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Please Help Me So Confused - Test Result Questions
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6 posts in this topic

I will not go into my very very long story and symptoms list yet. I just had some blood testing done. IGA TTG. The nurse just called me back and told me it's showing negative. She is saying the range is 0-19 for a postive and my IGA was 6. That is the only number she had to give me. I have a call back in to her to ask what the total was, also asked to have the dr. call me back. In the meantime my blood tests showed high white blood cell count (this has been elevated for as long as I can remember and they never seem to know why) I also showed high for immflamation. I also had a complete GI Profile done with my functional medicine dr about a year ago now. That testing was done with (Company Name Removed - They Spammed This Forum and are Banned) and says the following:

Fecal SIgA 108 Ithink this is the range over on the side (5-161 mg/dl)

Anti-Gliadin SIgA 6.2 (<=21.4 mg/dl)

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Symptoms

Bloating (looks like I am 4-5 months pregnant after eating)

Gas

Constipation

Anxiety

Fatigue

Coughing after eating

Elevated White Blood Cell Count

Elevated Inflammation found in blood test

+2 yeast/fungal overgrowth found in fecal test

Triglycerides High in fecal testing

PH low in fecal testing

Major Bladder pains possible IC starting, bladder spasms

Sinuses Stuffy almost always

I have noticed that it seems certain places I eat with get me very sick. Like double over ER cramps. From Red Robin, sometimes from Movie theatre popcorn/butter. I am not sure if something is in the grease bothering me at the restrants or what.

TMJ

Migraines

I have been to several Gyno Dr's, GI Dr, Naturopath, Functional Medicine, Kinesiology, Urology, Family Medicine.

What are the best tests to have done to find out about other intolerances to food?

As a side note my daughter who is 2 had a severe outbreak of hives Urticaria that lasted 9 weeks straight this summer. Finally clearing up. I notice that when she eats certain things she tends to start to get them back. Possible triggers tomatos, chocolate, peanuts.

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With the yeast/fungal overgrowth, low pH, and malabsorption I imagine you'll show rather a lot of sensitivities. It doesn't sound like celiac is your problem, although you should probably be off both dairy and grains for a time. With all the fungus and yeast, your GI tract will not work properly. Food chemicals get into your bloodstream, causing intolerance and inflammation. The problem chemicals go out your kidneys into your bladder, where they cause pain and cystitis while they sit there all night. Opiate-like peptides from milk and gluten mess up your immune system too.

Has your naturopath talked about addressing the yeast overgrowth with probiotics and diet? Your daughter may need something similar because if your gut bacteria are messed up, that's what she got too.

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It doesn't look like you had a full celiac pannel done only the tTG. It includes: Total IgA (to validate the IgA testing), IgA/IgG tTG(tissue transglutaminase antibody), IgA/IgG DGP(deamidated gliadin peptide), IgA EMA(endomysial antibody), and if the newer DGP test isn't available(some labs don't perform it), then IgA/IgG AGA(anti gliadin antibody). Your symptoms could be from gluten intolerence or celiac, but could be from something else also. I would request the other tests to be done. Looks like you need to address the yeast overgrowth. My youngest had a bad case of intestinal yeast overgrowth, thrush, and skin yeast infection in the diaper region as a baby. It took awhile to get him over it. He had to take medicine both orally and topically. He has also been on probiotics since a baby too.

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Thanks to both you of you for the reply's. I didn't think I had celiac probably, but I did want him to do the FULL panel, which he did not! My Functional Medicine Dr. feel's that based off of the GI Profile I would be considered intolerant. These yeast/fungal overgrowth the GI Dr. pretty much laughed at, and asked me how much money I spent on that. He said there are thousands of bacteria

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It's a vicious cycle. The intolerance and yeast overgrowth produces inflammation, which makes the "leaky gut" and intolerance worse. You have to get off wheat and other foods that are causing problems, and you have to re-establish healthy bacteria in your gut.

I would strongly suggest you go onto GAPS diet. http://www.gapsdiet.com It is designed to shift your gut back towards healthy bacteria. You do have to be willing to cook, because it's fairly restrictive. It's NOT permanent, but you may be doing it for much longer than six weeks (Dr. Campell-MacBride says up to 2 years). You may never tolerate large amounts of refined sugar and starch. Once the yeast gets going, it's a lifelong battle to keep it at bay.

If you tend to "fall off the wagon" on a tough diet you may be able to speed things up with diflucan. Nystatin is also used for GI yeast but it won't help your bladder. Be aware that you still have to limit sugars and carbs and take the probiotics to keep the yeast from growing right back. I personally strongly prefer natural measures to drugs.

Also if there is mold in your home, have tested to be sure it isn't a dangerous one. Black mold is rare but it can cause all sorts of health problems.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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