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Does Anyone Else Have Perioral Dermatitis


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8 replies to this topic

#1 x0xteenyx0x

 
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Posted 27 November 2011 - 07:06 PM

soooo i went to the doctors a few days ago because i was getting fed up with a rash i just got around my nose that wont go away. She told me its a form of perioral dermatitis and due to having being a celiac. ugh :huh: . She also said there really isn't anything we can do to get rid of it, but its soar and gross.

Does anyone have this issue and know to get it to go away?

Any help would help!!

Christine :P
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#2 Silencio

 
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Posted 27 November 2011 - 08:01 PM

I have a rash right above my ankle that has been there for years. Its about as big as a fist. I am scratching it every day so I figured thats why it wont go away. I never thought much about it. I just pretty much live with it. I dont think I had Celiac very ling before I was diagnosed so it might not have anything to do with it. I could be wrong though.
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#3 rosetapper23

 
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Posted 27 November 2011 - 08:15 PM

Hmmm....well, I thought I'd heard of everything associated with celiac...but I've never heard of perioral dermatitis. Why does she think it's linked to celiac? The only dermatitis I've read about that is associated with celiac is Dermatitis Herpetiformis (DH), and some of us also have a problem with eczema. If there's any possibility that it might be DH, try eliminating iodine. If your "rash" goes away, then what you actually had was DH.
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#4 ladymiss

 
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Posted 27 November 2011 - 08:17 PM

i had perioral dermatitis and visited my dermatologist who prescribed the usual tetracycline and steroid cream. in the end, i only took the antibiotics for 3 days because they did a number on my stomach. i read that it is hard to get off of the steroid creams so i never used them. i visited with my naturopath who suggested grapefruit seed extract. you cannot put this on your skin straight, it MUST be diluted with water according to the instructions. i put it on religiously :P in the morning and in the evening in the areas where i was having break outs. it took 2 mos. but the problem resolved completely.

interesting to hear someone say it is related to celiac.
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Lactose Intolerant 2004, Gluten Intolerant 2010
Negative blood test for Celiac 2011, but incomplete testing....
All recent: Soy, casein and egg sensitive. Peanut and Shellfish allergy.
Still learning about what all this means....


Barn's burnt down-
now
I can see the moon.
Masahide, Japanese poet, 1657? 1723

#5 x0xteenyx0x

 
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Posted 28 November 2011 - 11:06 AM

I have no idea why she would say this, seems a little weird to me. Also steroids make it worse, so dont use your steroid creams!! I have been trying to use tea tree oil, but it just stings my face and makes everyone not want to be around me because it smells so strong haha

I am going to try and use that grapefruit seed extract, thanks :)
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#6 Skylark

 
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Posted 28 November 2011 - 12:03 PM

I have it. For me, it has nothing to do with gluten and I haven't linked it to any food. Perioral dermatitis is supposedly a form of rosacea, so irritants like tea tree oil may make it worse. Steroids make all forms of rosacea worse. I've read that switching to fluoride-free toothpaste helps some people but it didn't work for me.

I flatly refused to take oral doxycycline but I use Metrogel (metronidazole 1% gel) and it helps the breakouts a lot. There's a metronidazole cream too but I like the cooling feel of the gel.

I might have to try the grapefruit seed extract because the Metrogel keeps it mostly controlled but it hasn't been a permanent cure.
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#7 pricklypear1971

 
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Posted 28 November 2011 - 01:50 PM

I get it once in a blue moon, usually when seasonal allergies are bad.

I think I had it along with DH for a while. Talk about confusing...

Anyway, I noticed that putting any sort of skin-turnover cream on the areas made it worse...at the time I was using Devita.

I tried to keep cosmetics and other stuff off of it, except basic moisturizer. The turnover cream made it redder, but smaller. A catch-22.

Mine would go away literally overnight, after being there for over a month. I've tried stuff from the Derm in the past... nothing really worked. I tried the Metrogel and had similar results as Skylark.

I've heard minty, cinnamony toothpaste can aggravate it - if its around the mouth. If its by your nose I don' know....
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Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
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Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#8 ladymiss

 
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Posted 28 November 2011 - 10:45 PM

i've been thinking a bit today about having perioral dermatitis. here's a few more things worth mentioning. if i remember correctly from what i had read from a few sources- there was uncertainty if PD was caused by food or cosmetic allergies or if by fungus or bacteria in immuno-compromised individuals (which would make me wonder if the latter would apply to celiacs with malnutrition/skin issues. and would be why someone might say PD is related to celiac???). the grapefruit seed extract works for clearing both fungus and bacteria. i washed my face everyday with a very mild cleanser and used a little moisturizer. and used no makeup! i also switched to non fluoride toothpaste. i changed my pillow case everyday. i was desperate to get rid of the cause!!!

so from a scientific perspective.....it really could've been any one of these elements or all that contributed to good results, finally. i still think it was the GFS extract that did the trick. i could practically feel it working- it felt like it dried up the bumps and stopped the stinging. my PD was horrible, i had a full 'beard' of the stingy, red bumps. talk about feeling unattractive!! :P good luck! i hope it works for you!
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Lactose Intolerant 2004, Gluten Intolerant 2010
Negative blood test for Celiac 2011, but incomplete testing....
All recent: Soy, casein and egg sensitive. Peanut and Shellfish allergy.
Still learning about what all this means....


Barn's burnt down-
now
I can see the moon.
Masahide, Japanese poet, 1657? 1723

#9 carecare

 
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Posted 30 November 2011 - 09:24 AM

so very interesting...and glad I read this post. My daughter who is a freshman in college was home for Thanksgiving and developed a rash near her mouth on one side. She said it didn't feel like pimples but more of a rash. It sort of looked like tiny pimples but she said it was different. It's still there...and after reading about this condition you talked about I sent her the information and she too now believes this is what it is. She is getting tested for celiac on December 19th (endoscopy). If it starts to get worse I will have her see her doctor but in the mean time maybe I'll look for grapefruit seed extract and tell her to try it. She read that: "Gastrointestinal disturbances, such as malabsorption, have been considered as well." when reading up on it. Interesting. Hope you get some relief!
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