Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Still Symptomatic After 6 Months Of gluten-free Diet?
0

15 posts in this topic

Hi,

I have been following very strictly (except for today... :( ) the gluten free diet. Every time I eat a meal, I get extremely bloated directly afterwards. I don't really have any idea what is causing it. This was happening before I was diagnosed as well. Until 2 months ago, and at the direction of my GE, I was dairy free. Now I am lactose-free, and so far the bloating has not changed, which leads me to think that it isn't lactose/dairy. I'm really not sure, and I was wondering if anyone else could lend a bit of insight or perhaps they have had similar situations??

Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Corn? It's in a ton of stuff! More than you may realize.

0

Share this post


Link to post
Share on other sites

Dan, after reading a LOT of posts on here I realize it could be many things. Have you checked your toiletries (shampoo, soap, hand soap, etc?)for gluten? It could also be another sneaky food intolerance (corn,soy,eggs). Possibly cc? I would investigate these; that's what I'm in the process of doing for myself. I did have relief for a couple months gluten-free but for the last month or so it has gotten bad again. It's really messing with me so I feel your pain. Good luck to you, hope you get some relief soon!

2

Share this post


Link to post
Share on other sites

What helped me was eating for IBS combined with eating gluten free. I started this because I was misdiagnosed for 3 months with interstistial stistitis. The founder of the ic network has ibs and I learned all about it. But when they realized I had celiac disease, I combined eating for IBS and I was able to get it under control. There are many good books out there. Hope this may help. For instance, eat some bread with a salad.

Cut out caffiated drinks. Cut way back on fats. Eat several small meals during the day. No big meals!

0

Share this post


Link to post
Share on other sites

Could it really be corn/soy/eggs? I've definitely heard of it before, but how does one test for it? Do you have to be referred or something?

0

Share this post


Link to post
Share on other sites




On thing that I did not mention when I first posted this that may/may not make a difference to your replies would be that around two months ago I began to take prevacid (acid reduction), which helped to get rid of most of the stomach/abdominal pain I was feeling every time after eating and throughout the day. However, as I mentioned before, the bloating persists, with the occasional pain/cramp between the belly button and rib cage (on the front). If you place your hand directly above the belly button, the pain is in the area of the palm.

0

Share this post


Link to post
Share on other sites

Could you tell us what you are eating? That might give us some ideas.

2

Share this post


Link to post
Share on other sites

Could you tell us what you are eating? That might give us some ideas.

Yes, and a food diary would be helpful to pin point a potential issue.

1

Share this post


Link to post
Share on other sites

How about aliminating food with xanthum gum. That could be it. I know I get sick when I eat bisquick gluten free. I just get sick and have to go all morning, so something is wrong.I you figure out what it is soon.Maybe do the brat diet and add one thing back per day and see what happens.

0

Share this post


Link to post
Share on other sites

How about aliminating food with xanthum gum. That could be it. I know I get sick when I eat bisquick gluten free. I just get sick and have to go all morning, so something is wrong.I you figure out what it is soon.Maybe do the brat diet and add one thing back per day and see what happens.

Have you looked into the other ingredients in the Bisquick? Or milk or other dairy products? What makes you think it's the Xanthum gum?

0

Share this post


Link to post
Share on other sites

You could be healing from your stomach acid damage. I have a herniated esophagus and am on acid reducers for it. I had a lot of damage from the over production of acid/heart burn. I had a lot of pain for about 4 months after just healing up. I noticed it more when I was on the meds because my heart burn was gone. Just a thought...

0

Share this post


Link to post
Share on other sites

My husband brought an article home from a registered diatitian that said that xanthan gum gould give the d. I can eat bread with it. Just no clue about the bisquick.

0

Share this post


Link to post
Share on other sites

As for what I am eating, just regular run-of-the-mill gluten-free stuff, for example, fish, pork, beef, chicken, shrimp, corn, potatoes, gluten-free bread, crackers, a few cookies here and there :), salad, nuts, dried fruit, fresh fruit, vegetables, eggs, milk (LF) and other dairy products (LF with lactase enzyme).

My GE thinks that the bloating/gas is coming from the lactose, but I know it isn't, because I had been off of dairy for six months before he told me to start taking the lactase and go back on a LF dairy diet. So I did, and nothing changed.

Stomach acid...yeah, possibly. The majority of my stomach pain (ache) went away after starting prevacid. However I still seem to be producing a lot of gas so the last time I went to see him I was told to double the prevacid (2 30mg tabs/day). Nothing has changed.

I read up on bloating/over production of gas (in general), and the book said that it could be due to malabsorption and/or not enough good bacteria (among others, but these were the two reasons I thought most applicable). The others were reasons like gastritis, IBS, and parasites. Anyone have any input on this?

Oh, and I was also thinking that perhaps my system might just be taking a long time to heal...but it's got to be more than that...cause it wouldn't make sense that there would be hardly a sign of improvement after 6 months, would it?...

Thanks :)

0

Share this post


Link to post
Share on other sites

You might want to look into the possibility of being a super sensitive celiac. Some of us react to processed foods. What you would need to do is eat only produce and meat for a few days and see if you notice a difference. Then you could look into the particulars further.

1

Share this post


Link to post
Share on other sites

Has anyone done the (Company Name Removed - They Spammed This Forum and are Banned) test? How much more accurate is it than an IgA or IgG test?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,648
    • Total Posts
      921,603
  • Topics

  • Posts

    • You are right, the tests could be invalid.   All the celiac tests require you to be on a gluten-containing diet.  It is up to you to decide if you want to go gluten free.  You can do it.  Believe me, I know.  Hubby is not officially diagnosed.  He went gluten-free 15 years ago, based on the rather poor advice from my allergist and his GP.  It worked though.  But he would be the first to tell you that I have had way more support in terms of family and medical.    We think he has it.  Both of our families are riddled with autoimmine disorders.  I am the first to be diagnosed.   My Aunt went gluten free per the advice of her Chiropractor.  Her other doctors never suspected celiac disease.  The diet obviously worked for her.  Her daughter (my cousin) is a nurse.  She had an endoscopy but they did not check for celiac disease.  She chose to go gluten-free too since it worked for her mom.  Both will not do a gluten challenge.  However, my diagnosis has helped them get proper medical treatment.  My Aunt is very active in a celiac support group.    Now everyone in my family knows about celiac disease.  My own niece was just diagnosed with Crohn's, but her GI did test and will continue to test her for celiac disease.  You can develop additional autoimmune disorders at any time.   So far, a few other members have been tested.  No one else had had a celiac disease diagnosis yet.  Time will tell.  If I can save someone from the misery of struggling to get a diagnosis, then I can feel good.   Now, an official diagnosis will help you adhere to the diet .  You can get follow-up care.  Get checked for other things like SIBO, H. Pylori and cancer.  But ultimately, it is up to you.   Whatever you decided to do, please consider a family health history chart.  You might someday help a grandchild.   The stool tests?  In all my research, leading celiac experts do not recommend them.  http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/ gene testing?  Some 30% of the poulation carries the celiac genes.  It just tells you that you have the chance to develop celiac disease.  It can not diagnose you.    
    • The procedure is a breeze. You will go in, be sedated and go to sleep for a short nap and then it's over. Some people will have a bit of a sore throat but not everyone does. For me the hardest part of the endo was not being able to drink coffee when I got up. You seem to have been back on gluten for long enough to have the test but as CLady said there is a good chance your blood work may be negative. In your case you may want to continue eating gluten after the biopsy at least until you get your blood results. If they are negative consider going a bit longer and getting them redone.
    • I think the gene tests are accurate.  Not sure if thier interpretation of them is.   If you actually think have Celiac, you need to know that.  You  need to know how careful you must be.  You need a diagnosis to get gluten-free food in hospitals or nursing homes (if you can find one that does gluten-free food).  Because thsese "stool tests" are not medically accepted, it is unlikely that a real medical facility will consider you to have Celiac.   http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/
    • Why would your doctor order an endoscopy and check for celiac disease, but not order a celiac panel?  Had you been gluten free already?  
    • Thanks cyclinglady ... just wondering, do most of the people on this forum believe the Enterolab stool / gene testing to be non-trustworthy? Or are you just recommending a diagnosis from my MD so that she is also treating me with full belief/knowledge of my condition? I've been gluten free now for 2 weeks - by the time I get in to my doctor, she orders the bloodwork and I get to a lab it could be another 2 weeks before the bloodwork is done. From what I understand, just a month of gluten free eating could skew the results of the blood test. Supposedly, the stool tests are much more accurate. I hate to go backwards and start eating gluten again just so I can have a blood test done that may or may not substantiate the results of the stool / gene testing. I'm so confused ...
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined