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Am I Getting Worse Because I'm Reading Too Much?


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#1 GlutenFreeNewB

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Posted 22 November 2011 - 05:48 PM

I'm pretty new to gluten free. I stopped eating gluten about 3 weeks ago and started to feel better. I've been reading everything I can get my hands on. Now I seem to have more symptoms than I did before. I think I got glutened at a restaurant this weekend and the symptoms I've been able to live with for many, many years are now making me feel worse than ever! It seems like the more I know, the worse I feel...beginning to wonder if it's all in my head :-(
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#2 Marilyn R

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Posted 22 November 2011 - 06:23 PM

So you're thinking the more knowlegable you become, the more stupid you get : ;) That isn't logical...but there is a period of time that I experienced, manbe you won't, where your autoimmune system is really pissed off because you removed their favorite warrior (gluten) and started eating gluten-free. For me, my internal warriors hated the quinoa, soy, corn and dairy proteins. That doesn't necessarily mean your own experience will be similar.
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Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

#3 Korwyn

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Posted 22 November 2011 - 08:01 PM

Hi gluten-free,

This is not at all uncommon (I'm sorry). Very often people become more sensitive once they go gluten-free for even a short time. It isn't in your head. This happened to me as well as many others here.
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#4 mushroom

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Posted 22 November 2011 - 08:19 PM

Yes, once your body has learned what it is like to be gluten free, the warriors attack with renewed vigor. Sorry :( But it is a good reminder to keep away from the stuff. :)
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#5 sandsurfgirl

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Posted 22 November 2011 - 08:40 PM

Your body is healing and it will go through withdrawal. There is an article somewhere about gluten withdrawal being equivalent to opiate withdrawal. Withdrawal and the healing phase are very real.

Use the search function and read old threads about withdrawal so you can know that it's normal, it will pass and you aren't going crazy.

At the 3 week mark, my body rebelled and every single thing I ate made me sick. I was freaking out but then I read about that happening to others and it usually goes away. About a week and a half later... it went away.

You need to be on a very clean diet for now to promote healing. Most of us cut out dairy and soy for awhile because those are hard to digest with a damaged intestine. Sometimes fructose can be hard too so maybe eat less fruit. Some people have to cut potatoes and tomatoes too. But it comes back as you heal!!!

Eat lean meats, nuts if you aren't allergic, veggies, fruits, rice. Keep it simple for just a little while and you will be happy you gave your body that chance.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#6 pricklypear1971

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Posted 22 November 2011 - 09:16 PM

Yeah - it can make you feel nuts.

I never thought one thing could do so many weird things to my body...

Yes, you're reading a lot. Yes, you may flip a bit. But you aren't nuts...and you will get through this.

I thought sinus pressure was normal. I thought dry skin was normal. I thought C was normal. Guess what, it ISN'T!

I've only given up ONE THING. GLUTEN.

And from removing ONE THING, so much has changed. I learn something new about myself every day. Seriously.

Some days I feel like a walking science experiment.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
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Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#7 WhenDee

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Posted 22 November 2011 - 10:17 PM

This happens!

When I first took gluten out of my diet, the most minor exposure would send me to the bathroom for an entire day, plus I would have a migraine. This from a woman who spent sixteen years with constipation and bowel obstructions!

I've been gluten-free for about a year now (it flew by!) and now it isn't nearly so bad. Getting glutened makes me miserable, but it isn't debilitating like before.

A friend of mine IRL is still debilitated by it, but I think she is much worse than me. Everyone is different. As your body heals, it will continue to change. I hope that you are like me, and your body will settle down and just complain a little bit when you get glutened.

What I do know is that the cleaner your diet is, the easier it is for your body to heal. Don't go overboard with gluten replacements, which are mainly rice, tapioca, bean flour, potato flour, etc. Very low in nutrition. Your body has been depleted for a long time. Focus on lots of fruit & veg, replacing those depleted vitamins & minerals. You'll heal faster & better. Plus you'll be focusing on the positive rather than thinking about how BAD most of the gluten-free replacements are! LOL
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#8 sandsurfgirl

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Posted 22 November 2011 - 11:39 PM

I had some really weird things happen when I went gluten free. I had improvements all the time but it was six months before I felt really good.

I got dehydrated easily and had to drink Gatorade daily in order to not feel dizzy and shaky. For some reason natural electrolyte replacements gave me horrible D. Go figure. Plain old Gatorade did the trick.

Lots of people will poop like 10 or 15 times per day at first. that was a weird one.

I can't drink most sodas anymore. Once I went gluten free Coke, Pepsi, and things like Sprite taste like soap water to me. It literally does not taste like Coke. I tried Sprite again recently to see if that changed and nope. Soap water. Natural root beer like Hansens tastes good to me. I was never a big soda person anyways, but now I almost never drink it.

I had a pain in my right side for years and years. They did all these tests on my gallbladder but it was fine. I never had a colonoscopy though. One night about a month into the diet I had this weird pulsing in that area and it started spasming. I felt like a little pop and then had to run to the bathroom. This stuff like tar came out and I think it was impacted for years!!! I had a small panic attack too and then when it was out of me the anxiety went away. Now that is crazy!!!
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#9 GlutenFreeNewB

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Posted 23 November 2011 - 06:13 AM

Thanks to all of you. It's just strange that I was able to live with this for years and not even know it, and now I'm just such a mess. I've always eaten very healthy food, very little processed food, so I'm not tempted at all by the gluten free processed stuff. I will stay positive and keep plugging away knowing it will get better!
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#10 lovegrov

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Posted 23 November 2011 - 06:46 AM

It is possible that you're now more sensitive and it's also possible you're having some withdrawal -- neither of which ever happened to me -- but it's also possible you're just driving yourself temporarily crazy worrying about everything -- which DID happen to me.

richard
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#11 Korwyn

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Posted 23 November 2011 - 09:12 AM

I've always eaten very healthy food, very little processed food, so I'm not tempted at all by the gluten free processed stuff.


My wife and I ate pretty health as well (compared to the average western/American diet). Lots of whole grains, lots of veggies, salads, lean meats, low fat, etc. I kept getting sicker, and fatter. Now I eat mostly protein and fats and I'm physically doing better than I've ever been in my adult life. My body really doesn't like carbs much at all. The more refined the worse it is. :blink:
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#12 Chad Sines

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Posted 23 November 2011 - 10:01 AM

It helped me to realize that my system was all screwed up and had no clue what it wanted. I can have issues with eggs one day and the next be okay, same with corn and many other triggers. It does seem that it gets a lot better quickly then a lot worse and then I guess stabilizes over time.
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#13 sandsurfgirl

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Posted 23 November 2011 - 02:20 PM

It helped me to realize that my system was all screwed up and had no clue what it wanted. I can have issues with eggs one day and the next be okay, same with corn and many other triggers. It does seem that it gets a lot better quickly then a lot worse and then I guess stabilizes over time.



For most of us it totally stabilizes over time. My new GI who actually knows about celiac and even particulars (a rare find) said that soy may not come back for me since it's still a problem all this time, but soy isn't that big of a deal for me to eat anyway. I'm glad I can eat dairy after years of it being a problem.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!


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