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Don't Care What The Docs Say


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8 replies to this topic

#1 stanleymonkey

 
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Posted 22 November 2011 - 05:48 PM

the specialist at our local childrens hospital told us our daughter in no way had issues with gluten as her ttg was normal the two times it was tested, and the fact she was growing
well we decided to trust mommy instinct, and 2 days gluten free i have my happy, spunky, funny 2 yr old back, no 2 hr tantrums, no clinging to my side
we are going back to our original gastro, he suggested gluten-free no matter what the tests said, and he was right!
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#2 mushroom

 
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Posted 22 November 2011 - 06:19 PM

Good for you, and good for your original gastro!!
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"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

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Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
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Now tolerant of lactose

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#3 Roda

 
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Posted 22 November 2011 - 08:20 PM

I've found that my mommy instinct has served me well. I'm glad you are getting you little one feeling better!
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Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


#4 Bella001

 
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Posted 22 November 2011 - 09:23 PM

the specialist at our local childrens hospital told us our daughter in no way had issues with gluten as her ttg was normal the two times it was tested, and the fact she was growing
well we decided to trust mommy instinct, and 2 days gluten free i have my happy, spunky, funny 2 yr old back, no 2 hr tantrums, no clinging to my side
we are going back to our original gastro, he suggested gluten-free no matter what the tests said, and he was right!



I don't care what a test says...it can be wrong! If she's better off of it, keep it that way! Glad you trusted yourself!
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#5 AVR1962

 
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Posted 22 November 2011 - 10:57 PM

Yay! All four of my grands are off gluten, no testing done. The stuff is bad, more people need to be as smart as yourself!!
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Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

#6 stanleymonkey

 
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Posted 23 November 2011 - 01:19 PM

well, day 3 gluten free, And all I have to say is who is this child? Can't wait for our appointment with our original gastro because that man needs a great big hug. He is the only one who never brushed us off with toddler diahrrea and withholding stool and a phase
any parents in Vancouver b.c. Need to see Dr mark riley in north van
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#7 kaity

 
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Posted 22 December 2011 - 09:34 PM

i agree with all of you, i have the same problem with my son, one doctor said that he has celiac ad another said that he is lactose intollerant not celiac, i am doing him some tests now, if i am not convenced with the results i am going to make him gluten free
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#8 stanleymonkey

 
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Posted 23 December 2011 - 09:03 AM

trust your instinct, we are now 1 month gluten free and she is a different child! We have however now her huge belly has gone discovered a lump in he belly right next to her belly button that you can see even when she is lying down, I'm hoping its a hernia from being so swollen and nothing else
back to the docs to gloat and ask to have the lump checked
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#9 salexander421

 
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Posted 23 December 2011 - 07:44 PM

trust your instinct, we are now 1 month gluten free and she is a different child! We have however now her huge belly has gone discovered a lump in he belly right next to her belly button that you can see even when she is lying down, I'm hoping its a hernia from being so swollen and nothing else
back to the docs to gloat and ask to have the lump checked


Our youngest has a little lump above her belly button. I asked her ped about it and she listened to it with the stethoscope and told me what it was but forgot the name. She said it's nothing to worry about but I keep a close eye on it.

Yay for everyone trusting their mommy instincts! If I didn't trust my mommy instincts I would have two very sick girlies right now!
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Proud breastfeeding, toddlerwearing, part time cosleeping, stay at home mom. Positive for two copies of DQ8, negative celiac panel after 3 month gluten challenge; biopsy showed gastritis, inflammation in the esophagus, and hiatial hernia but no signs of celiac. Possible DH. Gluten free as of 3/11/2011

ODD 3 1/2, positive for DQ8 and DQ6, negative celiac panel after 3 month gluten challenge. Gluten free as of 3/10/2011

YDD 2, no testing. Positive for DQ8 and DQ6. Possible DH. Gluten free as of 3/10/2011




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