Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Don't Care What The Docs Say
0

9 posts in this topic

the specialist at our local childrens hospital told us our daughter in no way had issues with gluten as her ttg was normal the two times it was tested, and the fact she was growing

well we decided to trust mommy instinct, and 2 days gluten free i have my happy, spunky, funny 2 yr old back, no 2 hr tantrums, no clinging to my side

we are going back to our original gastro, he suggested gluten-free no matter what the tests said, and he was right!

1

Share this post


Link to post
Share on other sites


Ads by Google:

Good for you, and good for your original gastro!!

0

Share this post


Link to post
Share on other sites

I've found that my mommy instinct has served me well. I'm glad you are getting you little one feeling better!

0

Share this post


Link to post
Share on other sites

the specialist at our local childrens hospital told us our daughter in no way had issues with gluten as her ttg was normal the two times it was tested, and the fact she was growing

well we decided to trust mommy instinct, and 2 days gluten free i have my happy, spunky, funny 2 yr old back, no 2 hr tantrums, no clinging to my side

we are going back to our original gastro, he suggested gluten-free no matter what the tests said, and he was right!

I don't care what a test says...it can be wrong! If she's better off of it, keep it that way! Glad you trusted yourself!

0

Share this post


Link to post
Share on other sites

Yay! All four of my grands are off gluten, no testing done. The stuff is bad, more people need to be as smart as yourself!!

1

Share this post


Link to post
Share on other sites




well, day 3 gluten free, And all I have to say is who is this child? Can't wait for our appointment with our original gastro because that man needs a great big hug. He is the only one who never brushed us off with toddler diahrrea and withholding stool and a phase

any parents in Vancouver b.c. Need to see Dr mark riley in north van

0

Share this post


Link to post
Share on other sites

i agree with all of you, i have the same problem with my son, one doctor said that he has celiac ad another said that he is lactose intollerant not celiac, i am doing him some tests now, if i am not convenced with the results i am going to make him gluten free

0

Share this post


Link to post
Share on other sites

trust your instinct, we are now 1 month gluten free and she is a different child! We have however now her huge belly has gone discovered a lump in he belly right next to her belly button that you can see even when she is lying down, I'm hoping its a hernia from being so swollen and nothing else

back to the docs to gloat and ask to have the lump checked

0

Share this post


Link to post
Share on other sites

trust your instinct, we are now 1 month gluten free and she is a different child! We have however now her huge belly has gone discovered a lump in he belly right next to her belly button that you can see even when she is lying down, I'm hoping its a hernia from being so swollen and nothing else

back to the docs to gloat and ask to have the lump checked

Our youngest has a little lump above her belly button. I asked her ped about it and she listened to it with the stethoscope and told me what it was but forgot the name. She said it's nothing to worry about but I keep a close eye on it.

Yay for everyone trusting their mommy instincts! If I didn't trust my mommy instincts I would have two very sick girlies right now!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,099
    • Total Posts
      920,354
  • Topics

  • Posts

    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,134
    • Most Online
      1,763

    Newest Member
    Alinapep
    Joined