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Doc Says No Blood Test.
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3 posts in this topic

Well the doc says no to the blood test. The other tests have all come up negative (endoscopy,fecal fat trypsin) so he feels that it will also be negative.. I can just hear Welda now.. what can he see in the blood.. So since the little guy has gained a little weight I am willing to watch him. I can always tet a test done on my own.

The doc also suggested immodium my husband is more willing to try this than me I think it will help temporarily but when we go off it it will be the same.

I might try it just to prove that.

Then the doc suggested that some people are successful in using acidopholis.. I can do that easily, and that some are su*ccessful with diatary manipulation.. hm

mm..

he is not sensitive to gluten but yet dietary adjustments might help??? HELLO

oh well I have another doc reccomendation and the enterolab tests yet to do.. I will watch him for a few weeks see if his weight stays steady.

He woke us up with a bang this morning! Throwing up all over us!!! fun fun!

Thanks for listening!

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Immodium worked for me until I had the Celiac crisis and then it no longer worked. I might as well have not taken it. It really seemed to make the pain and diarrhea worse instead of better. The only thing that helped me was the gluten-free diet and that took several months to start working. But, of course, I was not diagnosed until my villi had been damaged badly. So all of those cute little barbaric tests they did, registered to the max, blood tests and biopsies. On some people those tests do not register until a lot of damage has been done. So, I'm with Welda, go for enterolab. At least Dr. Fine tries to catch the disease before major damage has been done. Shirley

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I don't know exactly what your situation is, but our peds and peds GI both advised against using any medication in children with diarrhea. If the problem is some sort of IBS, non-diarrheal meds can actually make it much worse (or at least that's my non-medical understanding of it). Acidophilus can help, but it takes a couple weeks to see any difference if it's going to work at all. Has he been tested (blood tests) for food allergies? Throwing up is a common food-allergen reaction (sorry if you've been over this)

Don't let ANY doctor tell you weight loss isn't a problem. My son just got out of 6 weeks of hospitalization -- they knew he was celiac, but kept saying "let's give it a little more time...." Turns out he has an egg allergy, celiac, and probably a rare disorder called autoimmune enteropathy. At 10 years, he was in the negative 7 percentile and still losing weight. Only strong anti-rejection medicine saved his life. You need a peds GI doctor, and most every large hospital has a few. Good luck. Perservere, and trust your instincts....

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    • Hi, you can try reporting your own post.  That should alert the site admin of your request.  I don't think they can delete your posts, but changing your user name may be possible.
    • Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten  until the tests are all done.  The skin problems you describe ma be a condition only celiacs get.  The condition is called dermatitis herpetiformis (DH for short),  DH causes an itchy rash that is usually symetrical on the body.  You get the rash on both arms or legs etc.  It makes little blisters on the skin.  They are caused by IgA antibodies in the skin.  There i a test for DH where they take a small skin sample (biopsy) from the skin next to a blister and check it for IgA antibodies.   If they find DH, then you have celiac disease.  The 2 conditions are never separate.  there is a section of this forum dedicated to dermatitis herpetiformis with lots more information. The usual diagnostic process is to do a celiac antibodies blood test first, and then an endoscopy to test for damage to the gut lining.  But with DH, it is better to get the skin biopsy done instead of the endoscopy. Celiac disease is passed on in genes, so your children should be tested also if you are diagnosed.
    • Research Celiac Ataxia for potential diagnosis. Look at Milk and dairy for potential head and sinus related issues.  I stopped dairy and I can breathe now! Saturated fat may also be a problem, but it's mostly dairy!
    • It is best not to try and do this on your own. Talk to your allergist. Not all will deal with food intolerances but if yours doesn't find one who will.  Mine had me fill out a very detailed diet questionaire and tested for true allergies before he gave me my starting point. I will admit I wasn't real happy with my starting point since none of my usual foods were on it. He said that I was most likely to react to foods I ate the most so most of the 5 I either rarely ate or didn't really like. The prescribed starting point he formulated was designed to make sure I had adaquate nutrition and enough calories.   It took about 2 weeks before a lot of my tummy issues resolved and I was then able to start adding foods in one at a time for a week before moving on to the next.  He said food intolerance reactions can take up to a week to show up so I had to be sure it was a full week between food additions. I did have to call three offices before I found a doctor who could do the formulation of the diet but this guy truely saved my life. Out of all the doctors I had seen, including specialists in big hospitals, he was the one responsible for finally realizing I was celiac. He of course referred me back to my clueless GI doctor who confirmed the diagnosis by almost killing me with a gluten challenge. I should note that some of my intolerance (not gluten of course) did resolve after I had healed. Even dairy which I hadn't been able to have for years! I hope you can get some answers and are able to heal soon.
    • I'm 43 years old. I'm married and have two teen daughters. After all these years it was one of my daughters who tonight said to me: "you probably have Celiac disease" after hearing my wife and I talking about all the pimples I always get on my arms. I never heard of the disease but I have heard about a lot of people having gluten allergies and didn't know they were the same thing. So I started looking it up on the internet. Turns out I have had all the symptoms all my life and no one has ever said anything about it possibly being Celiac disease. When I was a kid my doctor gave me prescriptions to antibacterial soaps to use for the arm pimples. Hibitane I think was one of them. And I've always had swollen looking ankles as long as I can remember. All my life people have noticed it. As a kid and teen I played lot's of sports and have broken my ankles and sprained them so my mom and I brushed it off at that and so did my family doctor when I was young.  But I always thought it was weird that the swelling continued all these years.  I have had a bloated feeling stomach all my life too and chronic diarrhea. My stomach is always hard and swollen feeling. Not ever knowing what that stuff was related too so I have never mentioned the bloat or diarrhea to a doctor. Just kind of embarrassing I guess. As my wife and I were reading about Celiac Disease on the internet together tonight she pointed out to me that that's probably why these symptoms almost all went away when I did a very low carb diet for about a year straight to lose weight a couple years ago. I had solid bowel movements, no bloat, ankle swelling went down but I thought the improvements were from weight loss and just eating healthier . But perhaps in reality it probably had a lot more to do with not eating all the wheat products/gluten products. So tomorrow I will be seeing my doctor to talk to him about it and to ask for the blood tests. I have read that I should continue eating gluten though until my testing is done. So that is crappy but I guess it's better to know for sure. Something else I think I should point out too is that I get headaches quite a bit after having big meals. Now I am thinking that may have something to do with the gluten too. I have read that some people with Celiac also get headaches with the other symptoms. It's great to see there is a forum like this to help people out with these issues. If I test positive for Celiac I will for sure be following this forum closely for advice and diet/nutrition help.
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