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Doc Says No Blood Test.


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#1 DLayman

 
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Posted 18 March 2004 - 06:59 AM

Well the doc says no to the blood test. The other tests have all come up negative (endoscopy,fecal fat trypsin) so he feels that it will also be negative.. I can just hear Welda now.. what can he see in the blood.. So since the little guy has gained a little weight I am willing to watch him. I can always tet a test done on my own.

The doc also suggested immodium my husband is more willing to try this than me I think it will help temporarily but when we go off it it will be the same.

I might try it just to prove that.

Then the doc suggested that some people are successful in using acidopholis.. I can do that easily, and that some are su*ccessful with diatary manipulation.. hm
mm..
he is not sensitive to gluten but yet dietary adjustments might help??? HELLO
oh well I have another doc reccomendation and the enterolab tests yet to do.. I will watch him for a few weeks see if his weight stays steady.

He woke us up with a bang this morning! Throwing up all over us!!! fun fun!
Thanks for listening!
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#2 Guest_aramgard_*

 
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Posted 18 March 2004 - 07:09 AM

Immodium worked for me until I had the Celiac crisis and then it no longer worked. I might as well have not taken it. It really seemed to make the pain and diarrhea worse instead of better. The only thing that helped me was the gluten-free diet and that took several months to start working. But, of course, I was not diagnosed until my villi had been damaged badly. So all of those cute little barbaric tests they did, registered to the max, blood tests and biopsies. On some people those tests do not register until a lot of damage has been done. So, I'm with Welda, go for enterolab. At least Dr. Fine tries to catch the disease before major damage has been done. Shirley
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#3 ryebaby0

 
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Posted 18 March 2004 - 05:13 PM

I don't know exactly what your situation is, but our peds and peds GI both advised against using any medication in children with diarrhea. If the problem is some sort of IBS, non-diarrheal meds can actually make it much worse (or at least that's my non-medical understanding of it). Acidophilus can help, but it takes a couple weeks to see any difference if it's going to work at all. Has he been tested (blood tests) for food allergies? Throwing up is a common food-allergen reaction (sorry if you've been over this)
Don't let ANY doctor tell you weight loss isn't a problem. My son just got out of 6 weeks of hospitalization -- they knew he was celiac, but kept saying "let's give it a little more time...." Turns out he has an egg allergy, celiac, and probably a rare disorder called autoimmune enteropathy. At 10 years, he was in the negative 7 percentile and still losing weight. Only strong anti-rejection medicine saved his life. You need a peds GI doctor, and most every large hospital has a few. Good luck. Perservere, and trust your instincts....
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Mom/wife to celiacs dx 12/03 and 12/04


Success is never final and failure never fatal. It's courage that counts -George Tilton




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