country.

Third - If you don't take care of you, you won't be able to care for your baby. Celiac does indeed run in families. All three of my children and two grands have at least a major gluten intolerance along with intolerance for a variety of other foods. It took over 25 years for me to be diagnosed Celiac and I still got sicker until I removed everything that was offending my body. I got a gene test and carry a pair of one celiac gene and one of another...because of the pair...all of my kids carry at least one gene.

If you already had success on elimination diet...what did you find were your problem foods? If you just eliminate those there are plenty of the most healthy foods for you and the little one left (btw - I nursed all my kids and each one had strange reaction to one food (different food for each) back then I was no where near a celiac dx and just thought some foods "bothered me" so it made since that some would bother my kids.

I am no doctor...if you are staying gluten and soy free for yourself...the extreme pain could be caused by somehting else. My DH (not celiac) had pyloric sphincter valve problem as infant - which is more common than you would think....he projectile vomited until it was taken care of...that runs in families too...luckily me kids didn't get it...but my nephews did. Talk to your pediatrician...

Also...silly question but are you patting her back until you get a good burp? With one of my kids it took forever to work that bubbles out, if I didn't get them out he was very sad shortly after eating.

Good luck to you - all three!
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#5 Swimmr

Swimmr

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 282 posts

Posted 16 November 2011 - 05:42 AM

What is your gluten free routine? NO wheat, etc.?
Have you had to be careful about wheat/gluten derivatives when you were gluten-free?
What products are you using or using with bub for bathroom - soap, shampoos etc?


I'm exclusively gluten free...all derivatives, everything. I have always followed cc issues carefully and do not subject myself to them down to the toaster and baking racks in the oven. I don't not think it can't be anywhere. My coworkers thought I was a bit psychotic, but whatev.

I haven't fully "bathed" her yet. She's had a few wipe downs with a lavender and chamomile tea mixture with a drop of olive oil and a drop of castile soap. Her skin looks pretty good except for the lingering "newborn" rash. But that is clearing up nicely.
  • 0
-Self-diagnosed gluten/wheat intolerance 2007. Negative (basic) blood test for celiac disease March 2009.
-Diagnosed positive for Celiac 5/11/2010!!
-Vitamin D low (last year was deficient), Iodine low, Protein S low. Balance/dizziness not related to Celiac.
-Elimination diet 11-4-2009 and ended 02-28-2010. Tolerating dairy again. Highly intolerant to soy, sensitive to green peas and corn kernels.
"Oh CRAP! Are you SERIOUS??

#6 Swimmr

Swimmr

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 282 posts

Posted 16 November 2011 - 05:50 AM

First - Congratulations on the birth of your beautiful baby girl!

Second - Thanks to you and your husband for his service to our country.

Third - If you don't take care of you, you won't be able to care for your baby. Celiac does indeed run in families. All three of my children and two grands have at least a major gluten intolerance along with intolerance for a variety of other foods. It took over 25 years for me to be diagnosed Celiac and I still got sicker until I removed everything that was offending my body. I got a gene test and carry a pair of one celiac gene and one of another...because of the pair...all of my kids carry at least one gene.

If you already had success on elimination diet...what did you find were your problem foods? If you just eliminate those there are plenty of the most healthy foods for you and the little one left (btw - I nursed all my kids and each one had strange reaction to one food (different food for each) back then I was no where near a celiac dx and just thought some foods "bothered me" so it made since that some would bother my kids.

I am no doctor...if you are staying gluten and soy free for yourself...the extreme pain could be caused by somehting else. My DH (not celiac) had pyloric sphincter valve problem as infant - which is more common than you would think....he projectile vomited until it was taken care of...that runs in families too...luckily me kids didn't get it...but my nephews did. Talk to your pediatrician...

Also...silly question but are you patting her back until you get a good burp? With one of my kids it took forever to work that bubbles out, if I didn't get them out he was very sad shortly after eating.

Good luck to you - all three!


Thank you and thank you :) Yeah I wasn't gluten free till 2007, also 25 years as yourself.

My elimination diet revealed that I most def have an issue with soy. Green peas not so much anymore and corn was an issue, but not anymore. So soy is the only other allergen I am intolerant to besides gluten, of course. So my milk IS gluten/soy free.

When I pat her back I almost feel as if I'm beating her, lol...I know that with babies some need a "good" long patting. She most times DOES burp.

I'm leaving to the side that she's just cranky and not sure what she wants. She always start rooting when she has the screaming fits, but once I put her on my boob she'll pretend to want it for a few seconds and start thrashing her arms and grabbing my boob and will shake her head as if to say, "I want it, I don't want it...I WANT IT...I DON'T" - I *think* she wants to be pacified without the flow of milk. Does that make sense?

I just really hope she's not having issues from me. Right now my diet includes: Eggs, with a tad bit of shredded cheese, oatmeal, apples, bananas, chicken, potato, jasmine rice, carrots, cantaloupe, orange juice, LOTS of water, green beans....some hamburger...nothing out of the ordinary. The only thing I thought it could be was the cheese and eggs. I think I'm going to stay away from those two things starting Monday and see what happens. That is if she still has her screaming fits.

Thanks! :)
  • 0
-Self-diagnosed gluten/wheat intolerance 2007. Negative (basic) blood test for celiac disease March 2009.
-Diagnosed positive for Celiac 5/11/2010!!
-Vitamin D low (last year was deficient), Iodine low, Protein S low. Balance/dizziness not related to Celiac.
-Elimination diet 11-4-2009 and ended 02-28-2010. Tolerating dairy again. Highly intolerant to soy, sensitive to green peas and corn kernels.
"Oh CRAP! Are you SERIOUS??

#7 GottaSki

GottaSki

    "The past is the past...I've got places to be."

  • Advanced Members
  • PipPipPipPipPipPip
  • 4,819 posts

Posted 16 November 2011 - 05:59 AM

Take her to see her doctor...my Granddaughter was just like that and it was something structural with her digestive system. Highly doubt anything you are eating could bring the reactions she is having. I sent you my email address in case you want to chat as I don't always check this forum.

Have a good day! Get some rest whenever you can.
  • 0

-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#8 Roda

Roda

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,620 posts

Posted 16 November 2011 - 06:14 AM

Dairy can be problematic for for babies. I had to eliminate dairy with both my boys. They would scream for hours. I was not gluten free for either one. For my oldest son, dairy was the only thing I eliminated and after that he was as happy as a lark. I had to eliminate much more for my youngest, dairy, rice, oats and tree nuts.
  • 0

Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


#9 glutenfreemamax2

glutenfreemamax2

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 165 posts

Posted 16 November 2011 - 08:19 AM

Ok, here is the certified lactation counselors' view :-)

1. Are you on any meds?

2. What kind of delivery (section/vaginal)

3. Can you feel yourself let down (tingle)?

4. Did you get engourged?

5. Do you own a pump?

Could be dairy and eggs. Also look at the oj. Very acidy.

I am nursing a 3 month old. I'm gluten-free and have been through my pregnancy. If I get to much cheese he's miserable. I feel your pain:-)
  • 0
Gluten free since 10/1/10
3 year old gluten free since 10/16/10
Diagnosed with IBS in 2000
Appeared on the Dr.Phil Show 9/23/10
started working with Dr.Phil's nurtitionist and he discovered the gluten/dairy intolerance
Labs drawn on 10/16/10 waiting on results
10 pounds and 15 inches off so far!

#10 Swimmr

Swimmr

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 282 posts

Posted 16 November 2011 - 09:47 AM

Ok, here is the certified lactation counselors' view :-)

1. Are you on any meds?

2. What kind of delivery (section/vaginal)

3. Can you feel yourself let down (tingle)?

4. Did you get engourged?

5. Do you own a pump?

Could be dairy and eggs. Also look at the oj. Very acidy.

I am nursing a 3 month old. I'm gluten-free and have been through my pregnancy. If I get to much cheese he's miserable. I feel your pain:-)



:)

1. I am on valtrex, however have been scared to take it even though it's safe. Haven't had any since her birth date (11-7). But I am taking a prenatal still, which I was taking 8 months prior to conception for the vitamin D content. I take a fish oil and have been through out pregnancy. I also take a probiotic and have been since 8 months prior to conception. That's all.

2. I had a home water birth - vaginal of course Posted Image (I say that with loads of pride).

3. I haven't noticed a "tingle" when I let down. SOMEtimes I'll let down before I can get her on me...other times she's on me so quick because I try not to let her get fussy. I feed on que, not demand. I suppose the tingle I feel a couple seconds after she latches could be the tingle I read about. Not sure, really.

4. Nope. I was extremely full the first night I had all my milk in...I started getting it in the second day after birth. The third day I had it all and that night I was really full, but no engorgement.

5. I don't own a pump...yet. I'm getting one. I will need one later.


  • 0
-Self-diagnosed gluten/wheat intolerance 2007. Negative (basic) blood test for celiac disease March 2009.
-Diagnosed positive for Celiac 5/11/2010!!
-Vitamin D low (last year was deficient), Iodine low, Protein S low. Balance/dizziness not related to Celiac.
-Elimination diet 11-4-2009 and ended 02-28-2010. Tolerating dairy again. Highly intolerant to soy, sensitive to green peas and corn kernels.
"Oh CRAP! Are you SERIOUS??

#11 StephanieL

StephanieL

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 799 posts

Posted 16 November 2011 - 11:34 AM

:) I had a home water birth



WTG on a home water birth! I just had my second home birth (10/4)

I am wondering if overactive letdown is a possibility? I know my little man gets really angry when I letdown. I try and take hi off and let the milk go onto a burp cloth and then re-latch him.

If his diapers are fine, skin is fine and no "red ring" around his anus, I would not look at allergies/intolerances.

Good luck Mama!
  • 0

#12 tarnalberry

tarnalberry

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 9,542 posts

Posted 16 November 2011 - 01:10 PM

Sounds like fairly normal breastfeeding issues. It also sounds like you might have wither oversupply and/ or overactive letdown. I highly recommend reading everything you can on kellymom.com (GREAT respite on breastfeedif), go to a La Leche League meeting for some help, and maybe find a lactation consultant. (Might even look for a postpartum doula!)
  • 0
Tiffany aka "Have I Mentioned Chocolate Lately?"
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
Bellevue, WA


0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: