Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Dry Mouth A Symptom Of Celiac?
0

22 posts in this topic

I have really bad dry mouth. Is this a symptom of Celiac? Any ideas what I can do? I have been drinking a ton of water and got a humidifier in my room, tried a lot of different mouthwashes and chewed sugar free gum. Nothing is helping.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I haven't heard of it myself, but it can be a sign of other things. I think you should see your Dr.

0

Share this post


Link to post
Share on other sites

Absolutely! If I recall (the percentage), you absorb 75% of your fluid intake in your small intestines. If your intestines are damaged due to Celiac, you're not getting adequate hydration.

Listen to your body and drink as much as it asks for. ;)

0

Share this post


Link to post
Share on other sites

Dry mouth and eyes can be an autoimmune disorder called Sj

0

Share this post


Link to post
Share on other sites




I used to get dry mouth periodically before I was diagnosed with coeliac disease. I don't think it's anything to worry about (assuming coeliac is the cause). My doctor recommended a gel for my mouth which performs almost the same function as a moisturiser for your skin. It worked to some extent. I'm in Australia - so I don't know how available the gel is in the US - but I just bought it over the counter here.

0

Share this post


Link to post
Share on other sites

Yes - exactly skylark. There is a correlation between SJogren's and Coeliac, if you are getting things like dry eyes and dry mouth you should see your Dr.

0

Share this post


Link to post
Share on other sites

Well im going to talk to a GI on the 23rd so I will see what she has to say about it. I went through so many blood tests in the past few weeks. Im sure if it was anything serious they would have found it in the tests? Also my doc didnt say anything at all about my vitamin levels. Should I just assume there fine?

0

Share this post


Link to post
Share on other sites

They have to do specific tests to check for autoimmune disease and I guarantee you they wouldn't do them unless there was a reason for it. Anyhow - ask your GI and see what he/she says.

0

Share this post


Link to post
Share on other sites

I didnt know that. I just figured they would check for everything when I went for my physical. Thanks beebs.

0

Share this post


Link to post
Share on other sites

I have really bad dry mouth. Is this a symptom of Celiac? Any ideas what I can do? I have been drinking a ton of water and got a humidifier in my room, tried a lot of different mouthwashes and chewed sugar free gum. Nothing is helping.

If your mouth and/or eyes are dry enough that you are noticing it, then there is a strong possibility that you may have Sjogren's Syndrome. I have Sjogren's and there isn't much you can do for it except keep yourself hydrated, chew gum to encourage saliva production and use Biotene mouthwash, which is made specifically for those with extreme dry mouth. There is blood work which can be done to test for it and those would be the SS-A and SS-B antibody tests. However, it's like Celiac. You can have a raging case of Sjogren's and not pop positive on your blood work.

I had all the symptoms and knew I had it but never bothered to go to a doctor about it because their track record with autoimmune disease is poor. If your blood work is negative, then they move towards a biopsy of a salivary gland. No way was I going to let them do that, especially when I was so blatantly symptomatic for Sjogren's. My doctor insisted on blood work, which I let her do but told her I knew had it, so this was just to make her happy. My antibody levels were sky high.

Along with Celiac testing, they insist on multiple tests for diagnosis for Sjogren's. Do diabetics have to go through multiple tests just to get a diagnosis? As you can see, I have little patience with the medical profession! ;) Other symptoms of Sjogren's are a fissured tongue (from being so dry) and my favorite, the bread test. I cannot swallow a bite of bread without water or liquids or I will choke. That's how deprived of saliva I am. If you have this issue also, you probably have it. Then there is the dry eye....very fun!

You may want to ask about the blood work as that's pretty easy testing but a negative test does not rule out Sjogren's. Good luck to you!

0

Share this post


Link to post
Share on other sites

Thanks for the detailed post Gemini. My eyes dont get dry at all. My mouth is fine during the day when I can get water in. I havent ate bread since I was diagnosed with Celiac a few weeks ago but I dont think I would have that much of a problem. I tried Biotene, didnt help at all. I will see what the GI has to say then maybe go in for testing to see whats up. I really dont mind all the doctors as much as you, I live pretty close so thats a good thing.

0

Share this post


Link to post
Share on other sites

See - I don't have dry eyes- or what I mean is, I don't feel like I have dry eyes, they don't feel gritty or annoying or anything. But I had the shirmer's test and scored 0-0 which means I produce no tears when there is a foreign thing in them (dry as you can get) - we don't have the salivary gland test in Oz - and my bloods are negative. At this stage I am undiagnosed but have something of the connective tissue autoimmune stuff going on. As Gemini said - Autoimmune diag can be a royal pain. Although I do think that you should still seek a diag if possible. Sjogren's can cause other things, not just dryness. Anyhoo. bloody autoimmune diseases!

0

Share this post


Link to post
Share on other sites

I get a disguisting, coated, dry mouth from eating cheese. It usually shows up when I am asleep and is terrible for a few days if I eat cheese. It's better when I eat or drink, but comes right back a bit after I'm done. I also get BO and dandruff along with the bad breath and dry mouth. Does this sound like what you get?

0

Share this post


Link to post
Share on other sites

Hey domesticactivist = that sounds like hairy tongue? Do you think it could be that? I get it when I'm on antibiotics and it throws of my gut flora - so gross!!

0

Share this post


Link to post
Share on other sites

I don't think it's hairy tongue. My whole mouth gets coated and is dry and sticky and stinky. In fact all of me gets stinky! It was chance that we figured out the connection. I'm very curious about what component of cheese is the problem. I can eat yogurt!

0

Share this post


Link to post
Share on other sites

a GI doctor is unlikely to know what Sjogren's is, let alone know what tests to do for it. It is not a disease that turns up in your gut, it's a rheumatic auto-immune disease. Make an appointment with your GP and/or get a referral to a rheumatologist.

0

Share this post


Link to post
Share on other sites

Yeah the GI I talked to yesterday said its probably nothing, she said to not even bother seeing a family doctor about it. I would like to deal with it though since its bothering me so much and I know it does mess teeth up when gums are so dry through the night. Dosent it?

Should I just go to a family doctor and ask to be checked for Sjogren's, or how do I go about this?

0

Share this post


Link to post
Share on other sites

Start with the family doctor. The specialist who will really be familiar with Sjogren's testing is a rheumatologist so you may need to ask for a referral. (Or go directly to a rheumy if your insurance allows.)

0

Share this post


Link to post
Share on other sites

yes, if you have Sjogren's it can negatively affect your teeth and gums.

0

Share this post


Link to post
Share on other sites

yes- badly affect your teeth and gums if its sjogren's. Hope that it isn't!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,625
    • Total Posts
      918,379
  • Topics

  • Posts

    • glutened by lays potato chips?
      I ate some baked lays last night and felt very sick all night and haven't been feeling great all day today. Other than that I didn't eat anything different from what I normally eat and there was no risk of cross contamination with anything.. These were the only thing I had that was different. They're labeled gluten free so I figured it would be okay, but I started feeling sick pretty soon after eating them. I'm not sure if it's another ingredient in them or what (and i know it's not the soy).. Has anyone else had a reaction to lays potato chips?
    • Symptoms In Toddlers?
      Welcome Ashley! Here are the current tests.  The DGP versions seem to work a bit better than the TTG in small children.  So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! http://www.cureceliacdisease.org/screening/ Your doctors are wrong!  They must be reading old medical text books.  Not all kids or people have failure to thrive!  You can even be symptom free!. I was anemic and had no intestinal issues when I was diagnosed.  celiac disease affects everyone differently and that's probably why so many folks are not diagnosed. Your kids (parents, siblings too) should be tested every few years (sooner if symptoms develop) per all the leading celiac researchers/doctors if a first-degree relative has celiac disease (like you!)  celiac disease can develop at any age! Hope this helps!   
    • amalgam dental fillings - remove or not?
      Do you have celiac disease?  This is a celiac forum and that's what we are most knowledgeable about. http://www.cureceliacdisease.org/screening/ Amalgam fillings do not have lead that I know.  What you read was probably mercury.  You could have them removed, but only by a dentist who has the knowledge and skill.   I think you need to do some more research so that you can make an informed decision. I wish you well. 
    • Newly diagnosed and totally overwhelmed
      Welcome! Go ahead and rant!  Scream and holler!  Weep.  It is totally normal to go through a grieving process.  We have all been there!  You are NOT alone! When you pick yourself off the floor, start researching.  Learn about the gluten free diet.  Start with easy-to-digest foods that are naturally gluten free (meat, fish, veggies, fruit, etc.).  You may have to give up dairy for a short time until your villi heal (the villi tips release enzymes that help digest lactose (milk sugars).  Skip all the processed foods until you are improving.  That will give yourself time to forget what bread really tastes like.  Avoid eating out for a few months -- it's easy to get cross contamination.  Best to explain your gluten-free needs when you, yourself, "get it".  Read our Newbie 101 thread under "Coping" for valuable tips.   You can go out and drink with your friends.  You might have to avoid alcohol for a few months.  But when healed you can drink!  Just no beers, malted beverages.  Most distilled liquor (e.g. volka) is gluten free.   So, is wine.  Skip the gluten free beer for a long time.   Find other celiacs in your area.  In the meantime, visit with us.  It does get better.        
    • amalgam dental fillings - remove or not?
      Hi everyone, I'm going through some health issues right now and when searching for possible causes of my symptoms and blood test results, I see lead poissoning popping up quite a few times. Now, I have many amalgam fillings in my mouth since childhood, so naturally I'm thinking if that might play a role and if removing them would make a difference. But from what I read online removing the amalgam fillings is not recommended and does not bring any health benefits. I have mixed feelings about this issue and would really appreciate some advice. Thanks in advance for any comments. Greetings from Mexico. :-)
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,716
    • Most Online
      1,763

    Newest Member
    Acomys
    Joined